Soon after I heard that the Wellcome Book Prize would be on hiatus this year, I had the idea to host a “Not the Wellcome Prize” blog tour to showcase some of the best health-themed literature published in 2019. I was finalizing the participants and schedule just before as well as during the coronavirus crisis, which has reinforced the importance of celebrating books that disseminate crucial information about medicine and/or tell stories about how health affects our daily lives. I got the go-ahead for this unofficial tour from the Wellcome Trust’s Simon Chaplin (Director of Culture & Society) and Jeremy Farrar (overall Director).
Starting on Monday and running for the next two weeks (weekdays only), the tour will be featuring 19 books across 10 blogs. One of the unique things about the Wellcome Prize is that both fiction and nonfiction are eligible, so we’ve tried to represent a real variety here: on the longlist we have everything from autobiographical essays to science fiction, including a graphic novel and a couple of works in translation.
Based on the blog tour reviews and the Prize’s aims*, the shadow panel (Annabel of Annabookbel, Clare of A Little Blog of Books, Laura of Dr. Laura Tisdall, Paul of Halfman, Halfbook and I) will choose a shortlist of six titles, to be announced on the 4th of May. We will then vote to choose a winner, with the results of a Twitter poll serving as one additional vote (be sure to have your say!). The overall winner of the Not the Wellcome Prize will be announced on the 11th of May.
I hope you’ll follow along with the reviews and voting. I would like to express my deep thanks to all the blog tour participants, especially the shadow panel for helping with ideas and planning – plus Annabel designed the graphics.
*Here is how the website describes the Prize’s purpose: “At some point, medicine touches all our lives. Books that find stories in those brushes with medicine are ones that add new meaning to what it means to be human. The subjects these books grapple with might include birth and beginnings, illness and loss, pain, memory, and identity. In keeping with its vision and goals, the Wellcome Book Prize aims to excite public interest and encourage debate around these topics.”
Below I’ve appended our preliminary list of eligible books that were considered but didn’t quite make the cut to be featured on the tour, noting major themes and positive blog review coverage I’ve come across. (The official Prize excludes poetry entries, but we were more flexible.)
- When Death Takes Something from You Give It Back by Naja Marie Aidt (memoir of child’s sudden death)
- The Man in the Red Coat by Julian Barnes (biography of 19th-century gynecologist)
- Let Me Not Be Mad by A.K. Benjamin (neuropsychologist’s memoir)
- The Story of Sex: From Apes to Robots by Philippe Brenot (medical history/graphic novel, in translation)
- The Prison Doctor by Amanda Brown (doctor’s memoir)
- The Undying by Anne Boyer (essays – cancer)
- Breaking & Mending by Joanna Cannon (doctor’s memoir)
- How to Treat People by Molly Case (nurse’s memoir)
- Will My Cat Eat My Eyeballs? by Caitlin Doughty (popular science – death)
- Happening by Annie Ernaux (memoir, in translation – abortion)
- I Remain in Darkness by Annie Ernaux (memoir, in translation – mother’s dementia)
- Out of Our Minds by Felipe Fernández-Armesto (popular science – evolutionary biology)
- The Heartland by Nathan Filer (medical history/memoir – schizophrenia)
- Childless Voices by Lorna Gibb (cultural history – infertility, etc.)
- Maybe You Should Talk to Someone by Lori Gottlieb (memoir/self-help – therapy)
- Once More We Saw Stars by Jayson Greene (memoir – child’s sudden death)
- A Short History of Falling by Joe Hammond (memoir – disability, dying)
- All Things Consoled by Elizabeth Hay (memoir – geriatrics, dementia)
- Hard Pushed by Leah Hazard (midwife’s memoir)
- Life Lessons from a Brain Surgeon by Rahul Jandial (memoir/self-help)
- Twas the Nightshift before Christmas by Adam Kay (doctor’s memoir)
- Why Can’t We Sleep? by Darian Leader (popular science – insomnia)
- Incandescent: We Need to Talk about Light by Anna Levin (light’s effects on health and body rhythms)
- A Puff of Smoke by Sarah Lippett (memoir – growing up with rare disease)
- Hormonal by Eleanor Morgan (popular science – women’s health)
- Critical by Matt Morgan (ICU doctor’s memoir)
- A Short History of Medicine by Steve Parker (medical history, illustrated)
- Notes to Self by Emilie Pine (essays – infertility, rape, etc.)
