Nonfiction about doctors’ memorable patients and a life of chronic pain and disability; novels set in 1970s Canada and contemporary (but magically outside-of-time) Paris.
That One Patient: Doctors’ and nurses’ stories of the patients who changed their lives forever by Ellen de Visser
[Translated from the Dutch by Brent Annable]
Ellen de Visser is a science writer for the most popular newspaper in the Netherlands, De Volkskrant. Her “That One Patient” column, which began in the summer of 2017, turns interviews with medical professionals into punchy first-person narratives. A collection of them was published in Dutch in 2019. This English translation tacks on 10 additional pieces based on conversations with English and American practitioners (including Dr. Anthony Fauci, immunologist and presidential medical advisor), four of them explicitly reflecting on COVID-19.
Many of the cases are decades old yet stuck with the doctor or nurse in question because of a vital lesson learned. Overtreatment is regretted just as much as an omission of care. Again and again, these medical professionals conclude that it’s impossible to judge someone else’s decisions or quality of life. For instance, a surgeon admits he had a hard time empathizing with his obese patients undergoing stomach reduction until he followed up with a young woman who told him about how invisible she’d felt before her surgery. Premature and disabled children bring grief or joy, not always in the expected doses. A doctor resents the work his team puts into repairing a woman who jumped from an eighth-floor window – why the heroic measures for someone who wanted to die? – until he learns she was pushed. A cancer surgeon develops breast cancer and now knows exactly what her patients go through.
Some of these stories are disturbing: being stalked by a patient with a personality disorder, a man poisoning his girlfriend, a farmer predicting the very day and time of his death. A gynaecologist changes his mind about abortion after he meets a 15-year-old who gave birth at home and left her baby outside in a plastic bag to die of exposure. Other pieces are heart-warming: A paramedic delivers a premature, breech baby right in the ambulance. Staff throw a wedding at the hospital for a dying teen (as in Dear Life by Rachel Clarke). A woman diagnosed with cancer while pregnant has chemotherapy and a healthy baby – now a teenager. There’s even a tale from a vet who crowdfunded prostheses for a lively terrier.
One unique thing about the Netherlands is that euthanasia is legal and provided by doctors upon the express request of a patient suffering from a terminal illness. It is taken for granted in these essays, yet some interviewees express their discomfort with it as an option for young patients. De Visser is careful to note that, even with the situation as it is, only 4% of deaths in the Netherlands are by euthanasia, and the majority of these are end-stage cancer cases.
As with any collection of this nature, some stories are more enticing than others, but overall I found it a surprising and moving set of reflections that is alive to ethical complexities and grapples with tough issues like disability, doctor error, loneliness, pain, and sense of purpose.
Two quotes, in particular, stood out to me, one from a nurse – “We are only ever guests in other people’s lives, and that’s how we ought to behave” – and the other from Dr. Fauci’s piece. In 2014 he treated a doctor who had been volunteering in Sierra Leone after an Ebola outbreak but became ill with the virus and had to be evacuated. “He cited Hippocrates: ‘It is far more important to know what sort of person has the disease, rather than what sort of disease the person has.’ You treated me like a person, not a disease, he said. And that’s what medicine is all about.”
With thanks to 4th Estate for the proof copy for review.
A Still Life: A Memoir by Josie George
Over a year of lockdowns, many of us have become accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (My full review will appear in a forthcoming issue of the Times Literary Supplement. See also Eleanor’s thorough review.) This is top of my wish list for next year’s Barbellion Prize shortlist.
With thanks to Bloomsbury for the proof copy for review.
A Town Called Solace by Mary Lawson
I discovered Mary Lawson in 2015 with Road Ends and caught up with Crow Lake in the summer of 2019. All four of her books are set in fictional locations inspired by the villages and rural areas of Northern Ontario, where the author grew up before moving to England in 1968. So Solace, while not a real town, is true to her memory and, despite the sometimes gruff or know-it-all locals, an emotional landmark for the three central characters, all of whom are processing trauma and looking for places of comfort where they can start over.
