The Barbellion Prize 2020 will be awarded tomorrow “to an author whose work has best represented the experience of chronic illness and/or disability.” (See also my reviews of Golem Girl by Riva Lehrer and Sanatorium by Abi Palmer.)
These two memoirs, though very different outwardly, both draw attention to the practical and emotional challenges of life with disability or a mental illness, and call for compassion from individuals and a commitment to help from governing bodies.
The Fragments of My Father: A memoir of madness, love and being a carer by Sam Mills
One in eight people in the UK cares for an ill or disabled relative. Sam Mills has been a carer for a parent – not once, but twice. The first time was for her mother, who had kidney cancer that spread to her lungs and died one Christmas. A few years later, Mills’s father, Edward, who has paranoid schizophrenia, started having catatonic episodes, as with the incident she opens her memoir on. In 2016, on what would have been her mother’s 70th birthday, Edward locked himself in the toilet of the family home in Surrey. Her brother had to break in with a screwdriver and ambulance staff took him away to a hospital. It wasn’t the first time he’d been institutionalized for a mental health crisis, nor would it be the last. It was always excruciating to decide whether he was better off at home or sectioned on a ward.
Mills darts between past and present as she contrasts her father’s recent condition with earlier points in their family life. She only learned about his diagnosis from her mother when, at age 14, she saw him walk down the stairs naked and then cry when he burned the chips. While schizophrenia can have a genetic element, relatives of a schizophrenic are also more likely to be high achievers. So, although Mills went through a time of suicidal depression as a teenager, meditation got her through and she exhibits more of the positive traits: An author of six books and founder of the small press Dodo Ink, she is creative and driven. Still, being her father’s full-time carer with few breaks often leaves her exhausted and overwhelmed.
The book’s two main points of reference are Leonard Woolf and F. Scott Fitzgerald, who cared for mentally ill wives and had to make difficult choices about their treatment and housing. In a nutshell, Mills concludes that Woolf was a good carer while Fitzgerald was a terrible one. Leonard was excused World War I service due to his nervous exhaustion from being a carer, and he gave up on the idea of children when doctors said that motherhood would be disastrous for Virginia. Virginia herself absolved Leonard in her suicide note, reassuring him that no couple could have been happier and that no one could have looked after her better. Scott, on the other hand, couldn’t cope with Zelda’s unpredictable behaviour – not least because of his own alcoholism – so had her locked up in expensive yet neglectful institutions and censored her work when it came too close to overlapping with his own plots.
The Fragments of My Father brings together a lot of my favourite topics to read about: grief, physical and mental illness, and literary biography. It had already been on my wish list since I first heard about it last year, but I’m glad the Barbellion Prize shortlisting gave me a chance to read it. It helps to have an interest in the Fitzgeralds and Woolfs – though in my case I had read a bit too extensively about them for this strand to feel fully fresh. (I also had a ‘TMI’ response to some revelations about the author’s relationships and sex life.)
Ultimately, I most appreciated the information on being a carer, including the mental burden and the financial and social resources available. (Although there is a government allowance for carers, Mills wasn’t eligible because of her freelance earnings, so she had to apply for Society of Authors grants instead.) With caring so common, especially for women, we need a safety net in place for all whose earnings and relationships will be affected by family duties. I read this with an eye to the future, knowing there’s every possibility that one day I’ll be a carer for a parent(-in-law) or spouse.
Readalikes I have also reviewed:
- Labours of Love: The Crisis of Care by Madeleine Bunting
- All the Lives We Ever Lived: Seeking Solace in Virginia Woolf by Katharine Smyth
“had I ever made a conscious choice? Caring felt like something that was happening to me, as though my father’s illness had been an eruption that had flowed like lava over my life. … I can’t think of any other job where someone defines your role by conferring its title on you, as though they are holding out a mould that you must fill.”
“caring is rarely simple because its nature is not static. It creates routines, crafts the days into set shapes, lulls you into states of false security, and then mutates, slaps you with fresh challenges, leaves you lost just when you feel you have gained wisdom.”
With thanks to Fourth Estate for the free copy for review.
