Barbellion Prize Shortlist: Book of Hours by Letty McHugh
The Barbellion Prize shortlist, announced yesterday, consists of the short story collection Polluted Sex and the novel Chouette, both of which I’m still keen to read; and two nonfiction works, Hybrid Humans, which I reviewed last year, and Letty McHugh’s hybrid memoir, Book of Hours: An Almanac for the Seasons of the Soul.
I’m saving up tiny joys the way a bear fattens up for the coming winter
A patchwork quilt of ordinary leftover happiness
to keep me warm through the darkest part of the night.
In medieval times, a book of hours was a devotional book that set out the day’s prayers. Usually an illuminated manuscript, it was a precious object for laypeople, and a way of marking time. For Letty McHugh, a Yorkshire-based visual artist who lives with chronic pain and illness, this book of hours is many things: a journal, a scrapbook, an enquiry into the monastic impulse, and an interrogation of the potential meanings of physical suffering.
In April 2020, McHugh experienced a relapse of MS so bad she had to move back in with her parents and was sleeping 20 hours a day. Her sphere had contracted to a single room. If only, she wished, there was “something to concentrate on that wasn’t my unravelling body or the unravelling world.” A Catholic upbringing and childhood holidays in Northumberland made her think about the early Christian hermits and saints like Aidan, Cuthbert and Julian of Norwich who salvaged something from solitude, who out of the privations of monasticism made monuments of faith and, sometimes, written documents, too.
This was the inspiration behind her own book of hours, which intersperses poems and photographs of found objects (wildflowers, animal skulls, sea glass and shells) with biographical sketches of saints, short autobiographical essays about her childhood and career, and musings on faith and pain. Metaphors of magic and outer space contrast with the claustrophobia of “the illness place,” somewhere she knows she’ll return to again and again. Although she knows she will never be perfectly holy or perfectly productive, she is encouraged to know that even those with confined lives (such as Emily Dickinson) can have a rich inner existence. While she resists the desire for a cure, or for a simple meaning to suffering, she bears witness to the fact that creativity can emerge in spite of everything.
I enjoyed spending time with this meticulously crafted and meditative work that engages with the present moment but also the eternal. It’s perfect onward reading for fans of the inaugural Barbellion Prize winner, Golem Girl by Riva Lehrer, and A Still Life by Josie George, a shortlistee from last year.
Book of Hours was self-published with assistance from Disability Arts Online. You can buy a signed copy of the handmade book from her Etsy shop, or read the text for free here.
With thanks to Letty McHugh for sending a free e-copy for review.
This year’s Barbellion Prize judges are Dr Emmeline Burdett, Lynn Buckle (last year’s winner) and scholar Ray Davis. The winner will be announced in February.
Review Catch-Up: Jhalak and Women’s Prize Nominees, Etc.
Another in an ongoing series as I catch up on the current and previous year releases I’ve been sent for review. Today I have four books by women: a poetry collection about living between countries and languages, a magic realist novel about vengeful spirits in Vietnam, a memoir in verse about the disabled body and queer parenting, and a novel set in gentrifying Puerto Rican neighbourhoods of New York City.
From the Jhalak Prize longlist:
Honorifics by Cynthia Miller (2021)
Miller is a Malaysian American poet currently living in Edinburgh. Honorifics was also shortlisted for the Forward Prize for Best First Collection. Its themes resonate with poetry I’ve read by other Asian women like Romalyn Ante and Jenny Xie and with the works of mixed-race authors such as Jessica J. Lee and Nina Mingya Powles: living between two or more countries and feeling like an exile versus finding a sense of home.
Nightly, you rosary American synonyms for success learned the hard way: suburb – 10-year visa – promotion – carpool – mortgage – parent-teacher conference – nuclear family – assimilation … Homecoming is the last, hardest thing you’ll ask yourself to do.
“Loving v. Virginia” celebrates interracial love: “Look at us, improper. Look at us, indecent. Look at us, incandescent and loving.” Food is a vehicle for memory, as are home videos. Like Ante, Miller has a poem based on her mother’s voicemail messages. “Glitch honorifics” gives the characters for different family relationships, comparing Chinese and Hokkien. The imagery is full of colour and light, plants and paintings. A terrific central section called “Bloom” contains 10 jellyfish poems (“We bloom like nuclear hydrangea … I’m an unwound chandelier, / a 150-foot-long coil of cilia, // made up of a million gelatinous foxgloves.”).
