At about this time of year I try to read a handful of books with “love” in the title. I’m currently reading Iris Murdoch’s The Sacred and Profane Love Machine for the #IMReadalong, and I have one more “love” title towards the end of this post, but it turns out that my focus this year has been more on the kinds of love that tend to get ignored around Valentine’s Day – familial love for one’s ageing parents and grandparents.
Be With: Letters to a Carer by Mike Barnes (2018)
Mike Barnes, a Toronto poet and novelist, has been a primary caregiver for his mother, Mary, in the nine years since her Alzheimer’s diagnosis disease. She grew up on a Saskatchewan farm and is now in her nineties; he’s in his sixties. A bipolar sufferer, Barnes has spent his own fair share of time in hospitals and on disability. He’s moved Mary between care homes four times as her condition has deteriorated. Though he laments her gradual loss of words and awareness of her family, he can still discern instances of her bravery and the beauty of life.
This book of fragments – memories and advice delivered via short letters – was written in between demanding caregiving tasks and is meant to be read in those same gaps. Dementia is one situation in which you should definitely throw money at a problem, Barnes counsels, to secure the best care you can, even round-the-clock nursing help. However, as the title suggests, nothing outweighs simply being there. Your presence, not chiefly to make decisions, but just to sit, listen and place a soothing hand on a forehead, is the greatest gift.
There are many excellent, pithy quotations in this book. Here are a few of my favorites:
“a retreat under fire”
“a passage of exquisite vulnerability”
By your loved one’s side is “Not where things are easy, or satisfactorily achieved, or achievable, or even necessarily pleasant. But where you ought to be, have to be, and are. It brings a peace.”
The goal is “Erring humanely”.
I can imagine this being an invaluable companion for caregivers, to be tucked into a pocket or purse and pulled out for a few moments of relief. On the theme of a parent’s dementia, I’d also recommend Paulette Bates Alden’s book of linked short stories, Unforgettable.
Out now from Myriad Editions. My thanks for the free copy for review.
The Smallest Things: On the enduring power of family: A memoir of tiny dramas by Nick Duerden (2019)
Journalist Nick Duerden always appreciated how his maternal grandparents, Nonna and Nonno, seemed so ordinary and unchanging. Every trip to see them in the Milan suburbs was, comfortingly, the same. He’d muddle along with his meager Italian, and they’d look after him in their usual clucking way. It was only as he reached middle age and realized that his grandparents were undeniably very old – his grandmother is 99 and in a care home at the time of writing – that he realized how lucky he was to still have them in his life and how unlikely it was that they’d be around for much longer.
Duerden compares his small immediate family with his Spanish wife’s large extended one, and his uptight paternal grandparents with the more effusive set. There are also some family secrets still to uncover. I made the mistake of reading a previous nonfiction book of Duerden’s just the week before this one: Get Well Soon (2018), which has a long chapter about his grandparents that told me all I needed to know about them. That’s probably the main reason why this short book struck me as lightweight, though I did ultimately find it a touching tribute, especially to his grandmother. It could make a good Mother’s Day present.
Out today from Elliott & Thompson. My thanks for a proof copy for review.
Love Story by Erich Segal (1970)
This offbeat novella was a bestseller and a successful film. You surely know its most famous line: “Love means not ever having to say you’re sorry.” Oliver Barrett IV is a golden boy: his banker father and previous generations of the eminent Barrett family funded various buildings at Harvard, where Oliver is a hockey player in the late 1960s. Jenny Cavilleri, on the other hand, comes from a single-parent Italian-American family in New Jersey. She’s made it to Radcliffe as a harpsichordist, but her father is just a baker; she’d never be considered good enough for the likes of Oliver. But they meet at the Radcliffe library and, sure enough, fall for each other. She calls him “Preppie”; he calls her a bitch. They’re only partially joking. It may be true love against the odds, but it has an expiration date, as we know from the first line: “What can you say about a twenty-five-year old girl who died?”
I wanted to like this more. There’s a pleasing lightness to the style, but because the whole book is from Oliver’s perspective, I felt like Jenny got short shrift: she’s the wise-cracking gal from the block, and then she’s the innocent victim in the hospital bed. Because this is only about 120 pages, there’s not much space in between for her character to be developed. I was somewhat appalled to learn about a 1977 sequel in which Oliver finds a new love.
(Segal’s daughter Francesca is also a novelist (The Innocents).)
Have you read any “love” books, or books about love of any kind, lately?
On Tuesday the longlist for the 2019 Wellcome Book Prize will be announced. For the third year in a row I’m running a shadow panel, and it’s composed of the same four wonderful book bloggers who joined me last year: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall.
This year we’re going to do things slightly differently: we plan to split up the longlist, taking two to three titles each, so that between us we will have read them all and can announce our own preferred shortlist before the official shortlist is announced in March. At that point we’ll catch up by (re)reading the six shortlisted books, each reviewing the ones we haven’t already. Essentially, I’m adding an extra stage of shadow panel judging, simply because I can. I hope it will be fun – and also less onerous, in that we should get a leg-up on the shortlist and not have to read all six books in March‒April, which has proved to be a challenge in the past.
My Wellcome Prize hopefuls are all the fiction or nonfiction titles I’ve read on a medical theme that were published in the UK in calendar year 2018. I have put asterisks beside the 12 books in this post that I predict for the longlist. (The combination of wishful thinking and likelihood means that these are not exclusively my personal favorites.)
Below is a list of the books I’ve already featured on the blog in some way, with links to my coverage and a few-word summary of their relevance.
