Nonfiction about doctors’ memorable patients and a life of chronic pain and disability; novels set in 1970s Canada and contemporary (but magically outside-of-time) Paris.
That One Patient: Doctors’ and nurses’ stories of the patients who changed their lives forever by Ellen de Visser
[Translated from the Dutch by Brent Annable]
Ellen de Visser is a science writer for the most popular newspaper in the Netherlands, De Volkskrant. Her “That One Patient” column, which began in the summer of 2017, turns interviews with medical professionals into punchy first-person narratives. A collection of them was published in Dutch in 2019. This English translation tacks on 10 additional pieces based on conversations with English and American practitioners (including Dr. Anthony Fauci, immunologist and presidential medical advisor), four of them explicitly reflecting on COVID-19.
Many of the cases are decades old yet stuck with the doctor or nurse in question because of a vital lesson learned. Overtreatment is regretted just as much as an omission of care. Again and again, these medical professionals conclude that it’s impossible to judge someone else’s decisions or quality of life. For instance, a surgeon admits he had a hard time empathizing with his obese patients undergoing stomach reduction until he followed up with a young woman who told him about how invisible she’d felt before her surgery. Premature and disabled children bring grief or joy, not always in the expected doses. A doctor resents the work his team puts into repairing a woman who jumped from an eighth-floor window – why the heroic measures for someone who wanted to die? – until he learns she was pushed. A cancer surgeon develops breast cancer and now knows exactly what her patients go through.
Some of these stories are disturbing: being stalked by a patient with a personality disorder, a man poisoning his girlfriend, a farmer predicting the very day and time of his death. A gynaecologist changes his mind about abortion after he meets a 15-year-old who gave birth at home and left her baby outside in a plastic bag to die of exposure. Other pieces are heart-warming: A paramedic delivers a premature, breech baby right in the ambulance. Staff throw a wedding at the hospital for a dying teen (as in Dear Life by Rachel Clarke). A woman diagnosed with cancer while pregnant has chemotherapy and a healthy baby – now a teenager. There’s even a tale from a vet who crowdfunded prostheses for a lively terrier.
One unique thing about the Netherlands is that euthanasia is legal and provided by doctors upon the express request of a patient suffering from a terminal illness. It is taken for granted in these essays, yet some interviewees express their discomfort with it as an option for young patients. De Visser is careful to note that, even with the situation as it is, only 4% of deaths in the Netherlands are by euthanasia, and the majority of these are end-stage cancer cases.
As with any collection of this nature, some stories are more enticing than others, but overall I found it a surprising and moving set of reflections that is alive to ethical complexities and grapples with tough issues like disability, doctor error, loneliness, pain, and sense of purpose.
Two quotes, in particular, stood out to me, one from a nurse – “We are only ever guests in other people’s lives, and that’s how we ought to behave” – and the other from Dr. Fauci’s piece. In 2014 he treated a doctor who had been volunteering in Sierra Leone after an Ebola outbreak but became ill with the virus and had to be evacuated. “He cited Hippocrates: ‘It is far more important to know what sort of person has the disease, rather than what sort of disease the person has.’ You treated me like a person, not a disease, he said. And that’s what medicine is all about.”
With thanks to 4th Estate for the proof copy for review.
A Still Life: A Memoir by Josie George
Over a year of lockdowns, many of us have become accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (My full review will appear in a forthcoming issue of the Times Literary Supplement. See also Eleanor’s thorough review.) This is top of my wish list for next year’s Barbellion Prize shortlist.
With thanks to Bloomsbury for the proof copy for review.
A Town Called Solace by Mary Lawson
I discovered Mary Lawson in 2015 with Road Ends and caught up with Crow Lake in the summer of 2019. All four of her books are set in fictional locations inspired by the villages and rural areas of Northern Ontario, where the author grew up before moving to England in 1968. So Solace, while not a real town, is true to her memory and, despite the sometimes gruff or know-it-all locals, an emotional landmark for the three central characters, all of whom are processing trauma and looking for places of comfort where they can start over.