Kika & Me: How one extraordinary guide dog changed my world by Dr Amit Patel with Chris Manby
Dr Patel grew up in Guildford, studied medicine at Cambridge, and specialised in trauma medicine as a junior doctor in London. Diagnosed with keratocornus, which changes the shape of the cornea (it affects 1 in 450), he required first special contact lenses and then a series of cornea transplants. By the time of his eighth transplant, he’d remortgaged his house to pay an American specialist. Meeting and marrying Seema was a time of brightness before, in November 2013, he completely lost his vision within 36 hours. Blindness meant that he could no longer do his job, and constant eye pain and inactivity exacerbated his depression. While white cane and Braille training, plus the Royal National Institute of Blind People’s “Living with Sight Loss” course, started to boost his independence, it was being paired with his guide dog, Kika the Labrador, in 2015 that truly gave Patel his life back.
Trying out guide dogs sounds a little bit like speed dating. The Guide Dogs for the Blind Association (founded in the UK in 1931) warned that Kika was a “Marmite dog,” moody and likely to push boundaries; there was no guarantee she and Patel would get along. But from the start Kika was just right for him. More than once, what seemed like her pure stubbornness – lying on his feet and refusing to move – kept him from dangerous situations, like getting trapped between a busy road and a building site on an unfamiliar route. After a 10-day core skills training course, during which man and dog stayed at a hotel together, Kika was ready to join them at home. In the days to come, she would learn all Patel’s usual routes around their neighbourhood and into the City – with the help of smears of mackerel pâté.
If you’re like me, you’ll be most curious to learn about the nitty-gritty of life for a visually impaired person. I loved hearing about how Patel practiced his Braille letters with an egg container and ping pong balls. Since he went blind, he and his wife have had two children, and with Kika’s help manoeuvring a baby buggy is no problem. Guide dogs are trained to be predictable, e.g., doing their business in the same spot at the same times so it’s much easier to find and clean up. Some dog training tricks also worked for children, like putting a bell on a Labrador or a toddler to know when they wandered off!
Patel has had some unfortunate experiences since he went blind, particularly on the London Underground: teenagers picking him up and spinning him around on a train platform, busy commuters barging past him and Kika on an escalator, and an impatient woman hitting Kika with her handbag. While Patel doesn’t like being negative on social media, he finds that posting video clips of these incidents raises awareness of the challenges VIPs face. Every time he hits a setback, he uses it as an opportunity. For instance, one Diwali he was excited to visit Neasden Temple, only to be dismayed that they wouldn’t allow Kika inside. Since then, he has worked with temples around the world to improve disability services. He is also involved in London’s “Transport for All” work, and advises companies on access issues.
More so than the rest of the shortlist, Kika & Me is illuminating about daily life with a disability and has a campaigning focus. It’s an easy read, and not just for animal lovers. Judging the book by the cover, I might not have picked it up otherwise, so I’m grateful that the Barbellion put it on my radar. I’m deeply impressed by what Patel has achieved and the positive attitude he maintains. (Kika has her own Twitter account! @Kika_GuideDog)
With thanks to Pan Macmillan for the free copy for review.
Next year the Barbellion Prize hopes to award more money, including to all nominated authors. They are accepting submissions for 2021, and are grateful for any Paypal donations via their website (see the page footer). I’ve donated to the cause. Can you help, too?
Although over 100 books from the second half of the year are already on my radar, I’ve limited myself here to the 15 July to November releases that I’m most excited about.
The modest number is a cheat in that I’ve already read seven books from this period in advance (plus I’m currently reading another three), and I haven’t listed any that I already have access to via proofs, promised finished copies, NetGalley, Edelweiss, or library preorders. Some of these that I intend to read are A Traveler at the Gates of Wisdom by John Boyne, D (A Tale of Two Worlds): A Modern-Day Dickensian Fable by Michel Faber, Bringing Back the Beaver by Derek Gow, Just Like You by Nick Hornby, How to Fly (poems) by Barbara Kingsolver, Vesper Flights by Helen Macdonald, Utopia Avenue by David Mitchell, Summerwater by Sarah Moss, Lake Life by David James Poissant, Dear Reader by Cathy Rentzenbrink, Jack by Marilynne Robinson and The Wild Silence by Raynor Winn.
