New this year, the Barbellion Prize will be awarded annually “to an author whose work has best represented the experience of chronic illness and/or disability.” It’s named after W.N.P. Barbellion (the pen name of Bruce Frederick Cummings), the English author of The Journal of a Disappointed Man, which he started writing at 13. A self-taught naturalist, he specialized in lice when he worked for the British Museum’s department of natural history in London. He was rejected for war service in 1915 after a doctor found him to have multiple sclerosis. At that time, the diagnosis was like a death sentence; indeed, Cummings died at age 30 in 1919, though by then he had managed to produce two volumes of memoirs as well as a daughter.
Here’s some more information on the prize criteria from the website: “Eligibility for the prize is predicated on the author’s presentation of life with a long-term chronic illness or disability, whether that be in the form of blindness, MS, cystic fibrosis, dwarfism, or another comparable condition that may substantially define one’s life. Authors – such as those in a carer’s capacity – who themselves are not ill may be considered for the prize if their work is truly exceptional as an articulation of life with illness, but authors who themselves deal personally with illness or disability will take priority in any selection for the prize.”
Especially in the absence of the Wellcome Book Prize, which has been on hiatus since the announcement of the 2019 winner, I’m delighted that there is a new prize with a health slant, particularly one that will lead to greater visibility for disabled writers and their stories. From a longlist of eight, in January the Barbellion Prize judges chose a shortlist of four titles: three memoirs and a work of autofiction. The publishers kindly agreed to send me the shortlist for review. Two have arrived so far (there have been postal delays in the UK, as in many places).
I have already read one of the nominees and will do my best to review the rest before the £1000 prize is awarded on the 12th. The others are:
- Golem Girl by Riva Lehrer – An illustrated memoir by a visual artist born with spina bifida.
- The Fragments of My Father by Sam Mills – A memoir of being a carer for her father, who has paranoid schizophrenia; also includes musings on Leonard Woolf and F. Scott Fitzgerald, who cared for mentally ill wives. I’m currently reading this one.
- Kika & Me by Amit Patel – Patel was a trauma doctor and lost his sight within 36 hours due to a rare condition. He was paired with his guide dog, Kika, in 2015.
Sanatorium by Abi Palmer (2020)
Water is a source of comfort and delight for Abi, the narrator of Sanatorium (whose experiences may or may not be those of the author; always tricky to tell with autofiction). Floating is like dreaming for her – an intermediate state between the solid world where she’s in pain and the prospect of vanishing into the air. In 2017 she spends a few weeks at a sanatorium in Budapest for water therapy; when she returns to London she buys a big inflatable plastic bathtub to keep up the exercises as she tries to wean herself off of opiates.
Abi feels fragile due to a whole host of body issues, some in her past but most continuing into the present: an autoimmune connective tissue disorder, psoriatic arthritis, Crohn’s disease, and sexual assaults. Her knee is most immediately problematic, leading her to use a mobility scooter. As her health waxes and wanes, other people – unable to appreciate any internal or incremental changes – judge her by whether or not she is able to walk well.
The book is in snippets, often of just a paragraph or even one sentence, and cycles through its several strands: Abi’s time in Budapest and how she captures it in an audio diary; ongoing therapy at her London flat, custom-designed for disabled tenants (except “I was the only cripple who could afford it”); the haunted house she grew up in in Surrey; and notes on plus prayers to St. Teresa of Ávila, accompanied by diagrams of a female figure in yoga poses.
Locations are given in small letters in the top corner of the page, apart from for the more dreamlike segments that can’t be pinned down to any one place. For instance, I was reminded of a George Saunders story by the surreal interlude in which Abi imagines Van Gogh’s Starry Night reproduced in the hair on a detached pair of legs mounted on a wall as a work of art.
The different formats and short chunks of prose generally keep the voice from becoming monotonous, though I did wonder if occasional use of the third person (and some more second person) could have been effective, too. Far from a straightforward memoir, the book incorporates passages that are closer to fantasy and poetry, and the visual elements and fertile imagery attest to Palmer’s background as a mixed-media artist.
Sanatorium is a fascinating work – matter-of-fact, playful and sensual – that vividly conveys the reality of life with a chronic illness. It was already on my wish list, but I’m so glad that this shortlisting gave me a chance to read it. Though I haven’t read the other nominees yet, the passages below are proof that this would be a deserving Barbellion Prize winner.
You go through life as a chronically ill person with so many different people who have so many different opinions about how your treatment should be. They’re not always useful or right. You have to build your own narrative and your own sense of what feels appropriate. You have to learn to trust your body to tell you what’s working. But that’s hard too, when your body keeps changing the rules.
I am one of the more privileged ones and still I’m screaming. God, it would be so nice just to dissolve into nothing and wash up onto a lonely beach.
I wonder if what I’ve learned about chronic illness, more than anything, is that it’s a constant cycle. You fall apart, then you try your best to rebuild again. I wonder what would happen if I stopped trying.