1972. First we meet Clara, a plucky seven-year-old sitting vigil. She’s waiting for the return of two people: her sixteen-year-old sister, Rose, who ran away from home; and their next-door neighbour, Mrs. Orchard, whose cat, Moses, she’s feeding until the old lady gets back from the hospital. As days turn into weeks, though, it seems less likely that either will come home, and one day Clara sees a strange man moving boxes around in Mrs. Orchard’s house. This is Liam Kane, who’s inherited the house from a family friend. In his thirties and recently divorced, he’s taking a break in this tiny town, never imagining that he might find a new life. The third protagonist, and only first-person narrator, is Elizabeth, who lies in a hospital bed with heart trouble and voices her memories as a monologue to her late husband.
As we cycle through these three characters’ perspectives in alternating chapters, we gradually come to understand the connections between them. There are satisfying parallels in that, on multiple occasions but in slightly different ways, a child attaches to an older person or an adult stands in as a guardian for a neglected child. All of Lawson’s creations, even the secondary figures, are dealing with distressing memories or a loss of some kind, the details of which might only emerge much later on. Solace offers myriad opportunities for recovery, whether kitty playtime at Mrs. Orchard’s or diner food and homemade ice cream.
Like Lawson’s other works, this is a slow burner featuring troubled families. Her characters, often full of regret and sorrow, take a shadowy past as a prompt to reset their lives. They’re charming in spite of their flaws. I recalled that Crow Lake also looks back to the climactic happenings experienced by a seven-year-old girl. And like Road Ends, A Town Called Solace makes a convincing case for present decisions being influenced by historical trauma. It’s a tender and inviting story I’d recommend to readers of Wendy McGrath and Anne Tyler, with Clever Girl by Tessa Hadley and Olive, Again by Elizabeth Strout as specific readalikes. (My dilemma now is whether to read my only remaining Lawson novel, The Other Side of the Bridge, right away or save it: she’s not the most prolific author, with four books in 19 years.)
A favorite passage:
[Liam’s] life prior to coming north seemed to be taking on the quality of an old movie, one in which he’d been deeply engrossed while watching it but which now seemed trivial, unconvincing and profoundly lacking in either colour or plot. Solace had colour and plot in spades, maybe too much. In every way it was coming to seem more real than Toronto, with its endless malls and traffic jams and high-powered jobs. Though maybe, if he went back to Toronto, the same would be true in reverse. Maybe when he’d been back for a couple of months he’d find that it was Solace that seemed unreal, its unremarkable streets and stores like something from a dream, its dramatic landscape fading to nothing, like a holiday photo left in the sun.
With thanks to Chatto & Windus for the free copy for review.
The Strays of Paris by Jane Smiley
(Published in the USA in December 2020 under the title Perestroika in Paris. It’s been given a The Boy, the Mole, the Fox and the Horse treatment for its UK release.)
My summary for Bookmarks magazine: “A racehorse, Perestroika—nicknamed Paras—strays from her unlocked suburban stable one day, carrying her groom’s purse in her mouth, and ends up in Paris’s Place du Trocadéro. Here she meets Frida the dog, Sid and Nancy the mallards, and Raoul the raven. Frida, whose homeless owner died, knows about money. She takes euros from the purse to buy food from a local market, while Paras gets treats from a baker on predawn walks. Etienne, an eight-year-old orphan who lives with his ancient great-grandmother, visits the snowy park to feed the wary animals (who can talk to each other), and offers Paras a home. A sweet fable for animal lovers.”
Yes, this is a talking animal book, but the animals only talk to each other; they communicate with humans through their gestures and soulful eyes. Kindly shopkeepers work out what Frida wants to buy based on what she stares at or points to with a paw; the baker whose window Paras passes on her early morning walks intuits that the horse is hungry; Etienne, who gives a couple of the stray animals a home during a chill winter, learns to understand when Paras needs to go out to relieve herself, after piles of dung build up in the sitting room.
I liked how patiently and convincingly Smiley builds the portrait of each character – human or animal – and the overall situation of kindness and good fortune. Raoul is particularly amusing for his birdsplaining: “It is a feature of age. I have learned so many things in my life that they just force their way out of my beak,” he says. However, a crow would be much more realistic for Paris (or any city) than a raven, and, overall, this was a little twee and farfetched for my tastes. It was nice to read something a bit different from Smiley, who I haven’t tried since her Last Hundred Years Trilogy. She has a sideline in YA horse novels; this should probably have been lumped with those. (Annabel liked it a bit more.)