1972. First we meet Clara, a plucky seven-year-old sitting vigil. She’s waiting for the return of two people: her sixteen-year-old sister, Rose, who ran away from home; and their next-door neighbour, Mrs. Orchard, whose cat, Moses, she’s feeding until the old lady gets back from the hospital. As days turn into weeks, though, it seems less likely that either will come home, and one day Clara sees a strange man moving boxes around in Mrs. Orchard’s house. This is Liam Kane, who’s inherited the house from a family friend. In his thirties and recently divorced, he’s taking a break in this tiny town, never imagining that he might find a new life. The third protagonist, and only first-person narrator, is Elizabeth, who lies in a hospital bed with heart trouble and voices her memories as a monologue to her late husband.
As we cycle through these three characters’ perspectives in alternating chapters, we gradually come to understand the connections between them. There are satisfying parallels in that, on multiple occasions but in slightly different ways, a child attaches to an older person or an adult stands in as a guardian for a neglected child. All of Lawson’s creations, even the secondary figures, are dealing with distressing memories or a loss of some kind, the details of which might only emerge much later on. Solace offers myriad opportunities for recovery, whether kitty playtime at Mrs. Orchard’s or diner food and homemade ice cream.
Like Lawson’s other works, this is a slow burner featuring troubled families. Her characters, often full of regret and sorrow, take a shadowy past as a prompt to reset their lives. They’re charming in spite of their flaws. I recalled that Crow Lake also looks back to the climactic happenings experienced by a seven-year-old girl. And like Road Ends, A Town Called Solace makes a convincing case for present decisions being influenced by historical trauma. It’s a tender and inviting story I’d recommend to readers of Wendy McGrath and Anne Tyler, with Clever Girl by Tessa Hadley and Olive, Again by Elizabeth Strout as specific readalikes. (My dilemma now is whether to read my only remaining Lawson novel, The Other Side of the Bridge, right away or save it: she’s not the most prolific author, with four books in 19 years.)
A favorite passage:
[Liam’s] life prior to coming north seemed to be taking on the quality of an old movie, one in which he’d been deeply engrossed while watching it but which now seemed trivial, unconvincing and profoundly lacking in either colour or plot. Solace had colour and plot in spades, maybe too much. In every way it was coming to seem more real than Toronto, with its endless malls and traffic jams and high-powered jobs. Though maybe, if he went back to Toronto, the same would be true in reverse. Maybe when he’d been back for a couple of months he’d find that it was Solace that seemed unreal, its unremarkable streets and stores like something from a dream, its dramatic landscape fading to nothing, like a holiday photo left in the sun.
With thanks to Chatto & Windus for the free copy for review.
The Strays of Paris by Jane Smiley
(Published in the USA in December 2020 under the title Perestroika in Paris. It’s been given a The Boy, the Mole, the Fox and the Horse treatment for its UK release.)
My summary for Bookmarks magazine: “A racehorse, Perestroika—nicknamed Paras—strays from her unlocked suburban stable one day, carrying her groom’s purse in her mouth, and ends up in Paris’s Place du Trocadéro. Here she meets Frida the dog, Sid and Nancy the mallards, and Raoul the raven. Frida, whose homeless owner died, knows about money. She takes euros from the purse to buy food from a local market, while Paras gets treats from a baker on predawn walks. Etienne, an eight-year-old orphan who lives with his ancient great-grandmother, visits the snowy park to feed the wary animals (who can talk to each other), and offers Paras a home. A sweet fable for animal lovers.”
Yes, this is a talking animal book, but the animals only talk to each other; they communicate with humans through their gestures and soulful eyes. Kindly shopkeepers work out what Frida wants to buy based on what she stares at or points to with a paw; the baker whose window Paras passes on her early morning walks intuits that the horse is hungry; Etienne, who gives a couple of the stray animals a home during a chill winter, learns to understand when Paras needs to go out to relieve herself, after piles of dung build up in the sitting room.
I liked how patiently and convincingly Smiley builds the portrait of each character – human or animal – and the overall situation of kindness and good fortune. Raoul is particularly amusing for his birdsplaining: “It is a feature of age. I have learned so many things in my life that they just force their way out of my beak,” he says. However, a crow would be much more realistic for Paris (or any city) than a raven, and, overall, this was a little twee and farfetched for my tastes. It was nice to read something a bit different from Smiley, who I haven’t tried since her Last Hundred Years Trilogy. She has a sideline in YA horse novels; this should probably have been lumped with those. (Annabel liked it a bit more.)
I was sent an unsolicited review copy by Picador/Mantle.
