On Tuesday the longlist for the 2019 Wellcome Book Prize will be announced. For the third year in a row I’m running a shadow panel, and it’s composed of the same four wonderful book bloggers who joined me last year: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall.
This year we’re going to do things slightly differently: we plan to split up the longlist, taking two to three titles each, so that between us we will have read them all and can announce our own preferred shortlist before the official shortlist is announced in March. At that point we’ll catch up by (re)reading the six shortlisted books, each reviewing the ones we haven’t already. Essentially, I’m adding an extra stage of shadow panel judging, simply because I can. I hope it will be fun – and also less onerous, in that we should get a leg-up on the shortlist and not have to read all six books in March‒April, which has proved to be a challenge in the past.
My Wellcome Prize hopefuls are all the fiction or nonfiction titles I’ve read on a medical theme that were published in the UK in calendar year 2018. I have put asterisks beside the 12 books in this post that I predict for the longlist. (The combination of wishful thinking and likelihood means that these are not exclusively my personal favorites.)
Below is a list of the books I’ve already featured on the blog in some way, with links to my coverage and a few-word summary of their relevance.
Gross Anatomy by Mara Altman: Female body woes
*Beneath the Skin: Great Writers on the Body: Essays on organs
*All that Remains by Sue Black: Forensic anthropology
Everything Happens for a Reason by Kate Bowler: Living with advanced cancer
Heal Me by Julia Buckley: Tackling chronic pain
*The Unmapped Mind by Christian Donlan: Adjusting to life with MS
From Here to Eternity by Caitlin Doughty: Funerary rites around the world
This Really Isn’t About You by Jean Hannah Edelstein: A genetic disease in the family
Natural Causes by Barbara Ehrenreich: Questioning the wellness culture
On Smaller Dogs and Larger Life Questions by Kate Figes: Pondering breast cancer
Shapeshifters by Gavin Francis: Instances of bodily change
The Reading Cure by Laura Freeman: Healing from an eating disorder
Nine Pints by Rose George: The story of blood
Waiting for the Last Bus by Richard Holloway: Ageing and death
*Heart: A History by Sandeep Jauhar: Heart disease and treatments
Sick by Porochista Khakpour: Chronic Lyme disease
Human Errors by Nathan Lents: Flawed bodies; evolutionary adaptations
Skybound by Rebecca Loncraine: Breast cancer; flying lessons
Amateur by Thomas Page McBee: Memoir of F2M transformation
*Face to Face by Jim McCaul: Tales of facial surgery
*Somebody I Used to Know by Wendy Mitchell: A firsthand account of early Alzheimer’s
*That Was When People Started to Worry by Nancy Tucker: Mental illness from the inside
*The Language of Kindness by Christie Watson: Nursing as a vocation
Little by Edward Carey: Anatomical models in wax (thanks to Clare for the reminder!)
Orchid & the Wasp by Caoilinn Hughes: Non-epileptic seizures
*The Winter Soldier by Daniel Mason: Neurology, surgery during WWI
The Way of All Flesh by Ambrose Parry: Medicine in 1840s Edinburgh
Other eligible books that I have read but not happened to mention on the blog:
In Shock by Rana Awdish: The doctor became the patient when Awdish, seven months pregnant, was rushed into emergency surgery with excruciating pain due to severe hemorrhaging into the space around her liver, later explained by a ruptured tumor. Having experienced brusque, cursory treatment, even from colleagues at her Detroit-area hospital, she was convinced that doctors needed to do better. This memoir is a gripping story of her own medical journey and a fervent plea for compassion from medical professionals.
Doctor by Andrew Bomback: Part of the Bloomsbury Object Lessons series, this is a wide-ranging look at what it’s like to be a doctor. Bomback is a kidney specialist; his wife is also a doctor, and his father, fast approaching retirement, is the kind of old-fashioned, reassuring pediatrician who knows everything. Even the author’s young daughter likes playing with a stethoscope and deciding what’s wrong with her dolls. In a sense, then, Bomback uses fragments of family memoir to compare the past, present and likely future of medicine.
