Nonfiction about doctors’ memorable patients and a life of chronic pain and disability; novels set in 1970s Canada and contemporary (but magically outside-of-time) Paris.
That One Patient: Doctors’ and nurses’ stories of the patients who changed their lives forever by Ellen de Visser
[Translated from the Dutch by Brent Annable]
Ellen de Visser is a science writer for the most popular newspaper in the Netherlands, De Volkskrant. Her “That One Patient” column, which began in the summer of 2017, turns interviews with medical professionals into punchy first-person narratives. A collection of them was published in Dutch in 2019. This English translation tacks on 10 additional pieces based on conversations with English and American practitioners (including Dr. Anthony Fauci, immunologist and presidential medical advisor), four of them explicitly reflecting on COVID-19.
Many of the cases are decades old yet stuck with the doctor or nurse in question because of a vital lesson learned. Overtreatment is regretted just as much as an omission of care. Again and again, these medical professionals conclude that it’s impossible to judge someone else’s decisions or quality of life. For instance, a surgeon admits he had a hard time empathizing with his obese patients undergoing stomach reduction until he followed up with a young woman who told him about how invisible she’d felt before her surgery. Premature and disabled children bring grief or joy, not always in the expected doses. A doctor resents the work his team puts into repairing a woman who jumped from an eighth-floor window – why the heroic measures for someone who wanted to die? – until he learns she was pushed. A cancer surgeon develops breast cancer and now knows exactly what her patients go through.
Some of these stories are disturbing: being stalked by a patient with a personality disorder, a man poisoning his girlfriend, a farmer predicting the very day and time of his death. A gynaecologist changes his mind about abortion after he meets a 15-year-old who gave birth at home and left her baby outside in a plastic bag to die of exposure. Other pieces are heart-warming: A paramedic delivers a premature, breech baby right in the ambulance. Staff throw a wedding at the hospital for a dying teen (as in Dear Life by Rachel Clarke). A woman diagnosed with cancer while pregnant has chemotherapy and a healthy baby – now a teenager. There’s even a tale from a vet who crowdfunded prostheses for a lively terrier.
One unique thing about the Netherlands is that euthanasia is legal and provided by doctors upon the express request of a patient suffering from a terminal illness. It is taken for granted in these essays, yet some interviewees express their discomfort with it as an option for young patients. De Visser is careful to note that, even with the situation as it is, only 4% of deaths in the Netherlands are by euthanasia, and the majority of these are end-stage cancer cases.
As with any collection of this nature, some stories are more enticing than others, but overall I found it a surprising and moving set of reflections that is alive to ethical complexities and grapples with tough issues like disability, doctor error, loneliness, pain, and sense of purpose.
Two quotes, in particular, stood out to me, one from a nurse – “We are only ever guests in other people’s lives, and that’s how we ought to behave” – and the other from Dr. Fauci’s piece. In 2014 he treated a doctor who had been volunteering in Sierra Leone after an Ebola outbreak but became ill with the virus and had to be evacuated. “He cited Hippocrates: ‘It is far more important to know what sort of person has the disease, rather than what sort of disease the person has.’ You treated me like a person, not a disease, he said. And that’s what medicine is all about.”
With thanks to 4th Estate for the proof copy for review.
A Still Life: A Memoir by Josie George
Over a year of lockdowns, many of us have become accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (My full review will appear in a forthcoming issue of the Times Literary Supplement. See also Eleanor’s thorough review.) This is top of my wish list for next year’s Barbellion Prize shortlist.
With thanks to Bloomsbury for the proof copy for review.
A Town Called Solace by Mary Lawson
I discovered Mary Lawson in 2015 with Road Ends and caught up with Crow Lake in the summer of 2019. All four of her books are set in fictional locations inspired by the villages and rural areas of Northern Ontario, where the author grew up before moving to England in 1968. So Solace, while not a real town, is true to her memory and, despite the sometimes gruff or know-it-all locals, an emotional landmark for the three central characters, all of whom are processing trauma and looking for places of comfort where they can start over.
