Tag: Joseph Jebelli

Nonfiction November: Fiction/Nonfiction Pairings

I’d never participated in Nonfiction November before because I tend to read at least 40% nonfiction anyway, but I couldn’t resist the temptation to put together some fiction and nonfiction pairings based on books I’ve read this year and last. (This week of the month-long challenge is posted by Sarah’s Book Shelves, a blog I love for its no-nonsense recommendations of what to read – and what not to read – from the recent U.S. releases.)

My primary example is two books that reveal what it’s really like to have Alzheimer’s disease. Mitchell’s, in particular, is a book that deserves more attention. When it came out earlier this year, it was billed as the first-ever “dementia memoir” (is that an oxymoron?) – except, actually, there had been one the previous year (whoops!): Memory’s Last Breath by Gerda Saunders, which I have on my Kindle and still intend to read. [See also Kate W.’s picks, which include a pair of books with a dementia theme.]

 

Still Alice by Lisa Genova (2007)

Genova’s writing, Jodi Picoult-like, keeps you turning the pages; I read 225+ pages in an afternoon. There’s true plotting skill to how Genova uses a close third-person perspective to track the mental decline of Harvard psychology professor Alice Howland, who has early-onset Alzheimer’s disease. “Everything she did and loved, everything she was, required language,” yet her grasp of language becomes ever more slippery even as her thought life remains largely intact. I also particularly enjoyed the descriptions of Cambridge and its weather, and family meals and rituals. There’s a certain amount of suspension of disbelief required – Would the disease really progress this quickly? Would Alice really be able to miss certain abilities and experiences once they were gone? – and ultimately I preferred the 2014 movie version, but this would be a great book to thrust at any caregiver or family member who’s had to cope with dementia in someone close to them.

My rating:

Other fictional takes on dementia that I can recommend: Unforgettable: Short Stories by Paulette Bates Alden, The Only Story by Julian Barnes, Everything Under by Daisy Johnson and Turn of Mind by Alice LaPlante.

 

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Somebody I Used to Know by Wendy Mitchell with Anna Wharton (2018)

A remarkable insider’s look at the early stages of Alzheimer’s. Mitchell took several falls while running near her Yorkshire home, but it wasn’t until she had a minor stroke in 2012 that she and her doctors started taking her health problems seriously. In July 2014 she got the dementia diagnosis that finally explained her recurring brain fog. She was 58 years old, a single mother with two grown daughters and a 20-year career in NHS administration. Having prided herself on her good memory and her efficiency at everything from work scheduling to DIY, she was distressed that she couldn’t cope with a new computer system and was unlikely to recognize the faces or voices of colleagues she’d worked with for years. Less than a year after her diagnosis, she took early retirement – a decision that she feels was forced on her by a system that wasn’t willing to make accommodations for her.

The book, put together with the help of ghostwriter Anna Wharton, gives a clear sense of progression, of past versus present, and of the workarounds Mitchell uses to outwit her disease. The details and incidents are well chosen to present the everyday challenges of dementia. For instance, baking used to be one of Mitchell’s favorite hobbies, but in an early scene she’s making a cake for a homeless shelter and forgets she’s already added sugar; she weighs in the sugar twice, and the result is inedible. By the time the book ends, not only can she not prepare herself a meal; she can’t remember to eat unless she sets an alarm and barricades herself into the room so she won’t wander off partway through.

In occasional italicized passages Mitchell addresses her past self, running through bittersweet memories of all that she used to be able to do: “It amazes me now how you did it, because you didn’t have anyone to help you. You were Mum, Dad, taxi, chef, counsellor, gardener and housekeeper, all rolled into one.” Yet it’s also amazing how much she still manages to do as an ambassador for the Alzheimer’s Society and Dementia Friends. She crisscrosses the country to give speeches, attend conferences, and advise universities; she writes a blog and has appeared on radio to promote this book. Like many retired people, she’s found she’s busier than ever, and her engagements help her to feel purposeful and like she’s giving a positive impression of early-stage dementia. No matter that she has to rely on dozens of reminders to self in the form of Post-It notes, iPad alarms and a wall of photographs.