A Moment of Grace by Patrick Dillon [skimmed]: A touching short memoir of the last year of his wife Nicola Thorold’s life, in which she battled acute myeloid leukemia. Dillon doesn’t shy away from the pain and difficulties, but is also able to summon up some gratitude.
Get Well Soon: Adventures in Alternative Healthcare by Nick Duerden: British journalist Nick Duerden had severe post-viral fatigue after a run-in with possible avian flu in 2009 and was falsely diagnosed with ME / CFS. He spent a year wholeheartedly investigating alternative therapies, including yoga, massage, mindfulness and meditation, visualization, talk therapy and more. He never comes across as bitter or sorry for himself. Instead, he considered fatigue a fact of his new life and asked what he could do about it. So this ends up being quite a pleasant amble through the options, some of them more bizarre than others.
*Sight by Jessie Greengrass [skimmed]: I wanted to enjoy this, but ended up frustrated. As a set of themes (losing a parent, choosing motherhood, the ways in which medical science has learned to look into human bodies and minds), it’s appealing; as a novel, it’s off-putting. Had this been presented as a set of autobiographical essays, perhaps I would have loved it. But instead it’s in the coy autofiction mold where you know the author has pulled some observations straight from life, gussied up others, and then, in this case, thrown in a bunch of irrelevant medical material dredged up during research at the Wellcome Library.
*Brainstorm: Detective Stories From the World of Neurology by Suzanne O’Sullivan: Epilepsy affects 600,000 people in the UK and 50 million worldwide, so it’s an important condition to know about. It is fascinating to see the range of behaviors seizures can be associated with. The guesswork is in determining precisely what is going wrong in the brain, and where, as well as how medicines or surgery could address the fault. “There are still far more unknowns than knowns where the brain is concerned,” O’Sullivan writes; “The brain has a mind of its own,” she wryly adds later on. (O’Sullivan won the Prize in 2016 for It’s All in Your Head.)
I’m also currently reading and enjoying two witty medical books, The Mystery of the Exploding Teeth and Other Curiosities from the History of Medicine by Thomas Morris, and Chicken Unga Fever by Phil Whitaker, his collected New Statesman columns on being a GP.
Four additional books I have not read but think might have a chance of making the longlist:
Primate Change: How the World We Made Is Remaking Us by Vybarr Cregan-Reid
The Beautiful Cure: Harnessing Your Body’s Natural Defences by Daniel M. Davis
Because I Come from a Crazy Family: The Making of a Psychiatrist by Edward M. Hallowell
*She Has Her Mother’s Laugh: The Powers, Perversions, and Potential of Heredity by Carl Zimmer
Look out for the announcement of the longlist on Tuesday afternoon! I’ll report back, perhaps on Wednesday, with some reactions and the shadow panel’s reviewing strategy.
Have you read, or are you interested in, any of these books?
Can you think of other 2018 releases that might be eligible for the Wellcome Book Prize?
I’d never participated in Nonfiction November before because I tend to read at least 40% nonfiction anyway, but I couldn’t resist the temptation to put together some fiction and nonfiction pairings based on books I’ve read this year and last. (This week of the month-long challenge is posted by Sarah’s Book Shelves, a blog I love for its no-nonsense recommendations of what to read – and what not to read – from the recent U.S. releases.)
My primary example is two books that reveal what it’s really like to have Alzheimer’s disease. Mitchell’s, in particular, is a book that deserves more attention. When it came out earlier this year, it was billed as the first-ever “dementia memoir” (is that an oxymoron?) – except, actually, there had been one the previous year (whoops!): Memory’s Last Breath by Gerda Saunders, which I have on my Kindle and still intend to read. [See also Kate W.’s picks, which include a pair of books with a dementia theme.]
Still Alice by Lisa Genova (2007)
Genova’s writing, Jodi Picoult-like, keeps you turning the pages; I read 225+ pages in an afternoon. There’s true plotting skill to how Genova uses a close third-person perspective to track the mental decline of Harvard psychology professor Alice Howland, who has early-onset Alzheimer’s disease. “Everything she did and loved, everything she was, required language,” yet her grasp of language becomes ever more slippery even as her thought life remains largely intact. I also particularly enjoyed the descriptions of Cambridge and its weather, and family meals and rituals. There’s a certain amount of suspension of disbelief required – Would the disease really progress this quickly? Would Alice really be able to miss certain abilities and experiences once they were gone? – and ultimately I preferred the 2014 movie version, but this would be a great book to thrust at any caregiver or family member who’s had to cope with dementia in someone close to them.