(Meanwhile, two of my overall most anticipated 2020 releases have been pushed back to 2021, at least in the UK: Transcendent Kingdom by Yaa Gyasi and The Anthill by Julianne Pachico.)
The following are in release date order, within sections by genre; the quoted descriptions are from the publisher blurbs on Goodreads. For most I’ve added a note on why I want to read it. Nonfiction dominates: this seems to be the way of 2020 for me. Lots of flora and fauna on the covers and in the themes. Look out for antlers x 2.
Artifact by Arlene Heyman [July 9, Bloomsbury] “A sweeping debut novel about love, sex, motherhood, and ambition that follows a gifted and subversive scientist’s struggle to reach beyond cultural constraints for the life she wants. … Artifact is an intimate and propulsive portrait of a whole woman.” Susan of A life in books put me onto this one; here’s her review.
Sisters by Daisy Johnson [Aug. 13, Jonathan Cape / Aug. 25, Riverhead] “After a serious case of school bullying becomes too much to bear, sisters July and September move across the country with their mother to a long-abandoned family home. … With its roots in psychological horror, Sisters is a taut, powerful and deeply moving account of sibling love.” I loved Johnson’s Booker-shortlisted debut, Everything Under.
Piranesi by Susanna Clarke [Sept. 15, Bloomsbury] “Piranesi’s house is no ordinary building: its rooms are infinite, its corridors endless. … For readers of Neil Gaiman’s The Ocean at the End of the Lane … Piranesi introduces an astonishing new world.” It feels like forever since we had a book from Clarke. I remember devouring Jonathan Strange & Mr Norrell during a boating holiday on the Norfolk Broads in 2006. But whew: this one is only 272 pages.
The Swallowed Man by Edward Carey [Nov. 5, Gallic / Oct. 27, Riverhead] “A beautiful and haunting imagining of the years Geppetto spends within the belly of a sea beast. Drawing upon the Pinocchio story while creating something entirely his own, Carey tells an unforgettable tale of fatherly love and loss, pride and regret, and of the sustaining power of art and imagination.” His Little was one of my favorite novels of 2018.
Dearly: New Poems by Margaret Atwood [Nov. 10, Chatto & Windus / Ecco / McClelland & Stewart] “By turns moving, playful and wise, the poems … are about absences and endings, ageing and retrospection, but also about gifts and renewals. They explore bodies and minds in transition … Werewolves, sirens and dreams make their appearance, as do various forms of animal life and fragments of our damaged environment.”
Bright Precious Thing: A Memoir by Gail Caldwell [July 7, Random House] “In a voice as candid as it is evocative, Gail Caldwell traces a path from her west Texas girlhood through her emergence as a young daredevil, then as a feminist.” I’ve enjoyed two of Caldwell’s previous books, especially Let’s Take the Long Way Home. Also, I’ve been reading a lot of childhood memoirs and I like comparing them to see how authors capture that time of life.
The Fragments of My Father by Sam Mills [July 9, Fourth Estate] A memoir of being the primary caregiver for her father, who had schizophrenia; with references to F. Scott Fitzgerald and Leonard Woolf, who also found themselves caring for people struggling with mental illness. “A powerful and poignant memoir about parents and children, freedom and responsibility, madness and creativity and what it means to be a carer.”
Avoid the Day: A New Nonfiction in Two Movements by Jay Kirk [July 28, Harper Perennial] Transylvania, Béla Bartók’s folk songs, an eco-tourist cruise in the Arctic … “Avoid the Day is part detective story, part memoir, and part meditation on the meaning of life—all told with a dark pulse of existential horror.” It was Helen Macdonald’s testimonial that drew me to this: it “truly seems to me to push nonfiction memoir as far as it can go.”
World of Wonders: In Praise of Fireflies, Whale Sharks, and Other Astonishments by Aimee Nezhukumatathil [Aug. 3, Milkweed Editions] “From beloved, award-winning poet Aimee Nezhukumatathil comes a debut work of nonfiction—a collection of essays about the natural world, and the way its inhabitants can teach, support, and inspire us. … Even in the strange and the unlovely, Nezhukumatathil finds beauty and kinship.” Who could resist that title or cover?