1972. First we meet Clara, a plucky seven-year-old sitting vigil. She’s waiting for the return of two people: her sixteen-year-old sister, Rose, who ran away from home; and their next-door neighbour, Mrs. Orchard, whose cat, Moses, she’s feeding until the old lady gets back from the hospital. As days turn into weeks, though, it seems less likely that either will come home, and one day Clara sees a strange man moving boxes around in Mrs. Orchard’s house. This is Liam Kane, who’s inherited the house from a family friend. In his thirties and recently divorced, he’s taking a break in this tiny town, never imagining that he might find a new life. The third protagonist, and only first-person narrator, is Elizabeth, who lies in a hospital bed with heart trouble and voices her memories as a monologue to her late husband.
As we cycle through these three characters’ perspectives in alternating chapters, we gradually come to understand the connections between them. There are satisfying parallels in that, on multiple occasions but in slightly different ways, a child attaches to an older person or an adult stands in as a guardian for a neglected child. All of Lawson’s creations, even the secondary figures, are dealing with distressing memories or a loss of some kind, the details of which might only emerge much later on. Solace offers myriad opportunities for recovery, whether kitty playtime at Mrs. Orchard’s or diner food and homemade ice cream.
Like Lawson’s other works, this is a slow burner featuring troubled families. Her characters, often full of regret and sorrow, take a shadowy past as a prompt to reset their lives. They’re charming in spite of their flaws. I recalled that Crow Lake also looks back to the climactic happenings experienced by a seven-year-old girl. And like Road Ends, A Town Called Solace makes a convincing case for present decisions being influenced by historical trauma. It’s a tender and inviting story I’d recommend to readers of Wendy McGrath and Anne Tyler, with Clever Girl by Tessa Hadley and Olive, Again by Elizabeth Strout as specific readalikes. (My dilemma now is whether to read my only remaining Lawson novel, The Other Side of the Bridge, right away or save it: she’s not the most prolific author, with four books in 19 years.)
A favorite passage:
[Liam’s] life prior to coming north seemed to be taking on the quality of an old movie, one in which he’d been deeply engrossed while watching it but which now seemed trivial, unconvincing and profoundly lacking in either colour or plot. Solace had colour and plot in spades, maybe too much. In every way it was coming to seem more real than Toronto, with its endless malls and traffic jams and high-powered jobs. Though maybe, if he went back to Toronto, the same would be true in reverse. Maybe when he’d been back for a couple of months he’d find that it was Solace that seemed unreal, its unremarkable streets and stores like something from a dream, its dramatic landscape fading to nothing, like a holiday photo left in the sun.
With thanks to Chatto & Windus for the free copy for review.
The Strays of Paris by Jane Smiley
(Published in the USA in December 2020 under the title Perestroika in Paris. It’s been given a The Boy, the Mole, the Fox and the Horse treatment for its UK release.)
My summary for Bookmarks magazine: “A racehorse, Perestroika—nicknamed Paras—strays from her unlocked suburban stable one day, carrying her groom’s purse in her mouth, and ends up in Paris’s Place du Trocadéro. Here she meets Frida the dog, Sid and Nancy the mallards, and Raoul the raven. Frida, whose homeless owner died, knows about money. She takes euros from the purse to buy food from a local market, while Paras gets treats from a baker on predawn walks. Etienne, an eight-year-old orphan who lives with his ancient great-grandmother, visits the snowy park to feed the wary animals (who can talk to each other), and offers Paras a home. A sweet fable for animal lovers.”
Yes, this is a talking animal book, but the animals only talk to each other; they communicate with humans through their gestures and soulful eyes. Kindly shopkeepers work out what Frida wants to buy based on what she stares at or points to with a paw; the baker whose window Paras passes on her early morning walks intuits that the horse is hungry; Etienne, who gives a couple of the stray animals a home during a chill winter, learns to understand when Paras needs to go out to relieve herself, after piles of dung build up in the sitting room.
I liked how patiently and convincingly Smiley builds the portrait of each character – human or animal – and the overall situation of kindness and good fortune. Raoul is particularly amusing for his birdsplaining: “It is a feature of age. I have learned so many things in my life that they just force their way out of my beak,” he says. However, a crow would be much more realistic for Paris (or any city) than a raven, and, overall, this was a little twee and farfetched for my tastes. It was nice to read something a bit different from Smiley, who I haven’t tried since her Last Hundred Years Trilogy. She has a sideline in YA horse novels; this should probably have been lumped with those. (Annabel liked it a bit more.)