What recent releases can you recommend?
It has been a pleasure following the Barbellion Prize race this year. In case you haven’t already seen the news, the winner of the inaugural award is Golem Girl by Riva Lehrer (my review).
It’s not often that my favourite from a literary prize list is also the judges’ pick, so I’m particularly pleased that my prediction came true. The full announcement is here. Here’s what two of the judges had to say:
Assistant Professor of Literature Dr Shahd Alshammari: “Golem Girl is a memoir that is infused with art, life, discrimination, love, self-love, and what it means to be vulnerable. Disability is on every page—and that is the type of literature we need.”
Cat Mitchell, Lecturer and Programme Leader of the Writing and Publishing degree at the University of Derby: “Golem Girl is a powerful and wide-reaching account of a life lived with disability. By interweaving her writing and art, Riva explores queerness, community, society’s fear of difference, and the often problematic representation of disabled bodies in art and medicine.”
Professor Tom Shakespeare FBA, Professor of Disability Research at London School of Hygiene and Tropical Medicine, and an advisor to the Prize, added: “From Pope to Stevenson, Woolf to Plath, writers have lived with illness and disability for centuries. Now here comes exactly the right prize at the right time: disabled writers have been locked down far longer, and deserve far more recognition than they get. The Barbellion Prize deserves to succeed, and Riva Lehrer’s Golem Girl will put it on the map.”
To recap, the other three on the shortlist were:
It’s been quite the whirlwind reading and reviewing all four books as the first two review copies only arrived on the 28th of January. Most of my reviews got bunched up right in the 36 or so hours before the announcement, but I was relieved that I managed to get them all up in advance. The Prize basically has no budget, so when I approached Cat (who used to work in publicity at Penguin) and asked if I and a handful of other bloggers could get involved, I wasn’t sure if it would be a possibility. I was really grateful to the four publishers for being willing to supply review copies. I hope we have helped to get the word out there.
The Barbellion Prize is already accepting entries for the 2021 award (submissions close on 31 October; see the website for more information). On my wish list thus far are two excellent memoirs, Sanctuary by Emily Rapp Black, who has a prosthetic leg and lost her son to Tay-Sachs disease, and A Still Life by Josie George, who lives joyfully with chronic illness.
Other relevant 2021 releases I’m interested in getting hold of are: The Invention of Miracles: language, power, and Alexander Graham Bell’s quest to end deafness by Katie Booth, Places I’ve Taken My Body by Molly McCully Brown, What Doesn’t Kill You: A Life with Chronic Illness – Lessons from a Body in Revolt by Tessa Miller, and Waiting for Superman: One Family’s Struggle to Survive – and Cure – Chronic Fatigue Syndrome by Tracie White.
Have you been inspired to read any of the shortlisted books?
March has been a huge month for new releases. With so many authors feeling let down about book tours and events being cancelled, it’s a great time for bloggers to step in and help. I attended two virtual book launches on Twitter on the 19th and have another one coming up on the 31st. I also have three more March releases on order from my local indie bookstore: Greenery by Tim Dee, tracking the arrival of spring; Footprints by David Farrier, about the fossil traces modern humans will leave behind; and The Bass Rock by Evie Wyld, a novel about violence against women set on the Scottish coast in three different time periods.
Today I have short reviews of five March releases I recommend (plus a bonus one now out in paperback): a Victorian pastiche infused with Scottish folklore, an essay collection about disparate experiences of motherhood, a thriller about victims of domestic violence, poems in graphic novel form, a novel about natural and personal disasters in Australia, and a lovely story of friendship and literature changing a young man’s life forever. All:
The Ninth Child by Sally Magnusson
(Published by Two Roads on the 19th)
Like Hannah Kent’s The Good People and Sarah Perry’s The Essex Serpent, this is an intense, convincing work of fiction that balances historical realism with magical elements. In mid-1850s Britain, in the wake of a cholera epidemic, there is a drive to ensure clean water. Alexander Aird, hired as the on-site physician for the Glasgow waterworks, moves to the Loch Katrine environs with his wife, Isabel, who has had eight miscarriages or stillbirths. With no living babies requiring her care, Isabel spends her days wandering the hills and meets a strange scarecrow of a man, Reverend Robert Kirke … who died in 1692.