Antlers of Water: Writing on the Nature and Environment of Scotland, edited by Kathleen Jamie [Aug. 6, Canongate] Contributors include Amy Liptrot, musician Karine Polwart and Malachy Tallack. “Featuring prose, poetry and photography, this inspiring collection takes us from walking to wild swimming, from red deer to pigeons and wasps, from remote islands to back gardens … writing which is by turns celebratory, radical and political.”
The Good Ancestor: How to Think Long Term in a Short-Term World by Roman Krznaric [Aug. 27, W.H. Allen] “Drawing on radical solutions from around the world, Krznaric celebrates the innovators who are reinventing democracy, culture and economics so that we all have the chance to become good ancestors and create a better tomorrow.” I’ve been reading a fair bit around this topic. I got a sneak preview of this one from Krznaric’s Hay Festival talk.
Eat the Buddha: The Story of Modern Tibet through the People of One Town by Barbara Demick [Sept. 3, Granta / July 28, Random House] “Illuminating a culture that has long been romanticized by Westerners as deeply spiritual and peaceful, Demick reveals what it is really like to be a Tibetan in the twenty-first century, trying to preserve one’s culture, faith, and language.” I read her book on North Korea and found it eye-opening. I’ve read a few books about Tibet over the years; it is fascinating.
Entangled Life: How Fungi Make Our Worlds, Change Our Minds and Shape Our Futures by Merlin Sheldrake [Sept. 3, Bodley Head / May 12, Random House] “Entangled Life is a mind-altering journey into this hidden kingdom of life, and shows that fungi are key to understanding the planet on which we live, and the ways we think, feel and behave.” I like spotting fungi. Yes, yes, the title and cover are amazing, but also the author’s name!! – how could you not want to read this?
Between Light and Storm: How We Live with Other Species by Esther Woolfson [Sept. 3, Granta] “Woolfson considers prehistoric human‒animal interaction and traces the millennia-long evolution of conceptions of the soul and conscience in relation to the animal kingdom, and the consequences of our belief in human superiority.” I’ve read two previous nature books by Woolfson and have done some recent reading around deep time concepts. This is sure to be a thoughtful and nuanced take.
The Stubborn Light of Things: A Nature Diary by Melissa Harrison [Nov. 5, Faber & Faber] “Moving from scrappy city verges to ancient, rural Suffolk, where Harrison eventually relocates, this diary—compiled from her beloved “Nature Notebook” column in The Times—maps her joyful engagement with the natural world and demonstrates how we must first learn to see, and then act to preserve, the beauty we have on our doorsteps.” I love seeing her nature finds on Twitter. I think her writing will suit this format.
Which of these do you want to read, too?
What other upcoming 2020 titles are you looking forward to?
I manage about an annual trip to Bookbarn International, one of my favorite secondhand bookshops in the UK. Apart from the stock in their newly opened Darwin Rare Books room and the 50-pence children’s books, everything in the shop is £1. I never fail to come out with a great stack of finds. Our trip on Thursday was extra special because we were going for the café’s Harvest Supper and Scrabble tournament, held as part of The Great Bath Feast.
We played one 45-minute game against another team of two, broke for an excellent vegetarian supper of squash, spinach and goat’s cheese pie with mashed potatoes and baby roast vegetables, then played a second match before dessert (vegan plum crumble with custard or gluten-free fig brownie with ice cream). Over the years my husband and I have become quite the Scrabble fiends, and together on one team I’m afraid we were unbeatable. Our bingo starting off Game #2 helped, but we worried we were at an overall advantage because the other boards each had three teams playing.
It was a special pleasure to meet William Pryor, the chairman of Bookbarn. Last year he spotted my blog posts about Bookbarn and offered me a copy of his memoir, The Survival of the Coolest. It’s a wonderful book about growing up a descendant of Charles Darwin but going off the rails and ending up addicted to heroin in his 20s:
This family of mine! On the one hand you have the royalty of science and Bloomsbury, on the other the fading world of the English landed gentry. … We had no religion but Darwin.