Gross Anatomy by Mara Altman: Female body woes
*Beneath the Skin: Great Writers on the Body: Essays on organs
*All that Remains by Sue Black: Forensic anthropology
Everything Happens for a Reason by Kate Bowler: Living with advanced cancer
Heal Me by Julia Buckley: Tackling chronic pain
*The Unmapped Mind by Christian Donlan: Adjusting to life with MS
From Here to Eternity by Caitlin Doughty: Funerary rites around the world
This Really Isn’t About You by Jean Hannah Edelstein: A genetic disease in the family
Natural Causes by Barbara Ehrenreich: Questioning the wellness culture
On Smaller Dogs and Larger Life Questions by Kate Figes: Pondering breast cancer
Shapeshifters by Gavin Francis: Instances of bodily change
The Reading Cure by Laura Freeman: Healing from an eating disorder
Nine Pints by Rose George: The story of blood
Waiting for the Last Bus by Richard Holloway: Ageing and death
*Heart: A History by Sandeep Jauhar: Heart disease and treatments
Sick by Porochista Khakpour: Chronic Lyme disease
Human Errors by Nathan Lents: Flawed bodies; evolutionary adaptations
Skybound by Rebecca Loncraine: Breast cancer; flying lessons
Amateur by Thomas Page McBee: Memoir of F2M transformation
*Face to Face by Jim McCaul: Tales of facial surgery
*Somebody I Used to Know by Wendy Mitchell: A firsthand account of early Alzheimer’s
*That Was When People Started to Worry by Nancy Tucker: Mental illness from the inside
*The Language of Kindness by Christie Watson: Nursing as a vocation
Little by Edward Carey: Anatomical models in wax (thanks to Clare for the reminder!)
Orchid & the Wasp by Caoilinn Hughes: Non-epileptic seizures
*The Winter Soldier by Daniel Mason: Neurology, surgery during WWI
The Way of All Flesh by Ambrose Parry: Medicine in 1840s Edinburgh
Other eligible books that I have read but not happened to mention on the blog:
In Shock by Rana Awdish: The doctor became the patient when Awdish, seven months pregnant, was rushed into emergency surgery with excruciating pain due to severe hemorrhaging into the space around her liver, later explained by a ruptured tumor. Having experienced brusque, cursory treatment, even from colleagues at her Detroit-area hospital, she was convinced that doctors needed to do better. This memoir is a gripping story of her own medical journey and a fervent plea for compassion from medical professionals.
Doctor by Andrew Bomback: Part of the Bloomsbury Object Lessons series, this is a wide-ranging look at what it’s like to be a doctor. Bomback is a kidney specialist; his wife is also a doctor, and his father, fast approaching retirement, is the kind of old-fashioned, reassuring pediatrician who knows everything. Even the author’s young daughter likes playing with a stethoscope and deciding what’s wrong with her dolls. In a sense, then, Bomback uses fragments of family memoir to compare the past, present and likely future of medicine.
A Moment of Grace by Patrick Dillon [skimmed]: A touching short memoir of the last year of his wife Nicola Thorold’s life, in which she battled acute myeloid leukemia. Dillon doesn’t shy away from the pain and difficulties, but is also able to summon up some gratitude.
Get Well Soon: Adventures in Alternative Healthcare by Nick Duerden: British journalist Nick Duerden had severe post-viral fatigue after a run-in with possible avian flu in 2009 and was falsely diagnosed with ME / CFS. He spent a year wholeheartedly investigating alternative therapies, including yoga, massage, mindfulness and meditation, visualization, talk therapy and more. He never comes across as bitter or sorry for himself. Instead, he considered fatigue a fact of his new life and asked what he could do about it. So this ends up being quite a pleasant amble through the options, some of them more bizarre than others.
*Sight by Jessie Greengrass [skimmed]: I wanted to enjoy this, but ended up frustrated. As a set of themes (losing a parent, choosing motherhood, the ways in which medical science has learned to look into human bodies and minds), it’s appealing; as a novel, it’s off-putting. Had this been presented as a set of autobiographical essays, perhaps I would have loved it. But instead it’s in the coy autofiction mold where you know the author has pulled some observations straight from life, gussied up others, and then, in this case, thrown in a bunch of irrelevant medical material dredged up during research at the Wellcome Library.
*Brainstorm: Detective Stories From the World of Neurology by Suzanne O’Sullivan: Epilepsy affects 600,000 people in the UK and 50 million worldwide, so it’s an important condition to know about. It is fascinating to see the range of behaviors seizures can be associated with. The guesswork is in determining precisely what is going wrong in the brain, and where, as well as how medicines or surgery could address the fault. “There are still far more unknowns than knowns where the brain is concerned,” O’Sullivan writes; “The brain has a mind of its own,” she wryly adds later on. (O’Sullivan won the Prize in 2016 for It’s All in Your Head.)
I’m also currently reading and enjoying two witty medical books, The Mystery of the Exploding Teeth and Other Curiosities from the History of Medicine by Thomas Morris, and Chicken Unga Fever by Phil Whitaker, his collected New Statesman columns on being a GP.
Four additional books I have not read but think might have a chance of making the longlist:
Primate Change: How the World We Made Is Remaking Us by Vybarr Cregan-Reid
The Beautiful Cure: Harnessing Your Body’s Natural Defences by Daniel M. Davis
Because I Come from a Crazy Family: The Making of a Psychiatrist by Edward M. Hallowell
*She Has Her Mother’s Laugh: The Powers, Perversions, and Potential of Heredity by Carl Zimmer
Look out for the announcement of the longlist on Tuesday afternoon! I’ll report back, perhaps on Wednesday, with some reactions and the shadow panel’s reviewing strategy.