Nonfiction about doctors’ memorable patients and a life of chronic pain and disability; novels set in 1970s Canada and contemporary (but magically outside-of-time) Paris.
That One Patient: Doctors’ and nurses’ stories of the patients who changed their lives forever by Ellen de Visser
[Translated from the Dutch by Brent Annable]
Ellen de Visser is a science writer for the most popular newspaper in the Netherlands, De Volkskrant. Her “That One Patient” column, which began in the summer of 2017, turns interviews with medical professionals into punchy first-person narratives. A collection of them was published in Dutch in 2019. This English translation tacks on 10 additional pieces based on conversations with English and American practitioners (including Dr. Anthony Fauci, immunologist and presidential medical advisor), four of them explicitly reflecting on COVID-19.
Many of the cases are decades old yet stuck with the doctor or nurse in question because of a vital lesson learned. Overtreatment is regretted just as much as an omission of care. Again and again, these medical professionals conclude that it’s impossible to judge someone else’s decisions or quality of life. For instance, a surgeon admits he had a hard time empathizing with his obese patients undergoing stomach reduction until he followed up with a young woman who told him about how invisible she’d felt before her surgery. Premature and disabled children bring grief or joy, not always in the expected doses. A doctor resents the work his team puts into repairing a woman who jumped from an eighth-floor window – why the heroic measures for someone who wanted to die? – until he learns she was pushed. A cancer surgeon develops breast cancer and now knows exactly what her patients go through.
Some of these stories are disturbing: being stalked by a patient with a personality disorder, a man poisoning his girlfriend, a farmer predicting the very day and time of his death. A gynaecologist changes his mind about abortion after he meets a 15-year-old who gave birth at home and left her baby outside in a plastic bag to die of exposure. Other pieces are heart-warming: A paramedic delivers a premature, breech baby right in the ambulance. Staff throw a wedding at the hospital for a dying teen (as in Dear Life by Rachel Clarke). A woman diagnosed with cancer while pregnant has chemotherapy and a healthy baby – now a teenager. There’s even a tale from a vet who crowdfunded prostheses for a lively terrier.
One unique thing about the Netherlands is that euthanasia is legal and provided by doctors upon the express request of a patient suffering from a terminal illness. It is taken for granted in these essays, yet some interviewees express their discomfort with it as an option for young patients. De Visser is careful to note that, even with the situation as it is, only 4% of deaths in the Netherlands are by euthanasia, and the majority of these are end-stage cancer cases.
As with any collection of this nature, some stories are more enticing than others, but overall I found it a surprising and moving set of reflections that is alive to ethical complexities and grapples with tough issues like disability, doctor error, loneliness, pain, and sense of purpose.
Two quotes, in particular, stood out to me, one from a nurse – “We are only ever guests in other people’s lives, and that’s how we ought to behave” – and the other from Dr. Fauci’s piece. In 2014 he treated a doctor who had been volunteering in Sierra Leone after an Ebola outbreak but became ill with the virus and had to be evacuated. “He cited Hippocrates: ‘It is far more important to know what sort of person has the disease, rather than what sort of disease the person has.’ You treated me like a person, not a disease, he said. And that’s what medicine is all about.”
With thanks to 4th Estate for the proof copy for review.
A Still Life: A Memoir by Josie George
Over a year of lockdowns, many of us have become accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (My full review will appear in a forthcoming issue of the Times Literary Supplement. See also Eleanor’s thorough review.) This is top of my wish list for next year’s Barbellion Prize shortlist.
With thanks to Bloomsbury for the proof copy for review.
A Town Called Solace by Mary Lawson
I discovered Mary Lawson in 2015 with Road Ends and caught up with Crow Lake in the summer of 2019. All four of her books are set in fictional locations inspired by the villages and rural areas of Northern Ontario, where the author grew up before moving to England in 1968. So Solace, while not a real town, is true to her memory and, despite the sometimes gruff or know-it-all locals, an emotional landmark for the three central characters, all of whom are processing trauma and looking for places of comfort where they can start over.