The story lines of this and Still Alice are very similar in places – the incidents while running, the inability to keep baking, and so on. And in fact, Mitchell reviewed the film and attended its London premiere, where she met Julianne Moore. Her book is a quick and enjoyable read, and will be so valuable to people looking to understand the experience of dementia. She is such an inspiring woman. I thank her for her efforts, and wish her well. This is one of my personal favorites for the shortlist of next year’s Wellcome Book Prize for medical reads.

My rating:

Other nonfiction takes on dementia that I can recommend: In Pursuit of Memory by Joseph Jebelli and The Summer of the Great-Grandmother by Madeleine L’Engle.

 

 


Additional pairings I would commend to you (all are books I have read and rated or above):

Talk before Sleep by Elizabeth Berg

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Let’s Take the Long Way Home by Gail Caldwell and Truth and Beauty by Ann Patchett

  • Celebrating the strength of female friendship, even in the face of life-threatening illness.

 

Bad News by Edward St. Aubyn

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Portrait of an Addict as a Young Man by Bill Clegg

  • Vivid portrayals of drug addiction.

 

Miss Smilla’s Feeling for Snow by Peter Høeg

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This Cold Heaven by Gretel Ehrlich

  • Armchair traveling in Greenland.

 

Sweetbitter by Stephanie Danler

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Cork Dork by Bianca Bosker

  • Glimpses into the high-class world of fine dining – and fine wine.

 


Dear Fahrenheit 451: Love and Heartbreak in the Stacks by Annie Spence is chock-full of recommendations and reading pairs. The Novel Cure is also good for this sort of thing, though it is (no surprise) overwhelmingly composed of fiction suggestions.

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One More Wellcome Longlist Review & Shortlist Predictions

Tomorrow the six titles on the Wellcome Book Prize shortlist will be revealed. I’ve managed to read one more from the longlist since my last batch.

 

The Butchering Art: Joseph Lister’s Quest to Transform the Grisly World of Victorian Medicine by Lindsey Fitzharris

Surgery was a gory business with a notably high fatality rate well into the nineteenth century. Surgeons had the fastest hands in the West, but their victims were still guaranteed at least a few minutes of utter agony as they had a limb amputated or a tumor removed, and the danger wasn’t over after they were sewn up either: most patients soon died from hospital infections. The development of anesthetics and antiseptic techniques helped to change all that.

Fitzharris opens with the vivid and rather gruesome scene of a mid-thigh amputation performed by Robert Liston at University College Hospital in London in 1846. This surgery was different, though: it only took 28 seconds, but the patient felt nothing thanks to the ether he had been administered. He woke up a few minutes later asking when the procedure would begin. In the audience that day was Joseph Lister, who would become one of Britain’s most admired surgeons.

Lister came from a Quaker family and, after being educated at University College London, started his career in Edinburgh. Different to many medical professionals of the time, he was fascinated by microscopy and determined to find out what caused deadly infections. Carbolic acid and catgut ligatures were two of Lister’s main innovations that helped to fight infection. In fact, whether we realize it or not, his legacy is forever associated with antiseptics: Listerine mouthwash (invented in 1879) is named after him, and the Johnson brothers of Johnson & Johnson fame started their business mass-producing sterile surgical dressings after attending one of Lister’s lectures.

My interest tailed off a bit after the first third, as the book starts going into more depth about Lister’s work and personal life: he married his boss’s daughter and moved from Edinburgh to Glasgow and then back to London. However, the best is yet to come: the accounts of the surgeries he performed on his sister (a mastectomy that bought her three more years of life) and Queen Victoria (removing an orange-sized abscess from under her arm) are terrific. The chapter on treating the queen in secret at Balmoral Castle in 1871 was my overall favorite.

It probably wasn’t the best idea to start this book over my lunch one day!

I was that kid who loved going to Civil War battlefields and medical museums and looking at all the different surgical saws and bullet fragments in museum cases, so I reveled in the gory details here but was not as interested in the biographical material. Do be sure you have a strong stomach before you try reading the prologue over a meal. This is a comparable read to The Remedy, about the search for a cure to tuberculosis.

