Tag Archives: myalgic encephalomyelitis

#NonFicNov Catch-Up 2: Abbs, Hattrick, Powles, DAD Anthology, Santhouse

I’m sneaking in with five more review books on the final day of Nonfiction November, after a first catch-up earlier on in the month. Today I have a sprightly travel book based on the journeys of female writers and artists, a probing account of repeated chronic illness in the family, an anthology of essays showcasing the breadth of fatherhood experiences, a lyrical memoir-in-essays exploring racial identity, and a psychiatrist’s case studies of how the mind influences what the body feels. My apologies to the publishers for the brief responses.

 

Windswept: Walking in the footsteps of remarkable women by Annabel Abbs

After a fall landed her in hospital with a cracked skull, Abbs couldn’t wait to roam again and vowed all her future holidays would be walking ones. What time she had for pleasure reading while raising children was devoted to travel books; looking at her stacks, she realized they were all by men. Her challenge to self was to find the women and recreate their journeys. I was drawn to this because I’d enjoyed Abbs’s novel about Frieda Lawrence and knew she was the subject of the first chapter here. During research for Frieda, Abbs omitted the Lawrences’ six-week honeymoon in the German mountains, so now she makes it a family cycling holiday, imitating Frieda’s experience by walking in a skirt and sunbathing nude. Other chapters follow Welsh painter Gwen John in Bordeaux, Nan Shepherd in Scotland, Georgia O’Keeffe in the American Southwest, and so on. Questions of risk and compulsion recur as Abbs asks how these women sought to achieve liberation. The interplay between biographical information and travel narrative is carefully controlled, but somehow this never quite came together for me in the way that, for instance, Sara Wheeler’s O My America! did.

(Two Roads, June 2021.) With thanks to the publisher for the free copy for review.

 

Ill Feelings by Alice Hattrick

“My mother and I have symptoms of illness without any known cause,” Hattrick writes. When they showed signs of the ME/CFS their mother had suffered from since 1995, it was assumed there was imitation going on – that a “shared hysterical language” was fuelling their continued infirmity. It didn’t help that both looked well, so could pass as normal despite debilitating fatigue. Into their own family’s story, Hattrick weaves the lives and writings of chronically ill women such as Elizabeth Barrett Browning (see my review of Fiona Sampson’s biography, Two-Way Mirror), Alice James and Virginia Woolf. All these figures knew that what Hattrick calls “crip time” is different: more elastic; about survival rather than achievement.

The book searches desultorily for answers – could this have something to do with Giardiasis at age two? – but ultimately rests in mystery. ME/CFS patients rarely experience magical recovery, instead exhibiting repeated cycles of illness and being ‘well enough’. Hattrick also briefly considers long Covid as another form of postviral syndrome. My mother had fibromyalgia for years, so I’m always interested to read more about related illnesses. Earlier in the year I read Tracie White’s Waiting for Superman, and this also reminded me of Suzanne O’Sullivan’s books, though it’s literary and discursive rather than scientific.

(Fitzcarraldo Editions, August 2021.) With thanks to the publisher for the free copy for review.

 

Small Bodies of Water by Nina Mingya Powles

I loved Powles’s bite-size food memoir, Tiny Moons. She won the inaugural Nan Shepherd Prize for underrepresented voices in nature writing for this work in progress, and I was eager to read more of her autobiographical essays. Watery metaphors are appropriate for a poet’s fluid narrative about moving between countries and identities. Powles grew up in a mixed-race household in New Zealand with a Malaysian Chinese mother and a white father, and now lives in London after time spent in Shanghai. Water has been her element ever since she learned to swim in a pool in Borneo, where her grandfather was a scholar of freshwater fish.

The book travels between hemispheres, seasons and languages, and once again food is a major point of reference. “I am the best at being alone when cooking and eating a soft-boiled egg,” she writes. Many of the essays are in short fragments – dated, numbered or titled. A foodstuff or water body (like the ponds at Hampstead Heath) might serve as a link: A kōwhai tree, on which the unofficial national flower of New Zealand grows, when encountered in London, collapses the miles between one home and another. Looking back months later (given I failed to take notes), this evades my grasp; it’s subtle, slippery but admirable.