Miller incorporates a lot of unusual structures, some of them traditional forms (“Sonnet with lighthouses,” “Moon goddess ghazal,” “Persimmon abecedarian”) and others freer forms like a numbered list, columns, dictionary definitions or prose paragraphs. Six of the poems cite an inspiration; I could particularly see the influence in “The Home Office after Caroline Bird” – an absurdist take on government immigration policy.
There’s much variety here, and so many beautiful lines and evocative images. “Malaysiana,” a tour through everything she loves about the country of her birth, was my single favourite poem, and a couple more passages I loved were “the heart measuring breaths like levelling sugar / for a batter, the heart saying / why don’t you come in from the cold.” (from “The impossible physiology of the free diver”) and the last two stanzas of “Lupins”: “Some days / their purple spines // are the only things / holding me up.” Flora and fauna references plus a consideration of the expat life meant this was custom made for me, but I’d recommend it to anyone looking to try out different styles of contemporary poetry.
With thanks to Nine Arches Press for the free copy for review.
From the Women’s Prize longlist:
Build Your House around My Body by Violet Kupersmith (2021)
Back in 2014, I reviewed Kupersmith’s debut collection, The Frangipani Hotel, for BookBrowse. I was held rapt by its ghostly stories of Vietnam, so I was delighted to hear that she had written a debut novel, and it was one of my few correct predictions for the Women’s Prize nominees. The main action takes place between when Winnie – half white and half Vietnamese – arrives in Saigon to teach English in 2010, and when she disappears from the house she shared with her boyfriend of three months, Long, in March 2011. But the timeline darts about to tell a much more expansive story, starting with the Japanese invasion of Vietnam in the 1940s. Each date is given as the number of months or years before or after Winnie’s disappearance.
Winnie starts off living with a great-aunt and cousins, and meets a family friend, Dr. Sang, who’s been experimenting on a hallucinogenic drug made from cobra venom. Long and his brother, Tan, a policeman, were childhood friends with a fearless young woman named Binh – now a vengeful ghost haunting them both. Meanwhile, the Saigon Spirit Eradication Company, led by the Fortune Teller, is called upon to eradicate a ghost – which from time to time seems to inhabit a small dog – from a snake-infested highland estate. These strands are bound to meet, and smoke and snakes wind their way through them all.
I enjoyed Kupersmith’s energetic writing, which reminded me by turns of Nicola Barker, Ned Beauman, Elaine Castillo and Naoise Dolan, and the glimpses of Cambodia and Vietnam we get through meals and motorbike rides. What happens with Belly the dog towards the end is fantastic. But the chronology feels needlessly complex, with the flashbacks to colonial history and even to Binh’s story not adding enough to the narrative. While I’d still like to see Kupersmith make the shortlist, I can recommend her short stories that bit more highly.
With thanks to Oneworld for the free copy for review.
Handbook for the Newly Disabled: A Lyric Memoir by Allison Blevins (2022)
Allison Blevins, a poet, has published five chapbooks or collections and has another forthcoming. Based in Missouri and the director of an indie press, she tells her story of chronic illness and queer parenting in 10 “chapters” composed of multi-part poems. She moves through brain fog and commemorates pain and desire, which cannot always coexist (as in “How to F**k a Disabled Body”).
ride a bike again, hike, carry my children. I’m learning to number what I’ve lost.
Because of the pills, I no longer fall into sleep, I stop. I used to hate queer at 19
when I was a dyke. I can’t be disabled. I need a better word. I need a body that floats—
translucent and liquid—to my daughter’s bed, to cover her like cotton-red quilted stars.
(from “Brain Fog”)
Sometimes the title is enough: “My Neurologist (Who Doesn’t Have MS) Explains Pain Is Not a Symptom of MS.” Other times, what is left out, or erased (as in “Five by Five”) is what matters the most. For instance, the Photo Illustrations promised in the titles of two chapters are replaced by Accessibility Notes. That strategy reminded me of one Raymond Antrobus has used. Alliteration, synesthesia and the language of the body express the complexities of a friend’s cancer, having a trans partner, and coming to terms with sexuality (“I think now that being queer was easy, easy as forgetting / being born”). A really interesting work and an author I’d like to read more from.
Published by BlazeVOX [books] on 22 March. With thanks to the author for the e-copy for review.
