Tag Archives: Katie Engelhart
Why, she wanted to know, was I so interested in the subject?
“Why isn’t everyone?” I asked.
The fact that I read a lot more books about death than the average person is something I attribute not to some morbid curiosity, but to pragmatism. As the title of Canadian reporter and documentary filmmaker Katie Engelhart’s book makes clear, this is the one subject none of us can avoid indefinitely, so why not learn about and understand it as much as possible? The Inevitable focuses on the controversial matter of assisted dying, also known as assisted suicide, euthanasia, or physician-assisted death. It’s a topic that’s already come up in my reading a couple of times this year: in the Dutch context of That One Patient by Ellen de Visser, and as a key part of the narrative in Darke Matter by Rick Gekoski.
Engelhart spends time with doctors and patients who are caught up in the assisted dying argument, chiefly in Western Europe and the United States. Ten states plus Washington, D.C. have assisted dying laws, sparked by Oregon’s Death with Dignity Act in 1994. In California, the author follows Dr. Lonny Shavelson for a month, observing all the meticulous regulations surrounded a physician-assisted death: patients with a terminal diagnosis and less than six months to live have to complete multiple forms, give many signatures, deliver oral testimony, and be able to drink the fatal concoction by themselves (whereas in other countries doctors can administer lethal injections). And if, when the time comes, a patient is too far gone to give spoken consent, the procedure is cancelled.
Other chapters consider specific cases that are not generally covered by current legislation but can drive people to seek assisted suicide: the ravages of old age, chronic degenerative illnesses, dementia, and severe mental illness. Each of these is given its own long chapter, like an extended magazine profile.
- Meet Avril Henry, a former Exeter University professor in her eighties, now living alone with a failing body but no specific diagnosis that would qualify her for AD. Pain has long since outweighed pleasure in her life, so she illegally imports Nembutal from a veterinary supplier in Mexico and makes a careful plan for what will happen with her body, home, and possessions after she takes the drug in the bathtub.
- Meet Maia Calloway, a 39-year-old former filmmaker confined to a wheelchair by multiple sclerosis. Her medicines cost $65,000 a year, not all covered by Medicare, and she can no longer rely on the patience of her boyfriend, who acts as her carer. She decides to raise the money to travel from Taos to a Swiss assisted dying clinic.
- Meet Debra, a 65-year-old widow so rapidly declining with dementia that she knows she has to make her arrangements at once. She contacts the Final Exit Network, which gives advice and equipment (e.g. a nitrogen tank) that can make a death look unexplained or like a standard suicide.
- Meet Adam, a 27-year-old in daily distress from OCD, anxiety, and depersonalization disorder. Though he’s lobbied for the inclusion of mental illness, he doesn’t qualify for AD under Canada’s laws. In 2017 he starts a Facebook livestream from a hotel room, intending to take poison off-screen. He loses his nerve this time, but is determined to try again.
These stories are so wrenching, but so compassionately told. Engelhart explores the nuances of each situation, crafting expert portraits of suffering people and the medical professionals who seek to help them, and adding much in the way of valuable context. Hers is a voice of reason and empathy. She mostly stays in the background, as befits a journalist, but occasionally emotional responses or skepticism come through – Exit International’s Philip Nitschke, vilified as a “Dr. Death” like Jack Kevorkian, is too much of a maverick for her.
And while her sympathy for the AD cause is evident, she also presents opposing arguments: from hospice doctors, from those afraid that the disabled will be pushed into assisted suicide to free up resources, from the family members of her subjects, and from those who have witnessed abuses of the system. There are those who frame this as a question of rights, and others who recognize a rare privilege; some who scorn the notion of escape, and others who speak of dignity and the kindness one would show a dying pet. The book is a vital contribution to an ongoing debate, with human stories at its heart.
With thanks to Atlantic Books for the free copy for review. The Inevitable was published in the UK on March 11th and is available from St. Martin’s Press in the USA.
In early April, the publisher Canongate ran a newsletter competition for one reader to win a stack of their recent releases. All you had to do was reply with your favourite word. On Twitter they gave a rundown of the most popular responses. Turning up several times each were petrichor, mellifluous, and oleaginous. Most frequent of all was serendipity: I was one of 15 to submit it! And one of those entries, but not mine, won. Anyway, fun little story there.