My rating:

 


Shortlist Predictions

Now, I’ve still only read half of the longlisted titles so far, so it’s hard to make any solid guesses. However, the below fall somewhere between wishes and informed predictions:

  1. In Pursuit of Memory by Joseph Jebelli: A definitive treatment of an epidemic of our time, Alzheimer’s disease. The neuroscientist author achieves the right balance between history and research on the one hand and personal stories readers can relate to on the other.
  2. The White Book by Han Kang: The only fiction title from the longlist that I haven’t read at least part of. This is also on this year’s Man Booker International Prize longlist and has been well received. From what I can tell, the health theme seems stronger than that of Stay with Me or Midwinter Break, and it would also be nice for one title in translation to make the shortlist.
  3. With the End in Mind by Kathryn Mannix: As I said in my review last week, this is an excellent all-round guide to preparation for death, based around touching patient stories plus the author’s experience in palliative care and CBT. Practical, compassionate and helpful.
  4. I Am, I Am, I Am by Maggie O’Farrell: For me, this book stands out as the one that most clearly illuminates the effects of illness, medical treatment, and other threats to life and limb in the course of an ordinary existence. I’d be very happy to see it win the whole thing.
  5. EITHER The Butchering Art by Lindsey Fitzharris OR The Vaccine Race by Meredith Wadman: I reckon one history of science title deserves to be on there; I think Wadman might have the slight edge.
  6. EITHER To Be a Machine by Mark O’Connell OR Behave by Robert Sapolsky: The Wellcome Prize loves big books investigating human tendencies and possibilities. I find the thought of either of these daunting, but I know they would also be illuminating. I’d prefer to read the O’Connell, but I’d give the edge to Sapolsky.

Any predictions of your own to make?

Thoughts on the Wellcome Book Prize Longlist

The 2018 Wellcome Book Prize longlist is here! From the prize’s website, you can click on any of these 12 books’ covers, titles or authors to get more information about them.

Some initial thoughts:

I correctly predicted three of the entries (or 25%) in yesterday’s post: In Pursuit of Memory by Joseph Jebelli, With the End in Mind by Kathryn Mannix, and I Am, I Am, I Am by Maggie O’Farrell. I’m pretty shocked to not see Fragile Lives or Admissions on the list.

Of the remainder, I’ve already read one (Midwinter Break) and DNFed another (Stay with Me). Midwinter Break didn’t immediately suggest itself to me for this prize because its themes of ageing and alcoholism are the background to a story about the disintegration of a long marriage. Nonetheless, it’s a lovely book that hasn’t gotten as much attention as it deserves – it was on my runners-up list from last year – so I’m delighted to see it nominated. Stay with Me was also on the Baileys Prize shortlist; it appears here for its infertility theme, but I wouldn’t attempt it again unless it made the Wellcome shortlist.

As to the rest:

  • I’m annoyed with myself for not remembering The Butchering Art, which I have on my Kindle. Sometimes I assume that books I’ve gotten from NetGalley are USA-only and don’t check for a UK publisher. I plan to read this and With the End in Mind (also on my Kindle) soon.
  • I already knew about and was interested in Mayhem and The White Book.
  • Of the ones I didn’t know about, Plot 29 appeals to me the most. I’m off to get it from the library this very afternoon, in fact. Its health theme seems quite subtle: it’s about a devoted gardener ‘digging’ into his past in an abusive family and foster care. The Guardian review describes it thus: “Like Helen Macdonald’s H Is for Hawk, this is a profoundly moving account of mental trauma told through the author’s encounters with nature. Jenkins sees his garden as a place where a person can try to escape from, and atone for, the darkness of human existence.” This is the great thing about prize lists: they can introduce you to fascinating books you might never have heard of otherwise. Even if it’s just one book that takes your fancy, who knows? It might end up being a favorite.
  • While I’m not immediately drawn to the books on the history of vaccines, the evolution of human behavior, and transhumanism, I will certainly be glad to read them if they make the shortlist.