I was sent an unsolicited review copy by Picador/Mantle.
What recent releases can you recommend?
Today I’m featuring three more works of fiction that were released this month, as a supplement to yesterday’s review of Mrs Death Misses Death. Although the four are hugely different in setting and style, and I liked some better than others (such is the nature of reading and book reviewing), together they’re further proof – as if we needed it – that female authors are pushing the envelope. I wouldn’t be surprised to see any or all of these on the Women’s Prize longlist in March.
The Charmed Wife by Olga Grushin
What happens next for Cinderella?
Grushin’s fourth novel unpicks a classic fairy tale narrative, starting 13.5 years into a marriage when, far from being starry-eyed with love for Prince Roland, the narrator hates her philandering husband and wants him dead. As she retells the Cinderella story to her children one bedtime, it only underscores how awry her own romance has gone: “my once-happy ending has proved to be only another beginning, a prelude to a tale dimmer, grittier, far more ambiguous, and far less suitable for children”. She gathers Roland’s hair and nails and goes to a witch for a spell, but her fairy godmother shows up to interfere. The two embark on a good cop/bad cop act as the princess runs backward through her memories: one defending Roland and the other convinced he’s a scoundrel.
Part One toggles back and forth between flashbacks (in the third person and past tense) and the present-day struggle for the narrator’s soul. She comes to acknowledge her own ignorance and bad behaviour. “All I want is to be free—free of him, free of my past, free of my story. Free of myself, the way I was when I was with him.” In Part Two, as the princess tries out different methods of escape, Grushin coyly inserts allusions to other legends and nursery rhymes: a stepsister lives with her many children in a house shaped like a shoe; the witch tells a variation on the Bluebeard story; the fairy godmother lives in a Hansel and Gretel-like candy cottage; the narrator becomes a maid for 12 slovenly sisters; and so on.
The plot feels fairly aimless in this second half, and the mixture of real-world and fantasy elements is peculiar. I much preferred Grushin’s previous book, Forty Rooms (and Angela Carter’s The Bloody Chamber, one of her chief inspirations). However, her two novels share a concern with how women’s ambitions can take a backseat to their roles, and both weave folktales and dreams into a picture of everyday life. But my favourite part of The Charmed Wife was the subplot: interludes about Brie and Nibbles, the princess’s pet mice; their lives being so much shorter, they run through many generations of a dramatic saga while the narrator (whose name we do finally learn, just a few pages from the end) is stuck in place.
With thanks to Hodder & Stoughton for the free copy for review.
Outlawed by Anna North
I was a huge fan of North’s previous novel, The Life and Death of Sophie Stark, which cobbles together the story of the title character, a bisexual filmmaker, from accounts by the people who knew her best. Outlawed, an alternative history/speculative take on the traditional Western, could hardly be more different. In a subtly different version of the United States, everyone now alive in the 1890s is descended from those who survived a vicious 1830s flu epidemic. The duty to repopulate the nation has led to a cult of fertility and devotion to the Baby Jesus. From her mother, a midwife and herbalist, Ada has learned the basics of medical care, but the causes of barrenness remain a mystery and childlessness is perceived as a curse.
Ada marries at 17 and fails to get pregnant within a year. After an acquaintance miscarries, rumours start to spread about Ada being a witch. Kicked out by her mother-in-law, she takes shelter first at a convent and then with the Hole in the Wall gang. She’ll be the doctor to this band of female outlaws who weren’t cut out for motherhood and shunned marriage – including lesbians, a mixed-race woman, and their leader, the Kid, who is nonbinary. The Kid is a mentally tortured prophet with a vision of making the world safe for people like them (“we were told a lie about God and what He wants from us”), mainly by, Robin Hood-like, redistributing wealth through hold-ups and bank robberies. Ada, who longs to conduct proper research into reproductive health rather than relying on religious propaganda, falls for another gender nonconformist, Lark, and does what she can to make the Kid’s dream a reality.