I was sent an unsolicited review copy by Picador/Mantle.
What recent releases can you recommend?
We got back on Monday from a packed week in Ghent and Amsterdam. Despite the chilly, showery weather and a slightly disappointing Airbnb experience in Ghent, it was a great trip overall. Our charming little B&B apartment in Broek in Waterland, a 20-minute bus ride from Amsterdam, more than made up for the somewhat lackluster accommodation in Belgium and was a perfect base for exploring the area. With our three-day, all-inclusive regional travel passes we were free to hop on as many trams and buses as we wanted.
On Saturday we crammed in lots of Amsterdam’s main attractions: the Rijksmuseum, the Begijnhof cloisters, the Botanical Gardens and the Anne Frank House, interspersed with window shopping, a rainy picnic lunch and an Indonesian takeaway dinner eaten by a canal. I also got to visit a more off-the-beaten-track attraction I’d spotted in our guide book: De Poezenboot or “The Cat Boat,” a home for strays moored on the Singel canal. Alas, the resident kitties were not as friendly as many we met on the rest of the trip, but it was still fun.
The highlight of our Amsterdam stay was the Van Gogh Museum on Sunday morning. It was crowded – everything was; though Ghent was very quiet, Amsterdam doesn’t seem to be into its off season yet, if it even has one – but we took our time and saw every single painting, many of which I’d never come across in reproductions. The galleries are organized in chronological order, so you get to trace Van Gogh’s style and state of mind over the years. Superb.
At this point we were just about overwhelmed by the big city atmosphere, so we spent much of the next day and a half in the outlying Dutch towns of Marken and Edam. Flat fields and dykes, cows, cobbled streets and bicycles everywhere – it’s what you’d expect of Holland’s countryside, apart from a surprising dearth of windmills.
- This Ghent University library – I’m presuming it held Special Collections/rare books:
- The American Book Center in Amsterdam:
What I read:
- Pnin by Vladimir Nabokov: A comic novel about a Russian professor on an American college campus. While there are indeed shades of Lucky Jim – I certainly laughed out loud at Timofey Pnin’s verbal gaffes and slapstick falls – there’s more going on here. In this episodic narrative spanning 1950–4, Pnin is a figure of fun but also of pathos: from having all his teeth out and entertaining the son his ex-wife had by another man to failing to find and keep a home of his own, he deserves the phrase Nabokov originally thought to use as a title, “My Poor Pnin”.
- Cork Dork by Bianca Bosker: Bosker gave herself a year and a half to learn everything about wine in hopes of passing the Court of Master Sommeliers exam. Along the way she worked in various New York City restaurants, joined blind tasting clubs and attended an olfactory conference. The challenge included educating her palate, absorbing tons of trivia about growers and production methods, and learning accepted standards for sommelier service. The resulting book is a delightful blend of science, memoir and encounters with people who are deadly serious about wine.
- You Should Have Left by Daniel Kehlmann: And I thought my Airbnb experience was a nightmare? This is a horror novella about a writing retreat gone bad. The narrator is a screenplay writer who’s overdue delivering the sequel to Besties. As he argues with his partner, tries to take care of his daughter and produces fragments of the screenplay, the haunted house in the mountains starts to close in on him. I’ve loved Kehlmann’s work before (especially F), but he couldn’t convince me of the narrator’s state of mind or the peril. I actually found the book unintentionally humorous.
- The Detour by Gerbrand Bakker: A Dutch translator and Emily Dickinson scholar has fled a mistake in her personal life and settled in rural Wales at the foot of Snowdon. “She had left everything behind, everything except the poems. They would have to see her through. She forgot to eat.” On her farmstead is a dwindling flock of geese and, later on, a young man surveying for a new footpath. Amidst her quiet, secret-filled days we also learn of her husband’s attempts to find her back in Amsterdam. Bakker’s writing is subtle and lovely, yet the story never quite took off for me.