A real-life Episcopalian minister, Kirke wrote a book about fairies and other Celtic supernatural beings and, legend has it (as recounted by Sir Walter Scott and others), was taken into the faery realm after his death and continued to walk the earth looking for rest. It takes a while for Isabel to learn the truth about Kirke – though her servant, Kirsty McEchern, immediately intuits that something isn’t right about the man – and longer still to understand that he wants something from her. “Whatever else, Robert Kirke could be relied on to ruffle this mind of hers that was slowly opening to experience again, and to thinking, and to life.”
This was a rollicking read that drew me in for its medical elements (premature birth, a visit to Joseph Lister, interest in Florence Nightingale’s nursing methods) as well as the plot. It often breaks from the omniscient third-person voice to give testimonies from Kirsty and from Kirke himself. There are also amusing glimpses into the Royal household when Victoria and Albert stay at Balmoral and return to open the waterworks during the “heaviest, windiest, most umbrella-savaging, face-slashing deluge that Scotland had experienced in twenty years.” Best of all, it gives a very different picture of women’s lives in the Victorian period.
My thanks to the publisher for the proof copy for review.
The Best Most Awful Job: Twenty Writers Talk Honestly about Motherhood, edited by Katherine May
(Published by Elliott & Thompson on the 19th)
These are essays for everyone who has had a mother – not just everyone who has been a mother. I enjoyed every piece separately, but together they form a vibrant collage of women’s experiences. Care has been taken to represent a wide range of situations and attitudes. The reflections are honest about physical as well as emotional changes, with midwife Leah Hazard (author of Hard Pushed) kicking off with an eye-opening rundown of the intimate scarring some mothers will have for the rest of their lives. We hear from a mother of six who’s “addicted” to pregnancy (Jodi Bartle), but also from a woman who, after an ectopic pregnancy, realized “there are lots of ways to mother, even if your body won’t let you” (Peggy Riley, in one of my two favorite pieces in the book).
Women from BAME communities recount some special challenges related to cultural and family expectations, but others that are universal. An autistic mother (Joanne Limburg) has to work out how to parent a neurotypical child; queer parents (including author Michelle Tea) wonder how to raise a son at a time of toxic masculinity. There are also several single mothers, one of them disabled (Josie George – hers was my other favorite essay; do follow her on Twitter via @porridgebrain if you don’t already).
What I most appreciated is that these authors aren’t saying what they think they should say about motherhood; they’re willing to admit to boredom, disappointment and rage: “motherhood is an infinite, relentless slog from which there is no rest or recuperation … a ceaseless labour, often devoid of acknowledgment, recognition and appreciation” (Javaria Akbar); “I step barefoot on a rogue piece of Lego and it’s game over. I scream” (Saima Mir). These are punchy, distinctive slices of life writing perfectly timed for Mother’s Day. I plan to pass the book around my book club; mothers or not, I know everyone will appreciate it.
My thanks to the publisher for the proof copy for review.
Keeper by Jessica Moor
(Published by Viking/Penguin on the 19th)
Val McDermid and Jeanette Winterson are among the fans of this, Penguin’s lead debut title of 2020. When a young woman is found drowned at a popular suicide site in the Manchester area, the police plan to dismiss the case as an open-and-shut suicide. But the others at the women’s shelter where Katie Straw worked aren’t convinced, and for nearly the whole span of this taut psychological thriller readers are left to wonder if it was suicide or murder.
The novel alternates between chapters marked “Then” and “Now”: in the latter story line, we follow the police investigation and meet the women of the refuge; in the former, we dive into Katie’s own experience of an abusive relationship back in London. While her mother was dying of cancer she found it comforting to have a boyfriend who was so attentive to her needs, but eventually Jamie’s obsessive love became confining.
I almost never pick up a mystery, but this one was well worth making an exception for. I started suspecting the twist at maybe the two-thirds point, but that didn’t detract from my enjoyment. Based on Moor’s year working in the violence against women sector, it’s a gripping and grimly fascinating story of why women stay with their abusers and what finally drives them to leave.
I picked up a proof copy at a Penguin Influencers event.