Olga Dies Dreaming by Xóchitl González (2022)
This was on my radar thanks to a starred Kirkus review. It would have been a good choice for the Women’s Prize longlist, with its bold heroine, Latinx and gay characters, and blend of literary and women’s fiction. The Puerto Rican immigrant community and gentrifying neighbourhoods of New York City are appealing locales, and Olga is a clever, gutsy protagonist. As the novel opens in 2017, she’s working out how best to fleece the rich families whose progeny’s weddings she plans. Today it’s embezzling napkins for her cousin Mabel’s wedding. Next: stockpiling cut-price champagne. Olga’s brother Prieto, a slick congressman inevitably nicknamed the “Latino Obama,” is a closeted gay man. Their late father was a drug addict; their mother left to be part of a revolutionary movement back in PR and sends her children occasional chiding letters when they appear to be selling out.
The aftermath of Hurricane Maria coincides with upheaval in Olga’s and Prieto’s personal and professional lives. The ins and outs of Puerto Rican politics went over my head somewhat, and the various schemes and conspiracy theories get slightly silly. The thread that most engaged me was Olga’s relationship with Matteo, a hoarder. I hoped that, following the satire of earlier parts (“Olga realized she’d allowed herself to become distracted from the true American dream—accumulating money—by its phantom cousin, accumulating fame. She would never make that mistake again”), there might be a message about the emptiness of the pursuit of wealth. So I ended up a little disappointed by a late revelation about Matteo.
However, I did appreciate the picture of how Olga is up against it as both a woman and a person of colour (“no person of color serious about being taken seriously was ever late to meet white people”). This debut was perhaps a little unsure of what it wanted to be, but the novelty of the main elements was enough to make it worth reading.
With thanks to Fleet for the free copy for review.
Would you be interested in reading one or more of these?
Introducing the Barbellion Prize & A Review of Sanatorium by Abi Palmer
New this year, the Barbellion Prize will be awarded annually “to an author whose work has best represented the experience of chronic illness and/or disability.” It’s named after W.N.P. Barbellion (the pen name of Bruce Frederick Cummings), the English author of The Journal of a Disappointed Man, which he started writing at 13. A self-taught naturalist, he specialized in lice when he worked for the British Museum’s department of natural history in London. He was rejected for war service in 1915 after a doctor found him to have multiple sclerosis. At that time, the diagnosis was like a death sentence; indeed, Cummings died at age 30 in 1919, though by then he had managed to produce two volumes of memoirs as well as a daughter.
Here’s some more information on the prize criteria from the website: “Eligibility for the prize is predicated on the author’s presentation of life with a long-term chronic illness or disability, whether that be in the form of blindness, MS, cystic fibrosis, dwarfism, or another comparable condition that may substantially define one’s life. Authors – such as those in a carer’s capacity – who themselves are not ill may be considered for the prize if their work is truly exceptional as an articulation of life with illness, but authors who themselves deal personally with illness or disability will take priority in any selection for the prize.”
Especially in the absence of the Wellcome Book Prize, which has been on hiatus since the announcement of the 2019 winner, I’m delighted that there is a new prize with a health slant, particularly one that will lead to greater visibility for disabled writers and their stories. From a longlist of eight, in January the Barbellion Prize judges chose a shortlist of four titles: three memoirs and a work of autofiction. The publishers kindly agreed to send me the shortlist for review. Two have arrived so far (there have been postal delays in the UK, as in many places).
I have already read one of the nominees and will do my best to review the rest before the £1000 prize is awarded on the 12th. The others are:
- Golem Girl by Riva Lehrer – An illustrated memoir by a visual artist born with spina bifida.
- The Fragments of My Father by Sam Mills – A memoir of being a carer for her father, who has paranoid schizophrenia; also includes musings on Leonard Woolf and F. Scott Fitzgerald, who cared for mentally ill wives. I’m currently reading this one.
- Kika & Me by Amit Patel – Patel was a trauma doctor and lost his sight within 36 hours due to a rare condition. He was paired with his guide dog, Kika, in 2015.
Sanatorium by Abi Palmer (2020)
Water is a source of comfort and delight for Abi, the narrator of Sanatorium (whose experiences may or may not be those of the author; always tricky to tell with autofiction). Floating is like dreaming for her – an intermediate state between the solid world where she’s in pain and the prospect of vanishing into the air. In 2017 she spends a few weeks at a sanatorium in Budapest for water therapy; when she returns to London she buys a big inflatable plastic bathtub to keep up the exercises as she tries to wean herself off of opiates.
Abi feels fragile due to a whole host of body issues, some in her past but most continuing into the present: an autoimmune connective tissue disorder, psoriatic arthritis, Crohn’s disease, and sexual assaults. Her knee is most immediately problematic, leading her to use a mobility scooter. As her health waxes and wanes, other people – unable to appreciate any internal or incremental changes – judge her by whether or not she is able to walk well.