1972. First we meet Clara, a plucky seven-year-old sitting vigil. She’s waiting for the return of two people: her sixteen-year-old sister, Rose, who ran away from home; and their next-door neighbour, Mrs. Orchard, whose cat, Moses, she’s feeding until the old lady gets back from the hospital. As days turn into weeks, though, it seems less likely that either will come home, and one day Clara sees a strange man moving boxes around in Mrs. Orchard’s house. This is Liam Kane, who’s inherited the house from a family friend. In his thirties and recently divorced, he’s taking a break in this tiny town, never imagining that he might find a new life. The third protagonist, and only first-person narrator, is Elizabeth, who lies in a hospital bed with heart trouble and voices her memories as a monologue to her late husband.
As we cycle through these three characters’ perspectives in alternating chapters, we gradually come to understand the connections between them. There are satisfying parallels in that, on multiple occasions but in slightly different ways, a child attaches to an older person or an adult stands in as a guardian for a neglected child. All of Lawson’s creations, even the secondary figures, are dealing with distressing memories or a loss of some kind, the details of which might only emerge much later on. Solace offers myriad opportunities for recovery, whether kitty playtime at Mrs. Orchard’s or diner food and homemade ice cream.
Like Lawson’s other works, this is a slow burner featuring troubled families. Her characters, often full of regret and sorrow, take a shadowy past as a prompt to reset their lives. They’re charming in spite of their flaws. I recalled that Crow Lake also looks back to the climactic happenings experienced by a seven-year-old girl. And like Road Ends, A Town Called Solace makes a convincing case for present decisions being influenced by historical trauma. It’s a tender and inviting story I’d recommend to readers of Wendy McGrath and Anne Tyler, with Clever Girl by Tessa Hadley and Olive, Again by Elizabeth Strout as specific readalikes. (My dilemma now is whether to read my only remaining Lawson novel, The Other Side of the Bridge, right away or save it: she’s not the most prolific author, with four books in 19 years.)
A favorite passage:
[Liam’s] life prior to coming north seemed to be taking on the quality of an old movie, one in which he’d been deeply engrossed while watching it but which now seemed trivial, unconvincing and profoundly lacking in either colour or plot. Solace had colour and plot in spades, maybe too much. In every way it was coming to seem more real than Toronto, with its endless malls and traffic jams and high-powered jobs. Though maybe, if he went back to Toronto, the same would be true in reverse. Maybe when he’d been back for a couple of months he’d find that it was Solace that seemed unreal, its unremarkable streets and stores like something from a dream, its dramatic landscape fading to nothing, like a holiday photo left in the sun.
With thanks to Chatto & Windus for the free copy for review.
The Strays of Paris by Jane Smiley
(Published in the USA in December 2020 under the title Perestroika in Paris. It’s been given a The Boy, the Mole, the Fox and the Horse treatment for its UK release.)
My summary for Bookmarks magazine: “A racehorse, Perestroika—nicknamed Paras—strays from her unlocked suburban stable one day, carrying her groom’s purse in her mouth, and ends up in Paris’s Place du Trocadéro. Here she meets Frida the dog, Sid and Nancy the mallards, and Raoul the raven. Frida, whose homeless owner died, knows about money. She takes euros from the purse to buy food from a local market, while Paras gets treats from a baker on predawn walks. Etienne, an eight-year-old orphan who lives with his ancient great-grandmother, visits the snowy park to feed the wary animals (who can talk to each other), and offers Paras a home. A sweet fable for animal lovers.”
Yes, this is a talking animal book, but the animals only talk to each other; they communicate with humans through their gestures and soulful eyes. Kindly shopkeepers work out what Frida wants to buy based on what she stares at or points to with a paw; the baker whose window Paras passes on her early morning walks intuits that the horse is hungry; Etienne, who gives a couple of the stray animals a home during a chill winter, learns to understand when Paras needs to go out to relieve herself, after piles of dung build up in the sitting room.