(Canongate, August 2021.) With thanks to the publisher for the free copy for review.

 

DAD: Untold Stories of Fatherhood, Love, Mental Health and Masculinity, edited by Elliott Rae

Music.Football.Fatherhood, a British equivalent of Mumsnet, brings dads together in conversation. These 20 essays by ordinary fathers run the gamut of parenting experiences: postnatal depression, divorce, single parenthood, a child with autism, and much more. We’re used to childbirth being talked about by women, but rarely by their partners, especially things like miscarriage, stillbirth and trauma. I’ve already written on Michael Johnson-Ellis’s essay on surrogacy; I also found particularly insightful R.P. Falconer’s piece on trying to be the best father he can be despite not having a particularly good role model in his own absent father, and Sam Draper’s on breaking the mould as a stay-at-home dad (“the bar for expectations regarding fathers is low, very low”) – I never understood how parental leave works in the UK before reading this. The book is full of genial and relatable stories and half or more of its authors are non-white. It could do with more rigorous editing to get the grammar and writing style up to the standard of traditionally published work, but even for someone like me who is not in the target audience it was an enjoyable set of everyday voices.

(Music.Football.Fatherhood, June 2021.) With thanks for the free copy for review. 

 

Head First: A Psychiatrist’s Stories of Mind and Body by Alastair Santhouse

Santhouse is a consultant psychiatrist at London’s Guy’s and Maudsley hospitals. This book was an interesting follow-up to Ill Feelings (above) in that the author draws an important distinction between illness as a subjective experience and disease as an objective medical reality. Like Abdul-Ghaaliq Lalkhen does in Pain, Santhouse adopts a biopsychosocial approach: “to focus solely on the scientific and neglect he social aspects of illness is a mistake that we continue to make,” he says. Using a patchwork of anonymous case studies, he delves into topics like depression, altruism, obesity, self-diagnosis, medical mysteries, evidence-based medicine, and preparation for death. A discussion of CFS again echoes the Hattrick. He brings the picture up to date with a final chapter on Covid-19. I’ve read so many doctors’ memoirs that this one didn’t stand out for me at all, but those less familiar with the subject matter could find it a good introduction to some ins and outs of mind–body medicine.

(Atlantic Books, July 2021.) With thanks to the publicist for the free copy for review.

 

Would you be interested in reading one or more of these?

Review Book Catch-Up: Ante, Evans, Foster and White

Today I have a book of poems about the Filipinx experience in the UK, a collection of short stories reflecting on racial injustice, a monograph on a bird that spells summer for many of us, and a biographical investigation into a little-understood medical condition.

 

Antiemetic for Homesickness by Romalyn Ante

I was drawn to this debut collection by the terrific title and cover, but also by the accolades it received: it was on the Dylan Thomas Prize longlist and the Jhalak Prize shortlist. I hope we’ll see it on the Sunday Times Young Writer of the Year Award shortlist, too. Ante grew up in the Philippines but at age 16 joined her mother in the UK, where she had moved years before to work as a nurse in the NHS. She has since followed in her mother’s footsteps as a nurse – indeed, overseas Filipinx workers (Jamaicans, too) are a mainstay of the NHS.

Ante remembers the years when her mother was absent but promised to send for the rest of the family soon: “You said all I needed to do was to sleep and before I knew it, / you’d be back. But I woke to the rice that needed rinsing, / my siblings’ school uniforms that needed ironing.” The medical profession as a family legacy and noble calling is a strong element of these poems, especially in “Invisible Women,” an ode to the “goddesses of caring and tending” who walk the halls of any hospital. Hard work is a matter of survival, and family – whether physically present or not – bolsters weary souls. A series of short, untitled poems are presented as tape recordings made for her mother.