Readalikes I have also reviewed:
- Heal Me by Julia Buckley
- Bodies of Water by V. H. Leslie
- My Year of Rest and Relaxation by Ottessa Moshfegh
With thanks to Penned in the Margins for the free copy for review.
The Rathbones Folio Prize is unique in that nominations come from The Folio Academy, an international group of writers and critics, and any book written in English is eligible, so there’s nonfiction and poetry as well as fiction on this year’s varied shortlist of eight titles:
- Can You Tolerate This? by Ashleigh Young [essays]
- The Crossway by Guy Stagg [travel memoir]
- Mary Ann Sate, Imbecile by Alice Jolly [historical fiction]
- Milkman by Anna Burns [literary fiction]
- Ordinary People by Diana Evans [literary fiction]
- The Perseverance by Raymond Antrobus [poetry]
- There There by Tommy Orange [literary fiction]
- West by Carys Davies [historical fiction]
I’m helping to kick off the Prize’s social media tour by championing the debut poetry collection The Perseverance by Raymond Antrobus (winner of the 2018 Geoffrey Dearmer Award from the Poetry Society), issued by the London publisher Penned in the Margins last year. Antrobus is a British-Jamaican poet with an MA in Spoken Word Education who has held multiple residencies in London schools and works as a freelance teacher and poet. His poems dwell on the uneasiness of bearing a hybrid identity – he’s biracial and deaf but functional in the hearing world – and reflect on the loss of his father and the intricacies of Deaf history.
I was previously unaware of the difference between “deaf” and “Deaf,” but it’s explained in the book’s endnotes: Deaf refers to those who are born deaf and learn sign before any spoken language, so they tend to consider deafness part of their cultural identity; deaf means that the deafness was acquired later in life and is a medical consequence rather than a defining trait.
The opening poem, “Echo,” recalls how Antrobus’s childhood diagnosis came as a surprise because hearing problems didn’t run in the family.
I sat in saintly silence
during my grandfather’s sermons when he preached
The Good News I only heard
as Babylon’s babbling echoes.
Nowadays he uses hearing aids and lip reading, but still frets about how much he might be missing, as expressed in the prose poem “I Move through London like a Hotep” (his mishearing when a friend said, “I’m used to London life with no sales tax”). But if he had the choice, would Antrobus reverse his deafness? As he asks himself in one stanza of “Echo,” “Is paradise / a world where / I hear everything?”
Learning how to live between two worlds is a major theme of the collection, applying not just to the Deaf and hearing communities but also to the balancing act of a Black British identity. I first encountered Antrobus through the recent Black British poetry anthology Filigree (I assess it as part of a review essay in an upcoming issue of Wasafiri literary magazine), which reprints his poem “My Mother Remembers.” A major thread in that volume is art as a means of coming to terms with racism and constructing an individual as well as a group identity. The ghazal “Jamaican British” is the clearest articulation of that fight for selfhood, reinforced by later poems on being called a foreigner and harassment by security staff at Miami airport.
The title comes from the name of the pub where Antrobus’s father drank while his son waited outside. The title poem is an elegant sestina in which “perseverance” is the end word of one line per stanza. The relationship with his father is a connecting thread in the book, culminating in the several tender poems that close the book. Here he remembers caring for his father, who had dementia, in the final two years of his life, and devotes a final pantoum to the childhood joy of reading aloud with him.
A number of poems broaden the perspective beyond the personal to give a picture of early Deaf history. Several mention Alexander Graham Bell, whose wife and mother were both deaf, while in one the ghost of Laura Bridgeman (the subject of Kimberly Elkins’s excellent novel What Is Visible) warns Helen Keller about the unwanted fame that comes with being a poster child for disability. The poet advocates a complete erasure of Ted Hughes’s offensive “Deaf School” (sample lines: “Their faces were alert and simple / Like faces of little animals”; somewhat ironically, Antrobus went on to win the Ted Hughes Award last month!) and bases the multi-part “Samantha” on interviews with a Deaf Jamaican woman who moved to England in the 1980s. The text also includes a few sign language illustrations, including numbers that mark off section divisions.
The Perseverance is an issues book that doesn’t resort to polemic; a bereavement memoir that never turns overly sentimental; and a bold statement of identity that doesn’t ignore complexities. Its mixture of classical forms and free verse, the historical and the personal, makes it ideal for those relatively new to poetry, while those who enjoy the sorts of poets he quotes and tips the hat to (like Kei Miller, Danez Smith and Derek Walcott) will find a resonant postcolonial perspective.
A favorite passage from “Echo” (I’m a sucker for alliteration):
the ravelled knot of tongues,
of blaring birds, consonant crumbs
of dull doorbells, sounds swamped
in my misty hearing aid tubes.
The winner of the Rathbones Folio Prize will be announced on May 20th.
My thanks to the publisher for the free copy for review.