The months ran into each other as a blur of the chase for relief, the wheeling and dealing … One of the most striking aspects of hell is that it goes round and round; the same torments over and over again.
Mr. Pryor let me have a sneak peek at the Darwin room after the shop closed and kindly gave me a copy of his grandmother Gwen Raverat’s memoir, Period Piece. Over pudding we chatted about literary festivals, the Bookshop Band, his failed idea to return a portion of secondhand books’ resale value to the authors, and the latest Nobel Prize winner.
As to that book haul: I feel like I have fiction coming out of my ears, so with our hour of book browsing time I mainly focused on biographies and memoirs. Here are my finds:
Biographies and essays on writing biography:
(Two of my purchases will go especially well as pairs with books I already own.)
General memoirs (I was especially pleased to find the sequel to Cobwebs and Cream Teas, which I bought at Bookbarn last time and read early this year):
Plus two poetry books (one of them signed!):
And two novels I happened to grab on the way to the till:
My unexpected freebies. The Raverat is a lovely small-format hardback with gilt-edge pages and a maroon ribbon bookmark; on the right is our prize for winning the Scrabble tournament:
I’ve already had a peek inside a few of the books I bought and found some excellent passages. Leonard Woolf’s memoir opens with an extraordinary passage of almost biblical language about existence and non-existence; one of Marge Piercy’s poems struck me right away for its description of a Jewish holiday and the line “there is no justice we don’t make daily / like bread and love.”
My husband came away with three natural history books, and we also found a few children’s books to give to nieces and nephews.
Thanks to this book haul plus a trip to Book-Cycle in early September and some charity shopping last week, I’ve had to start a double stack on my biography/memoir shelves. There’s already a double stack on one of my unread fiction shelves. Next week is my birthday, so the book acquisitions are only likely to continue…
2015 was a great year for fiction, largely dominated by doorstoppers (like Death & Mr. Pickwick and City on Fire, in addition to the Franzen and Yanagihara listed below) and Harper Lee. I’ve decided to pass on Go Set a Watchman, but I’ve read plenty of the year’s big-name fiction, as well as some more obscure titles I’d like to bring to your attention.
As difficult as it is to pit books against each other and come up with a numbered list, I’ve given it a go and come up with my top 15 fiction works of the year. To keep it simple for myself and straightforward for potential readers, I’m limiting myself to two sentences per title: the first is a potted summary; the second tells you why you should read it. I also link to any full reviews.
Let the countdown begin!
- The Shore by Sara Taylor: Gritty and virtuosic, this debut novel-in-13-stories imagines 250 years of history on a set of islands. Every region needs a literary chronicler, and I reckon Taylor – channeling David Mitchell with her cross-centuries approach – is it for the Eastern Shore of Maryland and Virginia’s islands.
- Gold Fame Citrus by Claire Vaye Watkins: Gold, fame, citrus: reasons people once came to California; now, only a desperate remnant remains in the waterless wasteland. As a smart, believable dystopian with a family at its heart, this trumps any of last year’s efforts (like Station Eleven or California).
- Preparation for the Next Life by Atticus Lish: Like West Side Story, this debut novel is an updated Romeo and Juliet narrative – a tragedy-bound love story with a grimy contemporary setting and a sobering message about racism and the failure of the American dream. The matter-of-fact style somehow manages to elevate the everyday and urban into an art form. (Reviewed for Third Way magazine in August.)
- Circling the Sun by Paula McLain: Before she ever thought of flying solo across the Atlantic, aviatrix Beryl Markham was just Beryl Clutterbuck: raised in Kenya, one of Africa’s first female horse trainers, its first professional female pilot, and the other side of the love triangle featuring Karen Blixen (Isak Dinesen) and Denys Finch Hatton. McLain describes her African settings beautifully, and focuses as much on the small emotional moments that make a life as she does on its external thrills.
- Kitchens of the Great Midwest by J. Ryan Stradal: One of my favorite debuts of the year: a culinary-themed collection of short stories loosely linked through the character of Eva Thorvald, a young chef with an unfortunate past and a rare palate. Read it for a glimpse of how ordinary, flawed Americans live – no fairytale endings here.