Food is inextricably entwined with memory (reminding me of Nina Mingya Powles’s approach in Tiny Moons) and provides some of the standout metaphors, especially in “Patis” and “Ode to a Pot Noodle.” Ante uses a lot of alliteration and adapts various forms. I especially liked “Tagay!”, a traditional drinking song, and “Mateo,” printed in the shape of a pound sign. The nuanced look at the immigrant experience reminded me of Jenny Xie’s Eye Level. Movement entails losses as well as benefits. The focus on the Filipinx experience also made me think of America Is Not the Heart. My favourite single poem was “The Making of a Smuggler,” which opens “Wherever we travel, we carry / the whole country with us – // our rice terraces are folded garments, / we have pillars of trees, a rainforest // on a hairbrush.”

Favourite lines:

“Gone are the nights he steals / the moon with a mango picker / and swaps it for her pocket mirror”

“The yellow admission papers in my hands escaped / flustering at my face into a flight of orioles.”

“I am halved in order to be whole – / I rebuild by leaving / everything I love.”

With thanks to Chatto & Windus for the free copy for review.

 

The Office of Historical Corrections by Danielle Evans

To boil these six stories and a novella down to the topic of race in America risks painting them as solemn or strident – more concerned with meaning than with art – when the truth is that they are playful and propulsive even though they keep cycling back to bereavement and injustice. Several of the protagonists are young Black women coming to terms with a loss.

In “Happily Ever After,” Lyssa works in the gift shop of a Titanic replica and is cast as an extra in a pop star’s music video. Mythical sea monsters are contrasted with the real dangers of her life, like cancer and racism. “Anything Could Disappear” was a favourite of mine, though it begins with that unlikely scenario of a single woman acquiring a baby as if by magic. What starts off as a burden becomes a bond she can’t bear to let go. A family is determined to clear the name of their falsely imprisoned ancestor in “Alcatraz.” In “Richard of York Gave Battle in Vain” (a mnemonic for the colours of the rainbow), photojournalist Rena is wary about attending the wedding of a friend she met when their plane was detained in Africa some years ago. The only wedding she’s been in is her sister’s, which ended badly.

Mistakes and deceit seem to follow these characters. In the title novella that closes the book, Cassie and her colleagues combat fake news, going around putting correction labels on plaques that whitewash history. When she and her former colleague meet up in Wisconsin to find the truth behind a complex correction case, a clash with a white supremacist group quickly turns pedantry into a matter of life and death. The story I’d heard the most about beforehand was “Boys Go to Jupiter,” about a college girl who dons a Confederate flag bikini, not caring what message it sends to others in her dorm. It turns out she has history with a Black family, but has chosen to airbrush this experience out of her life.

There was only one story I didn’t care for, “Why Won’t Women Just Say What They Want,” about a celebrity who turns apologizing into performance art. Overall, this is a very strong collection I would recommend to readers of Brit Bennett and Raven Leilani, with some stories also reminding me of recent work by Curtis Sittenfeld and Mary South. I’ll be sure to seek out Evans’s previous book (also short stories), too.

With thanks to Picador for the proof copy for review.

 

The Screaming Sky by Charles Foster

The other week I was volunteering at our local community garden and looked up to see a dozen common swifts wheeling over the Kennet & Avon canal and picking off insects among the treetops. I hope this fellow Foster (for whom my husband was once confused on a nature conference attendee list) would be proud of me for pausing to gaze at the birds for a while. My impression of the author is as a misanthropic eccentric. A Renaissance man as well versed in law and theology as he is in natural history, he’s obsessed with swifts and ashamed of his own species: for looking down at their feet when they could be watching the skies; for the “pathological tidiness” that leaves swifts and so many other creatures no place to live.

The obsession began when he was eight years old and someone brought him a dead swift fledgling for his taxidermy hobby. Ever since, he’s dated the summer by their arrival. “It is always summer for them,” though, as his opening line has it. This monograph is structured chronologically. Much like Tim Dee does in Greenery, Foster follows the birds for a year: from their winter territory in Africa to the edges of Europe in spring and then to his very own Oxford street in high summer. When they leave, he’s bereft and ready to book a flight back to Africa.