Poems to See by: A Comic Artist Interprets Great Poetry by Julian Peters
(To be published by Plough Publishing House on the 31st)
Peters is a comics artist based in Montreal. Here he has chosen 24 reasonably well-known poems by the likes of e.e. cummings, Emily Dickinson, Robert Frost, Seamus Heaney, Langston Hughes, Edgar Allan Poe, Christina Rossetti and W.B. Yeats and illustrated each one in a markedly different fashion. From black-and-white manga to a riot of color and music, from minimalist calligraphy-like Japanese watercolor to imitations of Brueghel, there is such a diversity of style here that at first I presumed there were multiple artists involved (as in one of my favorite graphic novels of last year, ABC of Typography, where the text was written by one author but each chapter had a different illustrator). But no, this is all Peters’ work; I was impressed by his versatility.
The illustrations range from realistic to abstract, with some more obviously cartoon-like. A couple of sequences reminded me of the style of Raymond Briggs. For “Caged Bird” by Maya Angelou, lines are inlaid on the squares of a painted patchwork quilt. Other sets look to have been done via wood engraving, or with old-fashioned crayons. You could quibble with the more obvious poetry selections, but I encountered a few that were new to me, including “Buffalo Dusk” by Carl Sandburg and “Conscientious Objector” by Edna St. Vincent Millay. Peters has grouped them into six thematic categories: self, others, art, nature, time and death. Teenagers, especially, will enjoy the introduction to a variety of poets and comics styles.
I read an e-copy via NetGalley.
The Inland Sea by Madeleine Watts
(Published by ONE/Pushkin on the 5th)
“Emergency police fire, or ambulance?” The young female narrator of this debut novel lives in Sydney and works for Australia’s emergency call service. Over her phone headset she gets appalling glimpses into people’s worst moments: a woman cowers from her abusive partner; a teen watches his body-boarding friend being attacked by a shark. Although she strives for detachment, her job can’t fail to add to her anxiety – already soaring due to the country’s flooding and bush fires.
Against that backdrop of natural disasters, a series of minor personal catastrophes play out. The narrator is obsessed with a rape/murder case that’s dominating the television news, and narrowly escapes sexual assault herself. She drinks to excess, keeps hooking up with her ex-boyfriend, Lachlan, even after he gets a new girlfriend, and seems to think abortion and the morning after pill are suitable methods of birth control. Irresponsible to the point of self-sabotage, she’s planning a move to London but in the meantime is drifting through life, resigned to the fact that there is no unassailable shelter and no surefire way to avoid risk.
The title comes from the quest of John Oxley (presented here as the narrator’s ancestor), who in 1817 searched for a water body in the Australian interior. Quotations from his journals and discussions of the work of Patrick White, the subject of Lachlan’s PhD thesis, speak to the search for an Australian identity. But the inland sea is also the individual psyche, contradictory and ultimately unknowable. Like a more melancholy version of Jenny Offill’s Weather or a more cosmic autofiction than Yara Rodrigues Fowler’s Stubborn Archivist, this is a timely, quietly forceful story of how women cope with concrete and existential threats.
My thanks to the publisher for the PDF copy for review.
And a bonus…
The Offing by Benjamin Myers (2019)
(Paperback published by Bloomsbury on the 5th)
With the Second World War only recently ended and nothing awaiting him apart from the coal mine where his father works, sixteen-year-old Robert Appleyard sets out on a journey. From his home in County Durham, he walks southeast, doing odd jobs along the way in exchange for food and lodgings. One day he wanders down a lane near Robin Hood’s Bay and gets a surprisingly warm welcome from a cottage owner, middle-aged Dulcie Piper, who invites him in for tea and elicits his story. Almost accidentally, he ends up staying for the rest of the summer, clearing scrub and renovating her garden studio.
Dulcie is tall, outspoken and unconventional – I pictured her as (Meryl Streep as) Julia Child in the movie Julie & Julia. She introduces Robert to whole new ways of thinking: that not everyone believes in God, that Germans might not be all bad, that life can be about adventure and pleasure instead of duty. “The offing” is a term for the horizon, as well as the title of a set of poems Robert finds in the dilapidated studio, and both literature and ambition change his life forever. Bright, languid and unpredictable, the novel delights in everyday sensual pleasures like long walks with a dog, dips in the ocean and an abundance of good food. I can’t think of another book I’ve read that’s quite like it – how refreshing is that?
I pre-ordered the paperback using a Waterstones voucher I got for Christmas.