Some statistics on this year’s longlist, courtesy of the press release I was sent by e-mail:

  • Three novels, three memoirs, and six nonfiction titles
  • Five debut authors
  • Three titles from independent publishers (Canongate and Granta/Portobello Books)
  • The authors are from the UK, Ireland, USA, Nigeria, Canada, and – making their first appearance – Sweden (Sigrid Rausing) and South Korea (Han Kang)

Chair of judges Edmund de Waal writes: “The Wellcome Book Prize is unique in its reach across genres, and so the range of books that we have considered has been exhilarating in its extent and ambition. This is a remarkable time for readers, with a great flourishing of writing on ideas around science, medicine and health, lives and deaths, histories and futures. After passionate discussions we have arrived at our longlist for the Wellcome Book Prize 2018 and are proud to be part of this process of bringing to a wider public these 12 tremendous books that have moved, intrigued and inspired us. All of them bring something new to our understanding of what it is to be human.”

The shortlist is announced on Tuesday, March 20th, and the winner will be revealed on Monday, April 30th.


Are there any books on here that you’d like to read?

My 2018 Wellcome Book Prize Wish List

Tomorrow the longlist for the 2018 Wellcome Book Prize will be announced. This year’s judging panel is chaired by Edmund de Waal, author of The Hare with Amber Eyes. I hope to once again shadow the shortlist along with a few fellow book bloggers. I don’t feel like I’ve read all that many books that are eligible (i.e., released in the UK in 2017, and on a medical theme), but here are some that I would love to see make the list. I link to all those I’ve already featured here, and give review extracts for the books I haven’t already mentioned.

 

 

  • I Am, I Am, I Am: Seventeen Brushes with Death by Maggie O’Farrell: O’Farrell captures fragments of her life through essays on life-threatening illnesses and other narrow escapes she’s experienced. The pieces aren’t in chronological order and aren’t intended to be comprehensive. Instead, they crystallize the fear and pain of particular moments in time, and are rendered with the detail you’d expect from her novels. She’s been mugged at machete point, nearly drowned several times, had a risky first labor, and was almost the victim of a serial killer. (My life feels awfully uneventful by comparison!) But the best section of the book is its final quarter: an essay about her childhood encephalitis and its lasting effects, followed by another about her daughter’s extreme allergies. 

 

 

It’s also possible that we could see these make the longlist:

  • History of Wolves by Emily Fridlund: Fridlund’s Minnesota-set debut novel is haunted by a dead child. From the second page readers know four-year-old Paul is dead; a trial is also mentioned early on, but not until halfway does Madeline Furston divulge how her charge died. This becomes a familiar narrative pattern: careful withholding followed by tossed-off revelations that muddy the question of complicity. The novel’s simplicity is deceptive; it’s not merely a slow-building coming-of-age story with Paul’s untimely death at its climax. For after a first part entitled “Science”, there’s still half the book to go – a second section of equal length, somewhat ironically labeled “Health”. (Reviewed for the TLS.) 

 

 

  • Modern Death: How Medicine Changed the End of Life by Haider Warraich: A learned but engaging book that intersperses science, history, medicine and personal stories. The first half is about death as a medical reality, while the second focuses on social aspects of death: religious beliefs, the burden on families and other caregivers, the debate over euthanasia and physician-assisted suicide, and the pros and cons of using social media to share one’s journey towards death. (See my full Nudge review.) 

 


Of 2017’s medical titles that I haven’t read, I would have especially liked to have gotten to:

  • Sound: A Story of Hearing Lost and Found by Bella Bathurst
  • This Is Going to Hurt: Secret Diaries of a Junior Doctor by Adam Kay
  • With the End in Mind: Dying, Death, and Wisdom in an Age of Denial by Kathryn Mannix [I have this one on my Kindle from NetGalley]
  • Into the Grey Zone: A Neuroscientist Explores the Border between Life and Death by Adrian Owen
  • Patient H69: The Story of My Second Sight by Vanessa Potter

 

We are also likely to see a repeat appearance from the winner of the 2017 Royal Society Science Book Prize, Testosterone Rex: Myths of Sex, Science, and Society by Cordelia Fine.