Reese Witherspoon choosing this for her Hello Sunshine book club was a great chance for North’s work to get more attention. However, I felt that the ideas behind this novel were more noteworthy than the execution. The similarity to The Handmaid’s Tale is undeniable, though I liked this a bit more. I most enjoyed the medical and religious themes, and appreciated the attention to childless and otherwise unconventional women. But the setup is so condensed and the consequences of the gang’s major heist so rushed that I wondered if the novel needed another 100 pages to stretch its wings. I’ll just have to await North’s next book.
With thanks to W&N for the proof copy for review.
little scratch by Rebecca Watson
I love a circadian narrative and had heard interesting things about the experimental style used in this debut novel. I even heard Watson read a passage from it as part of the Faber Live Fiction Showcase and found it very funny and engaging. But I really should have tried an excerpt before requesting this for review; I would have seen at a glance that it wasn’t for me. I don’t have a problem with prose being formatted like poetry (Girl, Woman, Other; Stubborn Archivist; the prologue of Wendy McGrath’s Santa Rosa; parts of Mrs Death Misses Death), but here it seemed to me that it was only done to alleviate the tedium of the contents.
A young woman who, like Watson, works for a newspaper, trudges through a typical day: wake up, get ready, commute to the office, waste time and snack in between doing bits of work, get outraged about inconsequential things, think about her boyfriend (only ever referred to as “my him” – probably my biggest specific pet peeve about the book), and push down memories of a sexual assault. Thus, the only thing that really happens happened before the book even started. Her scratching, to the point of open wounds and scabs, seems like a psychosomatic symptom of unprocessed trauma. By the end, she’s getting ready to tell her boyfriend about the assault, which seems like a step in the right direction.
I might have found Watson’s approach captivating in a short story, or as brief passages studded in a longer narrative. At first it’s a fun puzzle to ponder how these mostly unpunctuated words, dotted around the pages in two to six columns, fit together – should one read down each column, or across each row, or both? – but when all the scattershot words are only there to describe a train carriage filling up or repetitive quotidian actions (sifting through e-mails, pedalling a bicycle), the style soon grates. You may have more patience with it than I did if you loved A Girl Is a Half-Formed Thing or books by Emma Glass.
A favourite passage: “got to do this thing again, the waking up thing, the day thing, the work thing, disentangling from my duvet thing, this is something, this is a thing I have to do then,” [appears all as one left-aligned paragraph]
With thanks to Faber & Faber for the free copy for review.
Tomorrow I’ll review three nonfiction works published in January, all on a medical theme.
What recent releases can you recommend?
Today I have a book of medico-philosophical musings, a triptych of novels about the resonant moments of a Canadian childhood, and a varied collection of ekphrastic poems.
Scattered Limbs: A Medical Dreambook by Iain Bamforth (2020)
A doctor based in Strasbourg, Iain Bamforth offers a commonplace book full of philosophical musings on medicine and wellness from the ancient world to today. All through December I would read just a few pages at a time as a palate cleanser between larger chunks of other books. Most of the entries are under three pages in length, with some one-sentence dictums interspersed. The point of reference is broadly European, with frequent allusions to English, French, and German literature (Charles Dickens, Marcel Proust, and Thomas Mann) and to Greek thinkers like Aristotle and Plato. The themes include memory, overtreatment, technology, and our modern wellness culture. If you’re equally interested in medicine and philosophy, this is a perfect bedside book for you; if you only gravitate towards one or the other, it’s possible that you could run low on patience for the high-brow rumination. My favourite piece was on “panicology,” and two stand-out lines are below.
“Prognostication is where writers and doctors resemble each other most.”
“A proper attitude to death can be a source of life. That is medicine’s only profundity.”
With thanks to Galileo Publishers for the free copy for review.
The Santa Rosa Trilogy by Wendy McGrath (2011–19)
I’m indulging in one last listen to our holiday music compilations as I write, before putting everything away until a hoped-for ‘Christmas in July’ with family and friends. Yesterday I devoured Broke City, the third novella in Wendy McGrath’s Santa Rosa Trilogy, in one sitting and treasured all the Christmas and pine tree references: they bind the book together but also connect it satisfyingly back to Book 1, Santa Rosa, which opened with Christine’s neighbour preparing a Christmas cake one summer. That annual ritual and its built-in waiting period take on new significance when the adult Christine’s life changes suddenly.