I liked how patiently and convincingly Smiley builds the portrait of each character – human or animal – and the overall situation of kindness and good fortune. Raoul is particularly amusing for his birdsplaining: “It is a feature of age. I have learned so many things in my life that they just force their way out of my beak,” he says. However, a crow would be much more realistic for Paris (or any city) than a raven, and, overall, this was a little twee and farfetched for my tastes. It was nice to read something a bit different from Smiley, who I haven’t tried since her Last Hundred Years Trilogy. She has a sideline in YA horse novels; this should probably have been lumped with those. (Annabel liked it a bit more.)
I was sent an unsolicited review copy by Picador/Mantle.
What recent releases can you recommend?
It’s my third time participating in Kate’s Six Degrees of Separation meme (see her introductory post). The challenge starts with Stasiland (2003) by Anna Funder, which I also happened to read recently. While working part-time for an overseas television service in what was once West Berlin, Funder started gathering stories of how ordinary people were put under surveillance and psychologically terrorized by the Stasi, the East German secret police. She molds her travels and her interviewees’ testimonies into riveting stories – though this won the Samuel Johnson Prize for nonfiction in 2004, it’s as character-driven as any novel.
#1 My interest in Stasiland was piqued by reading Sophie Hardach’s Costa Prize-shortlisted novel Confession with Blue Horses (2019). When Ella’s parents, East German art historians under Stasi surveillance, were caught trying to defect during a ‘vacation’ to Hungary in 1987, their three children were taken from them and only two were returned. Ella is determined to find her brother, whom they’ve had no word of since, via a correspondence with the Stasi archive. It’s an emotionally involving story of one ordinary family’s losses and reconstruction.
#2 Blue Horses (2014) is one of Mary Oliver’s lesser poetry collections. I found it to be a desperately earnest and somewhat overbaked set of nature observations and pat spiritual realizations. There are a few poems worth reading (e.g., “After Reading Lucretius, I Go to the Pond” and Part 3 of “The Fourth Sign of the Zodiac”), and lines here and there fit for saving, but overall this is so weak that I’d direct readers to Oliver’s landmark 1980s work instead.
#3 Oliver’s poetry, especially “Wild Geese” and “The Summer Day,” gets quoted everywhere. The latter’s most famous lines, “Tell me, what is it you plan to do / with your one wild and precious life?” appears in Dear Life by Rachel Clarke, my book of 2020 so far. Clarke specializes in palliative medicine and alternates her patients’ stories with her own in a completely natural way. A major theme is her relationship with her late father, also a doctor, and his lessons of empathy and dedication. A passionate yet practical book, this aims to get people talking about end-of-life issues.
#4 I have meant to read Dear Life by Alice Munro (2012) since before she won the Nobel Prize. I was sent a free paperback copy for a Nudge review, but as the site already had a review of the book up, I let it slip and never followed through. More than once I’ve put this short story collection onto a reading stack, but I have never quite gotten past the first page or two. At some point this must be rectified.
#5 Alice Munro is one of the authors featured in Writers & Co. by Eleanor Wachtel (1993), a terrific collection of interviews from Wachtel’s weekly Canadian Broadcasting Corporation radio program. Whether I’d read anything by these authors (or even heard of them) or not, I found each Q&A chock-full of priceless nuggets of wisdom about creativity, mothers and daughters, drawing on autobiographical material, the writing process, and much more.
#6 My first-ever author Q&A, for Bookkaholic in 2013, was related to The End of the Point by Elizabeth Graver. (Alas that the site is now defunct, so the interview only exists as a file on my computer.) In an astonishing historical sweep, from Massachusetts’s first colonial settlers through the cultural upheavals of the twentieth century, Graver’s family saga with a difference questions parent‒child ties, environmental responsibility, and the dictates of wealth and class. Her complex, elegiac tale, reminiscent of Virginia Woolf’s To the Lighthouse and Liza Klaussmann’s Tigers in Red Weather, offers multiple points of view in a sympathetic gaze at a vanishing way of life – but an enduring sense of place.
Join us for #6Degrees of Separation if you haven’t already!
Have you read any of my selections? Are you tempted by any you didn’t know before?
I haven’t done much dipping into 2020 releases yet, but I do have two that I would highly recommend to pretty much anyone, plus some more that are also worth highlighting.