- That Good Night by Sunita Puri (doctor’s memoir – palliative care)
- An Elegant Defense: The Extraordinary New Science of the Immune System: A Tale in Four Lives by Matt Richtel (popular science)
- The Gendered Brain by Gina Ripon (popular science – neuroscience, gender)
- The Five by Hallie Rubenhold (alcoholism, sex work)
- When I Had a Little Sister by Catherine Simpson (memoir – mental health, suicide)
- Flash Count Diary: Menopause and the Vindication of Natural Life by Darcey Steinke (memoir, female anatomy)
- Skeleton Keys: The Secret Life of Bone by Brian Switek (popular science – anatomy)
- Out of the Woods by Luke Turner (memoir – masculinity, bisexuality)
- The Making of You by Katharina Vestre (popular science, in translation – embryology)
- Transcendence: How Humans Evolved through Fire, Language, Beauty, and Time by Gaia Vince (popular science – human evolution)
- The Knife’s Edge by Stephen Westaby (surgeon’s memoir)
- Starling Days by Rowan Hisayo Buchanan (literary fiction – mental illness, bisexuality)
- Recursion by Blake Crouch (science fiction – memory)
- Expectation by Anna Hope (women’s fiction – infertility, cancer)
- Stillicide by Cynan Jones (speculative fiction – water crisis)
- Things in Jars by Jess Kidd (historical fiction – Victorian medicine)
- Patience by Toby Litt (disability)
- The Migration by Helen Marshall (speculative fiction – immune disorder)
- The Warlow Experiment by Alix Nathan (historical fiction – medical experimentation)
- Night Theatre by Vikram Paralkar (magic realism – surgeon to the dead)
- The Art of Dying by Ambrose Parry (historical mystery – Victorian medicine)
- The Dutch House by Ann Patchett (doctor narrator, diabetes)
- Body Tourists by Jane Rogers (science fiction – body rental technology)
- Children of Ruin by Adrian Tchaikovsky (science fiction – evolutionary biology)
- Oligarchy by Scarlett Thomas (eating disorders)
- Wanderers by Chuck Wendig (science fiction – sleepwalking disorder)
- O Positive by Joe Dunthorne (death, therapy)
- The Carrying by Ada Limon (ageing parents, infertility)
People end up not having children for any number of reasons: medical issues, bereavement, a lack of finances, not having a partner at the right time, or the simple decision not to become a parent. The subtitle of Lorna Gibb’s Childless Voices acknowledges these various routes: “Stories of Longing, Loss, Resistance and Choice.”
For Gibb, a university lecturer, biographer and novelist, the childless state was involuntary, a result of severe endometriosis that led to infertility and early menopause. Although this has been a source of sadness for her and her husband, she knows that she has it easy compared to women in other parts of the world. Through her research and Skype interviews, she hears horrific stories about infertile women who meet with domestic violence and social ostracism and are sometimes driven to suicide. In Ghana childless women can be branded as witches and exiled. Meanwhile, some are never given the chance to have the children they might long for: Gibb cites China’s one-child policy, female genital mutilation, and enforced sterilization programs like those of the Roma in Yugoslavia and the Quechua in Peru.
Gibb is admirably comprehensive here, considering every possible aspect of childlessness. Particularly interesting are the different cultural adaptations childless women make. Certain countries allow polygamy, giving a second wife a chance to bear children on behalf of an infertile one; Kenya and other parts of sub-Saharan Africa recognize ‘marriages’ between childless women so they can create a family and support system. In Albania being a “sworn virgin” is an old and venerable custom. And, of course, there are any number of support groups and online communities. The situation of those who were once parents but are no longer is especially wrenching. Stillbirth only started to be talked about in the 1980s, Gibb notes, but even today is seen as a lesser loss than that of a child who dies later in life.
The author believes there is societal injustice in terms of who has access to fertility treatment and how the state deals with childless people. In the UK, she characterizes IVF as a “postcode lottery”: where you live often determines how many free cycles you’re entitled to on the NHS. In the USA, meanwhile, fertility treatment is so expensive that only those with a certain level of wealth can consider it. The childless may also feel ‘punished’ by tax breaks that favor parents and workplaces that expect non-parents to work unsociable hours. In a sense, then, the childless contribute more but benefit less.
Chosen childlessness is perhaps given short shrift at just 32 pages out of 239. However, it’s still a very thorough treatment of the reasons why couples decide not to become parents, including cultural norms, career goals, self-knowledge and environmental concerns. No surprise that this was the chapter that resonated with me the most. I also especially enjoyed the personal interludes (all titled “A Short Note on…”) in which Gibb celebrates her feminist, childless heroes like Frida Kahlo and Anaïs Nin and writes about how much becoming a godmother meant to her but also of the sadness of seeing a good friend’s teenage son die of a brain tumor.
By coincidence, I’ve recently read another book on the same topic: Do You Have Kids? Life when the Answer Is No, by Kate Kaufmann (coming out in America next month). Gibb primarily traces the many different reasons for childlessness; Kaufmann mostly addresses the question of “now what?” – how women without children approach careers, wider family life, housing options, spirituality and the notion of leaving a legacy. Gibb’s approach is international and comparative, while Kaufmann’s is largely specific to the USA. Though the two authors are childless due to endometriosis and infertility, they feel sisterhood with women who never became mothers for whatever reason. I’d say these two books are complementary rather than rivals, and reveal valuable perspectives that can sometimes be overlooked.
Childless Voices was published by Granta on February 7th. My thanks to the publisher for the free copy for review.