The book is in snippets, often of just a paragraph or even one sentence, and cycles through its several strands: Abi’s time in Budapest and how she captures it in an audio diary; ongoing therapy at her London flat, custom-designed for disabled tenants (except “I was the only cripple who could afford it”); the haunted house she grew up in in Surrey; and notes on plus prayers to St. Teresa of Ávila, accompanied by diagrams of a female figure in yoga poses.
Locations are given in small letters in the top corner of the page, apart from for the more dreamlike segments that can’t be pinned down to any one place. For instance, I was reminded of a George Saunders story by the surreal interlude in which Abi imagines Van Gogh’s Starry Night reproduced in the hair on a detached pair of legs mounted on a wall as a work of art.
The different formats and short chunks of prose generally keep the voice from becoming monotonous, though I did wonder if occasional use of the third person (and some more second person) could have been effective, too. Far from a straightforward memoir, the book incorporates passages that are closer to fantasy and poetry, and the visual elements and fertile imagery attest to Palmer’s background as a mixed-media artist.
Sanatorium is a fascinating work – matter-of-fact, playful and sensual – that vividly conveys the reality of life with a chronic illness. It was already on my wish list, but I’m so glad that this shortlisting gave me a chance to read it. Though I haven’t read the other nominees yet, the passages below are proof that this would be a deserving Barbellion Prize winner.
You go through life as a chronically ill person with so many different people who have so many different opinions about how your treatment should be. They’re not always useful or right. You have to build your own narrative and your own sense of what feels appropriate. You have to learn to trust your body to tell you what’s working. But that’s hard too, when your body keeps changing the rules.
I am one of the more privileged ones and still I’m screaming. God, it would be so nice just to dissolve into nothing and wash up onto a lonely beach.
I wonder if what I’ve learned about chronic illness, more than anything, is that it’s a constant cycle. You fall apart, then you try your best to rebuild again. I wonder what would happen if I stopped trying.
Readalikes I have also reviewed:
- Heal Me by Julia Buckley
- Bodies of Water by V. H. Leslie
- My Year of Rest and Relaxation by Ottessa Moshfegh
With thanks to Penned in the Margins for the free copy for review.
The 2019 Wellcome Book Prize: Shadow Panel and Wish List
On Tuesday the longlist for the 2019 Wellcome Book Prize will be announced. For the third year in a row I’m running a shadow panel, and it’s composed of the same four wonderful book bloggers who joined me last year: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall.
This year we’re going to do things slightly differently: we plan to split up the longlist, taking two to three titles each, so that between us we will have read them all and can announce our own preferred shortlist before the official shortlist is announced in March. At that point we’ll catch up by (re)reading the six shortlisted books, each reviewing the ones we haven’t already. Essentially, I’m adding an extra stage of shadow panel judging, simply because I can. I hope it will be fun – and also less onerous, in that we should get a leg-up on the shortlist and not have to read all six books in March‒April, which has proved to be a challenge in the past.
My Wellcome Prize hopefuls are all the fiction or nonfiction titles I’ve read on a medical theme that were published in the UK in calendar year 2018. I have put asterisks beside the 12 books in this post that I predict for the longlist. (The combination of wishful thinking and likelihood means that these are not exclusively my personal favorites.)
Below is a list of the books I’ve already featured on the blog in some way, with links to my coverage and a few-word summary of their relevance.
Gross Anatomy by Mara Altman: Female body woes
*Beneath the Skin: Great Writers on the Body: Essays on organs
*All that Remains by Sue Black: Forensic anthropology
Everything Happens for a Reason by Kate Bowler: Living with advanced cancer
Heal Me by Julia Buckley: Tackling chronic pain
*The Unmapped Mind by Christian Donlan: Adjusting to life with MS
From Here to Eternity by Caitlin Doughty: Funerary rites around the world
This Really Isn’t About You by Jean Hannah Edelstein: A genetic disease in the family
Natural Causes by Barbara Ehrenreich: Questioning the wellness culture
On Smaller Dogs and Larger Life Questions by Kate Figes: Pondering breast cancer
Shapeshifters by Gavin Francis: Instances of bodily change
The Reading Cure by Laura Freeman: Healing from an eating disorder
Nine Pints by Rose George: The story of blood
Waiting for the Last Bus by Richard Holloway: Ageing and death
*Heart: A History by Sandeep Jauhar: Heart disease and treatments
Sick by Porochista Khakpour: Chronic Lyme disease
Human Errors by Nathan Lents: Flawed bodies; evolutionary adaptations
Skybound by Rebecca Loncraine: Breast cancer; flying lessons
Amateur by Thomas Page McBee: Memoir of F2M transformation
*Face to Face by Jim McCaul: Tales of facial surgery
*Somebody I Used to Know by Wendy Mitchell: A firsthand account of early Alzheimer’s
*That Was When People Started to Worry by Nancy Tucker: Mental illness from the inside
*The Language of Kindness by Christie Watson: Nursing as a vocation
Little by Edward Carey: Anatomical models in wax (thanks to Clare for the reminder!)