- Hausfrau by Jill Alexander Essbaum: This arresting debut reads like a modern retelling of Madame Bovary, with its main character a desperate American housewife in Zurich. Watch Anna’s trajectory with horror, but you cannot deny there is a little of her in you.
- The Versions of Us by Laura Barnett: In this impressively structured, elegantly written debut, Barnett chronicles the romantic lives of two Cambridge graduates through three-quarters of a century, giving three options for how their connection might play out. There is no one perfect person or story: unsentimental this may be, but it feels true to how life works. (Reviewed for Third Way magazine in July.)
- Fates and Furies by Lauren Groff: An incisive study of a marriage, beautifully written and rich with allusions to Shakespeare and Greek mythology. Groff makes it onto a short list of women I expect to produce the Great American Novel (along with Curtis Sittenfeld, Jennifer Egan, and Hanya Yanagihara).
- Purity by Jonathan Franzen: East Germany, Bolivia and Oakland, California: Franzen doesn’t quite pull all his settings and storylines together, but this is darn close to a 5-star Dickensian read. It’s strong on the level of character and theme, with secrecy, isolation and compassion as recurring topics.
- You Too Can Have a Body Like Mine by Alexandra Kleeman: Kleeman’s first novel is a full-on postmodern satire bursting with biting commentary on consumerism and conformity. Think of her as an heir to Dave Eggers and Douglas Coupland, with a hefty dollop of Margaret Atwood thrown in.
- The Animals by Christian Kiefer: Kiefer’s second novel contrasts wildness and civilization through the story of a man who runs an animal refuge to escape from his criminal past. A tough opening sequence establishes themes that will be essential to the novel: the fine line between instincts and decisions, the moral dilemmas involved in environmentalism, and the seeming inescapability of violence.
- The Tsar of Love and Techno by Anthony Marra: A collection of tightly linked short stories giving an intimate look at Russia and Chechnya in wartime and afterwards – revealing how politics, family, and art intertwine. Just as he did in his first novel, Marra renders unspeakable tragedies bearable through his warm and witty writing.
- Girl at War by Sara Nović: This pitch-perfect debut novel is an inside look at the Yugoslavian Civil War and its aftermath, from the perspective of a young girl caught up in the fighting. The way Nović recreates a child’s perspective on the horrors of war is masterful: Ana’s viewpoint is realistic and matter-of-fact, without the melodrama an omniscient narrator might inject.
- Adeline by Norah Vincent: Set in 1925–1941 and structured like a five-act play, the novel revolves around Virginia Woolf’s philosophical conversations with Leonard Woolf, Lytton Strachey and his lover Carrington, T.S. and Valerie Eliot, W.B. Yeats, and her doctor, Octavia Wilberforce. Vincent has produced a remarkable picture of mental illness from the inside.
- A Little Life by Hanya Yanagihara: Jude St. Francis: Dickensian orphan, patron saint of lost causes, Christlike Man of Sorrows, and one of the most memorable characters in recent fiction. This novel is an attempt to tackle the monolithic question of what makes life worth living; among the potential answers: love (though it doesn’t conquer all), friendship, creativity, and the family you create for yourself.
Debut Novelists Whose Next Work I’m Most Looking Forward to: Jessamyn Hope (Safekeeping – reviewed here in June) and Carmiel Banasky (The Suicide of Claire Bishop – reviewed for Foreword’s Fall 2015 issue).
The Year’s Biggest Disappointments: Etta and Otto and Russell and James by Emma Hooper; Where My Heart Used to Beat by Sebastian Faulks and Avenue of Mysteries by John Irving (both rehash the authors’ familiar themes; I couldn’t make it past 15% in the latter).
Novels I Most Wish I’d Gotten to in 2015: Nell Zink’s Mislaid, Sara Baume’s Spill Simmer Falter Wither, and the final two volumes of Jane Smiley’s “Last Hundred Years” trilogy.
What are the best novels you read this year? Any new favorite books or authors? Your comments are always welcome.
I’ll be back tomorrow with my top 15 nonfiction books I read this year (most of them not published in 2015, however – I seem to have been a nonfiction slacker!)