My top recommendations (so far) for 2020:
American Dirt by Jeanine Cummins
[Coming on January 21st from Tinder Press (UK) / Flatiron Books (USA)]
You’ve most likely already heard of this novel about the plight of migrants crossing the U.S. border in search of a better life. What’s interesting is that the main characters are not your typical border crossers: Lydia was a middle-class Acapulco bookshop owner whose journalist husband was murdered for his pieces exposing the local drug cartel. She and her eight-year-old son, Luca, know that the cartel is after them, too, and its informers are everywhere. They join Central American migrants in hopping onto La Bestia, a dangerous freight train network running the length of Mexico. Their fellow travelers’ histories reveal the traumatic situations migrants leave and the hazards they face along the way. Cummins alternates between the compelling perspectives of Lydia and Luca, and the suspense is unrelenting. It feels current and crucial. (My full review will be in Issue 491 of Stylist magazine, so if you are in London or another city that hands it out and can pick up a copy, keep an eye out!)
The Lost Family: How DNA Testing Is Upending Who We Are by Libby Copeland
[Coming on March 3rd from Abrams Press (USA)]
A terrific follow-up to one of my runners-up from last year, Inheritance by Dani Shapiro. I learned that “non-paternity events” such as Shapiro experienced are not as uncommon as you might think. Copeland spoke to scientists, DNA testing companies, and some 400 ordinary people who sent off saliva samples to get their DNA profile and, in many cases, received results they were never expecting. There are stories of secret second families, of people who didn’t find out they were adopted until midlife, and of babies switched at birth. We’ve come a long way since the days when people interested in family history had to trawl through reams of microfilm and wait months or years to learn anything new; nowadays a DNA test can turn up missing relatives within a matter of days. But there are a lot of troubling aspects to this new industry, including privacy concerns, notions of racial identity, and criminal databases. It’s a timely and thought-provoking book, written with all the verve and suspense of fiction.
Also of note (in release date order):
Half Broke: A Memoir by Ginger Gaffney: Horse trainer Gaffney has volunteered at the Delancey Street Foundation’s New Mexico ranch, an alternative prison for drug offenders, for six years. She chronicles how feral horses and humans can help each other heal. Great for fans of Cheryl Strayed. (February 4, W.W. Norton)
Survival Is a Style: Poems by Christian Wiman: Wiman examines Christian faith in the shadow of cancer. This is the third of his books that I’ve read; I’m consistently impressed by how he makes room for doubt, bitterness and irony, yet a flame of faith remains. Really interesting phrasing and vocabulary here. (February 4, Farrar, Straus and Giroux)
Pain Studies by Lisa Olstein: Another in a growing number of hard-hitting books about female pain. Specifically, Olstein has chronic migraines. In these essays she ranges from ancient philosophy to recent television in her references, and from lists of symptoms to poetic descriptions in her format. A little rambly, but stylish nonetheless. (March 4, Bellevue Literary Press)
My Wild Garden: Notes from a Writer’s Eden by Meir Shalev: The Israeli novelist tells of how he took a derelict garden in the Jezreel Valley and made it thrive. He blends botanical knowledge with Jewish folklore. I particularly enjoyed his good-natured feud against his local mole rats. Gentle and charming. (March 31, Shocken)
The Alekizou and His Terrible Library Plot! by Nancy Turgeon: The Alekizou can’t read! Jealous of the fun he sees children having at the library, he breaks in and steals all the vowels. Without them, books and speech don’t make sense. Luckily, the children know sign language and use it to create replacement letters. A fun picture book with rhymes reminiscent of Dr. Seuss, this also teaches children vowels and basic signing. (April 6, CrissCross AppleSauce)
With thanks to the publisher for the free PDF copy for review.
Why We Swim by Bonnie Tsui: A personal history with swimming, but also a wide-ranging study of humans’ relationship with the water – as a source of food, exercise, healing, competition and enjoyment. Tsui meets scientists, coaches, Olympians and record holders, and recounts some hard-to-believe survival tales. (April 14, Algonquin Books)