Other fictional takes on dementia that I can recommend: Unforgettable: Short Stories by Paulette Bates Alden, The Only Story by Julian Barnes, Everything Under by Daisy Johnson and Turn of Mind by Alice LaPlante.
Somebody I Used to Know by Wendy Mitchell with Anna Wharton (2018)
A remarkable insider’s look at the early stages of Alzheimer’s. Mitchell took several falls while running near her Yorkshire home, but it wasn’t until she had a minor stroke in 2012 that she and her doctors started taking her health problems seriously. In July 2014 she got the dementia diagnosis that finally explained her recurring brain fog. She was 58 years old, a single mother with two grown daughters and a 20-year career in NHS administration. Having prided herself on her good memory and her efficiency at everything from work scheduling to DIY, she was distressed that she couldn’t cope with a new computer system and was unlikely to recognize the faces or voices of colleagues she’d worked with for years. Less than a year after her diagnosis, she took early retirement – a decision that she feels was forced on her by a system that wasn’t willing to make accommodations for her.
The book, put together with the help of ghostwriter Anna Wharton, gives a clear sense of progression, of past versus present, and of the workarounds Mitchell uses to outwit her disease. The details and incidents are well chosen to present the everyday challenges of dementia. For instance, baking used to be one of Mitchell’s favorite hobbies, but in an early scene she’s making a cake for a homeless shelter and forgets she’s already added sugar; she weighs in the sugar twice, and the result is inedible. By the time the book ends, not only can she not prepare herself a meal; she can’t remember to eat unless she sets an alarm and barricades herself into the room so she won’t wander off partway through.
In occasional italicized passages Mitchell addresses her past self, running through bittersweet memories of all that she used to be able to do: “It amazes me now how you did it, because you didn’t have anyone to help you. You were Mum, Dad, taxi, chef, counsellor, gardener and housekeeper, all rolled into one.” Yet it’s also amazing how much she still manages to do as an ambassador for the Alzheimer’s Society and Dementia Friends. She crisscrosses the country to give speeches, attend conferences, and advise universities; she writes a blog and has appeared on radio to promote this book. Like many retired people, she’s found she’s busier than ever, and her engagements help her to feel purposeful and like she’s giving a positive impression of early-stage dementia. No matter that she has to rely on dozens of reminders to self in the form of Post-It notes, iPad alarms and a wall of photographs.
The story lines of this and Still Alice are very similar in places – the incidents while running, the inability to keep baking, and so on. And in fact, Mitchell reviewed the film and attended its London premiere, where she met Julianne Moore. Her book is a quick and enjoyable read, and will be so valuable to people looking to understand the experience of dementia. She is such an inspiring woman. I thank her for her efforts, and wish her well. This is one of my personal favorites for the shortlist of next year’s Wellcome Book Prize for medical reads.
Additional pairings I would commend to you (all are books I have read and rated or above):
Talk before Sleep by Elizabeth Berg
Let’s Take the Long Way Home by Gail Caldwell and Truth and Beauty by Ann Patchett
- Celebrating the strength of female friendship, even in the face of life-threatening illness.
Bad News by Edward St. Aubyn
Portrait of an Addict as a Young Man by Bill Clegg
- Vivid portrayals of drug addiction.
Miss Smilla’s Feeling for Snow by Peter Høeg
This Cold Heaven by Gretel Ehrlich
- Armchair traveling in Greenland.
Sweetbitter by Stephanie Danler
Cork Dork by Bianca Bosker
- Glimpses into the high-class world of fine dining – and fine wine.
Dear Fahrenheit 451: Love and Heartbreak in the Stacks by Annie Spence is chock-full of recommendations and reading pairs. The Novel Cure is also good for this sort of thing, though it is (no surprise) overwhelmingly composed of fiction suggestions.