Along the way, Foster delivers heaps of information: the fossil evidence of swifts, how they know where to migrate (we have various theories but don’t really know), their nesting habits and lifespan, and the typical fates of those individuals that don’t survive. But, thumbing his nose at his “ex-friend” (a closed-minded biologist he repeatedly, and delightfully, rails against), he refuses to stick to a just-the-facts approach. Acknowledging the risks of anthropomorphizing, he speaks of swifts as symbols of aspiration, of life lived with intensity. He believes that we can understand animal emotions analogously through our own, so that, inappropriate as such words might seem, we can talk about what birds hope and plan for. He scorns reductive ecosystem services lingo that defines creatures by what we get out of them.

Also like Dee, Foster quotes frequently from poetry. His prose is full of sharp turns of phrase and moments of whimsy and made me eager to try more of his work (I know the most about but have not yet read Being a Beast).

Swifts know the roar of lions better than the roar of the M25, the piping of hornbills better than the Nunc Dimittis of parish Evensong … Are memories of our eaves spiralling high above the Gulf of Guinea? … They don’t seem to prevaricate. One moment they’re there, the next they’re off, diving straight into the journey. It’s the way we should run into cold water.

As I’ve found with a number of Little Toller releases now (On Silbury Hill, Snow, Landfill), knowledge meets passion to create a book that could make an aficionado of the most casual of readers. Towards the close I was also reminded of Richard Smyth’s An Indifference of Birds: “When Homo sapiens has gone there will be lots of ideal swift holes in the decaying buildings we’ll leave behind.” It’s comforting to think of natural cycles continuing after we’re gone … but let’s start making the space for them now. Jonathan Pomroy’s black-and-white illustrations of swift behaviour only add to this short book’s charms.

With thanks to Little Toller Books for the free copy for review.

 

Waiting for Superman: One Family’s Struggle to Survive – and Cure – Chronic Fatigue Syndrome by Tracie White

Like Suzanne O’Sullivan’s books (most recently, The Sleeping Beauties), this is presented as an investigation into a medical mystery. White, a Stanford Medicine journalist, focuses on one family that has been indelibly changed by chronic fatigue syndrome – now linked with myalgic encephalomyelitis and termed ME/CFS for short. Whitney Dafoe was a world traveller and promising photographer before, in 2010, a diagnosis of ME/CFS explained his exhaustion and gastrointestinal problems. By the time White first met the family in 2016, the thirtysomething was bedbound in his parents’ home with a feeding tube, only able to communicate via gestures and rearranging Scrabble tiles. He couldn’t bear loud noises, or to be touched. At times he was nearly comatose.

Whitney’s father, Ron Davis, is a Stanford geneticist whose research has contributed to the Human Genome Project. He has devoted himself to studying ME/CFS, which affects 20 million people worldwide yet receives little research funding; he calls it “the last major disease we know nothing about.” Testing his son’s blood, he found a problem with the citric acid cycle that produces ATP, essential fuel for the body’s cells – proof that there was a physiological reason for Whitney’s condition. Frustratingly, though, a Stanford colleague who examined Whitney prescribed a psychological intervention. This is in line with the current standard of care for ME/CFS: a graded exercise regime (nigh on impossible for someone who can’t get out of bed) and cognitive behavioural therapy.

White delves into Whitney’s past, looking for clues to what could have triggered his illness (having mono in high school? a parasite he picked up in India?). She also goes back to the mid-1980s to consider the Lake Tahoe outbreak of ME/CFS, whose victims “looked too healthy to be sick and were repeatedly disbelieved.” The media called it “yuppie flu,” downplaying the extreme fatigue involved. White also meets Laura Hillenbrand, author of Seabiscuit, who suffers from ME/CFS and managed to write her bestselling books from bed. Like Whitney, she only has a certain allotment of energy and mustn’t use it up too fast.

  • A neat connection: Stephanie Land, author of Maid, was Whitney’s ex-girlfriend when he was 19 and living in Alaska; she wrote a Longreads article about their relationship.
  • The title is from a Flaming Lips lyric and expresses Whitney’s trust in his dad’s ability to cure him; the U.S. title is The Puzzle Solver and the working title was The Invisible Patient.

With thanks to Atlantic Books for the free copy for review.

 

Would you be interested in reading one or more of these?