Orchid & the Wasp by Caoilinn Hughes: Non-epileptic seizures
*The Winter Soldier by Daniel Mason: Neurology, surgery during WWI
The Way of All Flesh by Ambrose Parry: Medicine in 1840s Edinburgh
Other eligible books that I have read but not happened to mention on the blog:
In Shock by Rana Awdish: The doctor became the patient when Awdish, seven months pregnant, was rushed into emergency surgery with excruciating pain due to severe hemorrhaging into the space around her liver, later explained by a ruptured tumor. Having experienced brusque, cursory treatment, even from colleagues at her Detroit-area hospital, she was convinced that doctors needed to do better. This memoir is a gripping story of her own medical journey and a fervent plea for compassion from medical professionals.
Doctor by Andrew Bomback: Part of the Bloomsbury Object Lessons series, this is a wide-ranging look at what it’s like to be a doctor. Bomback is a kidney specialist; his wife is also a doctor, and his father, fast approaching retirement, is the kind of old-fashioned, reassuring pediatrician who knows everything. Even the author’s young daughter likes playing with a stethoscope and deciding what’s wrong with her dolls. In a sense, then, Bomback uses fragments of family memoir to compare the past, present and likely future of medicine.
A Moment of Grace by Patrick Dillon [skimmed]: A touching short memoir of the last year of his wife Nicola Thorold’s life, in which she battled acute myeloid leukemia. Dillon doesn’t shy away from the pain and difficulties, but is also able to summon up some gratitude.
Get Well Soon: Adventures in Alternative Healthcare by Nick Duerden: British journalist Nick Duerden had severe post-viral fatigue after a run-in with possible avian flu in 2009 and was falsely diagnosed with ME / CFS. He spent a year wholeheartedly investigating alternative therapies, including yoga, massage, mindfulness and meditation, visualization, talk therapy and more. He never comes across as bitter or sorry for himself. Instead, he considered fatigue a fact of his new life and asked what he could do about it. So this ends up being quite a pleasant amble through the options, some of them more bizarre than others.
*Sight by Jessie Greengrass [skimmed]: I wanted to enjoy this, but ended up frustrated. As a set of themes (losing a parent, choosing motherhood, the ways in which medical science has learned to look into human bodies and minds), it’s appealing; as a novel, it’s off-putting. Had this been presented as a set of autobiographical essays, perhaps I would have loved it. But instead it’s in the coy autofiction mold where you know the author has pulled some observations straight from life, gussied up others, and then, in this case, thrown in a bunch of irrelevant medical material dredged up during research at the Wellcome Library.
*Brainstorm: Detective Stories From the World of Neurology by Suzanne O’Sullivan: Epilepsy affects 600,000 people in the UK and 50 million worldwide, so it’s an important condition to know about. It is fascinating to see the range of behaviors seizures can be associated with. The guesswork is in determining precisely what is going wrong in the brain, and where, as well as how medicines or surgery could address the fault. “There are still far more unknowns than knowns where the brain is concerned,” O’Sullivan writes; “The brain has a mind of its own,” she wryly adds later on. (O’Sullivan won the Prize in 2016 for It’s All in Your Head.)
I’m also currently reading and enjoying two witty medical books, The Mystery of the Exploding Teeth and Other Curiosities from the History of Medicine by Thomas Morris, and Chicken Unga Fever by Phil Whitaker, his collected New Statesman columns on being a GP.
Four additional books I have not read but think might have a chance of making the longlist:
Primate Change: How the World We Made Is Remaking Us by Vybarr Cregan-Reid
The Beautiful Cure: Harnessing Your Body’s Natural Defences by Daniel M. Davis
Because I Come from a Crazy Family: The Making of a Psychiatrist by Edward M. Hallowell
*She Has Her Mother’s Laugh: The Powers, Perversions, and Potential of Heredity by Carl Zimmer
Look out for the announcement of the longlist on Tuesday afternoon! I’ll report back, perhaps on Wednesday, with some reactions and the shadow panel’s reviewing strategy.