In this trio of linked narratives about Christine’s 1960s Edmonton childhood, totem objects and smells evoke memories that persist for decades: Pine-Sol, her parents’ cigarettes, the local meat-packing plant. Even at age seven, Christine is making synaesthetic links between colours and scents as she ponders language and imagines other lives. That her recollections – of a carnival, the neighbourhood grocery store, queasy road trips to her grandmother’s in Saskatchewan, a drive-in movie, and Christmas Eve with her father’s side of the family – so overlap with my late-1980s mental flipbook proves not that suburban Maryland and upstate New York (where I grew up and my mother’s home turf, respectively) are so similar to Alberta, but that this is the universal stuff of a later 20th-century North American childhood.
The other night, discussing The Light Years by Elizabeth Jane Howard, my book club noted how difficult it is to capture childhood in all its joy and distress. McGrath does so superbly, exploiting the dramatic irony between what Christine overhears and what she understands. Readers know her parents’ marriage is in trouble because she never sees them laughing or happy, and she hears her mother complain to her father about his drinking. We know the family is struggling because a man from the City delivers a box of Spam, standard issue to all those who are out of work over the winter. A simple mishearing (“clatteral,” “brain tuber”; thinking that an abattoir sounds “like a fancy ballroom”) can be a perfect example of the child perspective, too. Meanwhile, the pop culture references situate the story in the time period.
Towards the end of Broke City, young Christine declares, “I shall be unusual.” As we root for the girl to outrun her sadder memories and forge a good life, we hope that – like all of us – she’ll find a balance between the ordinary and the exceptional through self-knowledge. While Broke City was my favourite and could probably stand alone, it’s special to chart how moments turn into memories across the three books. I’d recommend the trilogy to readers of Tove Ditlevsen, Tessa Hadley, and Elizabeth Hay. I particularly loved the hybrid-poetry style of the Prologue to Santa Rosa (similar to what Bernardine Evaristo employs), so I would also be interested to try one of McGrath’s two poetry collections.
Some favourite passages:
“he walks at the same time everyday summer and winter
early morning when the day still makes promises” (Santa Rosa)
“Christine thought of herself as a child, with no idea of the world but all the ideas in the world. … Christine is the girl that used to live here, but the girl has disappeared. Her ghost is here, existing parallel to the person she is now. How did this happen? There must have been something she wasn’t paying attention to, something she didn’t see coming.” (Broke City)
With thanks to Wendy McGrath and Edmonton’s NeWest Press for the e-copies for review. I learned about the books from Marcie; see her appreciation of McGrath’s work at Buried in Print.
Color and Line by Carole Mertz (2021)
“Ekphrastic” was a new vocabulary word for me – or, if I’d heard it before, I needed a reminder. It refers to poetry written to describe or respond to artworks. Many of Carole Mertz’s poems, especially in the first section, attest to her love of the visual arts. This is the Ohio church organist’s first full-length collection after the 2019 chapbook Toward a Peeping Sunrise and extensive publication in literary magazines. She was inspired by art ranging in date from 1555 to 2019. “Come Share a Glass with Me,” for instance, is a prose poem that imagines the story behind a Van Gogh. I loved the line “The ewer sits expectant” in a short poem capturing The Staircase by Xavier Mellery.
One could look up all of the artworks discussed, but the descriptions here are so richly detailed that I often didn’t feel I needed to. Two paintings in a row depict sisters. A poem about Salome and the beheading of John the Baptist draws on the Bible story, but also on its many portrayals through art history. Other topics include concern for the Earth and beloved works of literature. I particularly enjoyed “The Word in Joseph’s Hand,” a Christmas hymn that can be sung to the tune of “Lo, How a Rose E’er Blooming,” and a haiku about a cardinal, “a flash of bright red / … in the garden”. Below is my favourite of the poems; it incorporates the titles of 14 books, nine of them by Anne Tyler. See if you can spot them all!
Color and Line was released by Kelsay Books on the 2nd. My thanks to Carole Mertz for the e-copy for review.
Would you be interested in reading one or more of these?
And, just for fun, put a description of or link to your favourite Bernie-in-mittens meme in the comments.