 

Other relevant books I read last year that have not (yet?) been released in the UK:

 

  • No Apparent Distress: A Doctor’s Coming-of-Age on the Front Lines of American Medicine by Rachel Pearson: Pearson describes her Texas upbringing and the many different hands-on stages involved in her training: a prison hospital, gynecology, general surgery, rural family medicine, neurology, dermatology. Each comes with memorable stories, but it’s her experience at St. Vincent’s Student-Run Free Clinic on Galveston Island that stands out most. Pearson speaks out boldly about the divide between rich and poor Americans (often mirrored by the racial gap) in terms of what medical care they can get. A clear-eyed insider’s glimpse into American health care. 

 

 

  • The Tincture of Time: A Memoir of (Medical) Uncertainty by Elizabeth L. Silver: At the age of six weeks, Silver’s daughter suffered a massive brain bleed for no reason that doctors could ever determine. Thanks to the brain’s plasticity, especially in infants, the bleed was reabsorbed and Abby has developed normally, although the worry never goes away. Alongside the narrative of Abby’s baffling medical crisis, Silver tells of other health experiences in her family. An interesting exploration of the things we can’t control and how we get beyond notions of guilt and blame to accept that time may be the only healer. 

 

Do you follow the Wellcome Book Prize? Have you read any books that might be eligible?

My Top 10 Nonfiction Reads of 2017

Below I’ve chosen my seven favorite nonfiction books published in 2017, followed by three older titles that I only recently discovered. Many of these books have already featured on the blog in some way over the course of the year. To keep it simple for myself as well as for all of you who are figuring out whether you’re interested in these books or not, I’m mostly limiting myself to two sentences per title: the first is a potted summary; the second tells you why you should read it. I also link to any full reviews.

 

  1. Landslide: True Stories by Minna Zallman Proctor: This gorgeous set of autobiographical essays circles through some of the overarching themes of the author’s life: losing her mother, a composer; the importance Italy had for both of them; a love for the work of Muriel Spark; their loose connection to Judaism; and the relentless and arbitrary nature of time. Proctor provides a fine example of how to write a non-linear memoir that gets to the essence of what matters in life.

 

  1. My Jewish Year by Abigail Pogrebin: From September 2014 to September 2015, Pogrebin celebrated all the holidays in the Jewish calendar, drawing thematic connections and looking for the resonance of religious rituals might have in her daily life. This bighearted, open-minded book strikes me as a perfect model for how any person of faith should engage with their tradition: not just offering lip service and grudgingly showing up to a few services a year, but knowing what you believe and practice, and why.

 

  1. The U.S. cover

    In Pursuit of Memory: The Fight against Alzheimer’s by Joseph Jebelli: With the world’s population aging, it is expected that by 2050 Alzheimer’s will be the second leading cause of death after heart disease. Research neurologist Joseph Jebelli gives a thorough survey of the history of Alzheimer’s and the development of our efforts to treat and even prevent it, but balances his research with a personal medical story any reader can relate to – his beloved grandfather, Abbas, succumbed to Alzheimer’s back in Iran in 2012. (See my full review for BookBrowse.)

 

  1. My Life with Bob by Pamela Paul: Whether she was hoarding castoffs from her bookstore job, obsessing about ticking off everything in the Norton Anthology, despairing that she’d run out of reading material in a remote yurt in China, or fretting that her new husband took a fundamentally different approach to the works of Thomas Mann, Paul (the editor of the New York Times Book Review) always looks beyond the books themselves to ask what they say about her. It’s just the sort of bibliomemoir I wish I had written.

 

  1. The Bright Hour by Nina Riggs: Beautiful prose enhances this literary and philosophical approach to terminal cancer. Riggs was a great-great-great-granddaughter of Ralph Waldo Emerson and quotes from her ancestor’s essays as well as from Michel de Montaigne’s philosophy to put things into perspective; she’s an expert at capturing the moments that make life alternately euphoric and unbearable – and sometimes both at once.