- Tulip Fever by Deborah Moggach: If you liked Girl with a Pearl Earring and The Miniaturist, you may also enjoy this atmospheric, art-inspired novel set in the 1630s. (Originally from 1999, it’s recently been adapted into a film.) Sophia, married off to an old merchant, falls in love with Jan van Loos, the painter who comes to do their portrait. If Sophia and Jan are ever to be together, they’ll have to scrape together enough money to plot an elaborate escape. I thought this was rather soap opera-ish most of the way through, though I was satisfied with how things turned out in the end.
Plus other books I had on the go (lots of short works and literature in translation):
- Dangling Man by Saul Bellow
- Diary of a Bookseller by Shaun Bythell
- Madame Bovary by Gustave Flaubert
- The Unseen by Roy Jacobsen
- The Bus Driver Who Wanted to Be God and Other Stories by Etgar Keret
- Notes on a Banana: A Memoir of Food, Love and Manic Depression by David Leite
- The Fact of a Body: A Murder and a Memoir by Alexandria Marzano-Lesnevich
- Honeydew: Stories by Edith Pearlman
- A Girl Walks into a Book: What the Brontës Taught Me about Life, Love, and Women’s Work by Miranda Pennington
What have you been reading recently?
Do you find that books read ‘on location’ never quite live up to your expectations?
We’re off to continental Europe again on Monday. This isn’t a major trip like last summer’s; it’s just a one-week break to take advantage of my husband presenting a paper at a landscape ecology conference in Ghent, Belgium. Though we’ve been to Ghent before, it’s a lovely town, so in between keeping up with a normal editing workload I’ll enjoy being a flâneuse on the streets and seeing the few sights we missed last time. Afterwards we head to Amsterdam for several days; it’ll be my first time there and I’m excited to take it all in.
Coincidentally, I recently read Bernard MacLaverty’s Midwinter Break for a BookBrowse review. It’s about a retired couple, Stella and Gerry, facing up to past trauma and present incompatibility during a short vacation in Amsterdam. They visit a number of the city’s most famous tourist destinations: from the art treasures of the Rijksmuseum to a drink taken in the dubious red light district. It was fun to take a virtual tour with them. We’ll see how much of our itinerary overlaps with theirs – the Anne Frank House, certainly; maybe I should also stop by the Begijnhof since it means so much to Stella.
When possible I like to do some geographically appropriate reading, so I’ve saved up a couple of Dutch-themed novels to take along on the trip:
- The Detour by Gerbrand Bakker [published as Ten White Geese in the USA]: By a Dutch novelist, with a plot split between Amsterdam and rural Wales.
- Tulip Fever by Deborah Moggach: Set in 17th-century Amsterdam and with an art theme (there are some full-color plates of works by Dutch masters); this was recommended by Annie Spence.
I’m mostly focusing on short fiction in September – short stories, novellas, and novels that are perhaps too long to technically be called novellas but still significantly under 200 pages – so may also pack the following:
- Before She Met Me by Julian Barnes: I don’t know much about it (adultery + film?) but it’s one of just a few of his books I haven’t read yet.
- Dangling Man by Saul Bellow: I recently read The Shadow in the Garden: A Biographer’s Tale by James Atlas, about becoming a biographer of Delmore Schwartz and Saul Bellow. It’s stellar, quite possibly my book of the year, and whetted my appetite to try some Bellow. I imagine The Adventures of Augie March would be the better place to start, but I picked this up in Oxfam Books the other day.
- Pnin by Vladimir Nabokov: Lolita is the only Nabokov I’ve read thus far; I liked the sound of this comic novel set on a college campus.
I also have to decide whether to take any of the books I currently have on the go, including my Classic (Madame Bovary) and Doorstopper (The Nix) for the month. Luckily we’re going by train, so space and weight limitations aren’t really an issue, though it would probably be prudent not to pack too many print books. I’ll probably at least take the Etgar Keret short stories: they’re flash fictions perfect for reading two or three at a time in a short sitting.
At any rate, I’ll be continuing my two e-books in progress: Cork Dork by Bianca Bosker, about the crazy world of wine obsessives and would-be top sommeliers; and Honeydew, short stories by Edith Pearlman. If I get bored, my Kindle has another 330 titles to choose from. (Isn’t it amazing? – a nearly weightless library!)
We’re back late on the 18th; I’ll be scheduling a couple of posts for while we’re away.