I call it Book Serendipity when two or more books that I read at the same time or in quick succession have something pretty bizarre in common. Because I have so many books on the go at once (usually 20‒30), I suppose I’m more prone to such incidents. I’ve realized that, of course, synchronicity is really the more apt word, but this branding has stuck.
The following are in roughly chronological order.
- A white peacock is mentioned in Indelicacy by Amina Cain and The Mermaid of Black Conch by Monique Roffey, both of which were on the 2021 Rathbones Folio Prize shortlist.
- Speaking of that Rathbones Folio Prize shortlist, four of the eight were paperbacks with French flaps.
- The main character takes ballet lessons in Indelicacy by Amina Cain and A Feather on the Breath of God by Sigrid Nunez.
- Mermaids! A big theme in The Mermaid of Black Conch by Monique Roffey (of course) and The Republic of Love by Carol Shields, but they’re also mentioned in the opening story of The Office of Historical Corrections by Danielle Evans and are main characters in “The Pangs of Love” by Jane Gardam in the anthology Close Company.
- The Brothers Grimm story about brothers who have been transformed into swans and their sister who sews shirts out of nettles to turn them back is reworked in The Charmed Wife by Olga Grushin and used as a metaphor in Dusk, Night, Dawn by Anne Lamott.
- An electric carving knife is mentioned as a means of suicide (yipes!) in The Inevitable by Katie Engelhart and Woman on the Edge of Time by Marge Piercy.
- A discussion of the distinction between the fear of dying and the fear of being dead in This Party’s Dead by Erica Buist and The Inevitable by Katie Engelhart.
- Two novels in a row in which an older man is appalled by the squalor of his young girlfriend’s apartment, and she calls him “daddy” during sex (double yipes!), made the Dylan Thomas Prize shortlist: Luster by Raven Leilani and My Dark Vanessa by Kate Elizabeth Russell.
- Architect husbands in The Push by Ashley Audrain and The Art of Falling by Danielle McLaughlin (and, last year, in A Celibate Season by Blanche Howard and Carol Shields), as well as a female architect as a main character in The Living Sea of Waking Dreams by Richard Flanagan earlier this year.
- The next-to-last essay in the Trauma anthology quotes from The Bell Jar by Sylvia Plath, which I was also reading at the time.
- A mention of the eels in London absorbing cocaine from the Thames in the final essay in the Trauma anthology; I then moved right on to the last 40 pages of Nobody Is Talking About This by Patricia Lockwood and the same bizarre fact was mentioned. A week and a half later, there it was again, this time in Asylum Road by Olivia Sudjic.
- A mention of sailors’ habit of getting tattoos of swallows in The Circling Sky by Neil Ansell (who has a swallow tattoo, even though he’s not a sailor) and Birdsong in a Time of Silence by Steven Lovatt.
- A father and teenage child wander an unfamiliar city and enter a sex shop together (yipes yet again!) in Three O’Clock in the Morning by Gianrico Carofiglio and Ten Days by Austin Duffy.
- A mention of the same University of Virginia study in which people self-administered electric shocks to alleviate the boredom of sitting alone with their thoughts in Rooted by Lyanda Lynn Haupt and You’re Not Listening by Kate Murphy.
- Basho’s poetry and George Monbiot’s Feral are both cited in The Circling Sky by Neil Ansell and Rooted by Lyanda Lynn Haupt.
- A dead sister named Mattie in Consent by Annabel Lyon and Drowning Ruth by Christina Schwarz.
- A young Black female protagonist and the same family dynamic (the mother committed suicide and the father is in the Marines/Navy) in The Mothers by Brit Bennett and Luster by Raven Leilani.
- On the same night, I read about two pets encountering snow for the first time: a cat in Close Encounters of the Furred Kind by Tom Cox and a dog in Open Water by Caleb Azumah Nelson.
- A character is described as being as wide as they are tall in Mother for Dinner by Shalom Auslander and The Absolute Book by Elizabeth Knox.
- A character is known as Seventh in Mother for Dinner by Shalom Auslander and the story “The Pangs of Love” by Jane Gardam in the Close Company anthology. Plus, there’s Septimus in Mrs Dalloway by Virginia Woolf, which I’m reading concurrently with those two.