 

  1. Fragile Lives by Stephen Westaby: This is a vivid, compassionate set of stories culled from the author’s long career in heart surgery with the Grim Reaper looking on. I am not a little envious of all that Westaby has achieved: not just saving the occasional life despite his high-mortality field – as if that weren’t enough – but also pioneering various artificial heart solutions and a tracheal bypass tube that’s named after him.

 

And my nonfiction book of the year was:

1. The Shadow in the Garden: A Biographer’s Tale by James Atlas: I read this in August, planning to contrast it with Claire Tomalin’s A Life of My Own, another biographer’s memoir, for the LARB. It would have been a brilliant article, believe me. But they didn’t bite, and by the time I approached the TLS they’d already arranged coverage of the books. Alas! Such is the life of a freelancer. Since then I’ve struggled to know what to say about Atlas’s book that would explain why I loved it so much that my paperback proof is riddled with Post-It flags. (It’s going to take more than a couple of sentences…)

Much more so than Tomalin, Atlas gave me a real sense of what it’s like to immerse yourself in another person’s life. He made it up as he went along: he was only 25 when he got the contract to write a biography of the poet Delmore Schwartz, who died a penniless alcoholic at age 52. Writing about the deceased was a whole different matter to engaging with a living figure, as Atlas did when he wrote his biography of Saul Bellow in the 1990s.

Atlas perceptively explores the connections between Schwartz and Bellow (Schwartz was the model for the protagonist of Bellow’s 1975 Pulitzer winner, Humboldt’s Gift) and between Bellow and himself (a Chicago upbringing with Russian Jewish immigrant ancestors), but also sets his work in the context of centuries of biographical achievement – from Boswell’s The Life of Samuel Johnson through master biographers like Richard Holmes, Leon Edel and Richard Ellmann (Atlas’s supervisor during his fellowship at Oxford) to recent controversial biographies of Robert Frost and Vladimir Nabokov.

This book deals with the nitty-gritty of archival research and how technology has changed it; Atlas also talks story-telling strategies and the challenge of impartiality, and ponders how we look for the patterns in a life that might explain what, besides genius, accounts for a writer’s skill. Even the footnotes are illuminating, and from the notes I learned about a whole raft of biographies and books on the biographer’s trade that I’d like to read. After I finished reading it I spent a few days dreamily wondering if I might write a biography some day. For anyone remotely interested in life writing, pick this up with my highest recommendation.

 

 

I’ll make it up to an even 10 with a few backlist titles I also loved:

The Unexpected Professor: An Oxford Life in Books by John Carey (2014): Carey gives a thorough picture of events from his personal and professional life, but the focus is always on his literary education: the books that have meant the most to him and the way his taste and academic specialties have developed over the years. Ultimately what this book conveys is the joy of being a lifelong reader.

A Sand County Almanac and Sketches Here and There by Aldo Leopold (1949): So many of Leopold’s musings ring true today: how we only appreciate wildlife if we can put an economic value on it, the troubles we get into when we eradicate predators and let prey animals run rampant, and the danger of being disconnected from the land that supplies our very life. And all this he delivers in stunning, incisive prose.

The Argonauts by Maggie Nelson (2015): An exquisite interrogation of gender identity and an invaluable reminder that the supposed complications of making a queer family just boil down to your basic human experiences of birth, love and death. I preferred those passages where Nelson allows herself to string her fragments into more extended autobiographical meditations, like the brilliant final 20 pages interspersing her memories of giving birth to her son Iggy with an account of the deathbed vigil her partner (artist Harry Dodge) held for his mother; it had me breathless and in tears, on a plane of all places.

 


What were some of your top nonfiction reads of the year?

Tomorrow I’ll be posting my Library Checkout a few days early.

 

Next week’s planned posts:

26th: Doorstopper of the Month

27th: Top fiction of the year list

28th: Runners-up and other superlatives

29th: Early 2018 recommendations

30th: Final statistics on my 2017 reading