I’d never participated in Nonfiction November before because I tend to read at least 40% nonfiction anyway, but I couldn’t resist the temptation to put together some fiction and nonfiction pairings based on books I’ve read this year and last. (This week of the month-long challenge is posted by Sarah’s Book Shelves, a blog I love for its no-nonsense recommendations of what to read – and what not to read – from the recent U.S. releases.)
My primary example is two books that reveal what it’s really like to have Alzheimer’s disease. Mitchell’s, in particular, is a book that deserves more attention. When it came out earlier this year, it was billed as the first-ever “dementia memoir” (is that an oxymoron?) – except, actually, there had been one the previous year (whoops!): Memory’s Last Breath by Gerda Saunders, which I have on my Kindle and still intend to read. [See also Kate W.’s picks, which include a pair of books with a dementia theme.]
Still Alice by Lisa Genova (2007)
Genova’s writing, Jodi Picoult-like, keeps you turning the pages; I read 225+ pages in an afternoon. There’s true plotting skill to how Genova uses a close third-person perspective to track the mental decline of Harvard psychology professor Alice Howland, who has early-onset Alzheimer’s disease. “Everything she did and loved, everything she was, required language,” yet her grasp of language becomes ever more slippery even as her thought life remains largely intact. I also particularly enjoyed the descriptions of Cambridge and its weather, and family meals and rituals. There’s a certain amount of suspension of disbelief required – Would the disease really progress this quickly? Would Alice really be able to miss certain abilities and experiences once they were gone? – and ultimately I preferred the 2014 movie version, but this would be a great book to thrust at any caregiver or family member who’s had to cope with dementia in someone close to them.
Other fictional takes on dementia that I can recommend: Unforgettable: Short Stories by Paulette Bates Alden, The Only Story by Julian Barnes, Everything Under by Daisy Johnson and Turn of Mind by Alice LaPlante.
Somebody I Used to Know by Wendy Mitchell with Anna Wharton (2018)
A remarkable insider’s look at the early stages of Alzheimer’s. Mitchell took several falls while running near her Yorkshire home, but it wasn’t until she had a minor stroke in 2012 that she and her doctors started taking her health problems seriously. In July 2014 she got the dementia diagnosis that finally explained her recurring brain fog. She was 58 years old, a single mother with two grown daughters and a 20-year career in NHS administration. Having prided herself on her good memory and her efficiency at everything from work scheduling to DIY, she was distressed that she couldn’t cope with a new computer system and was unlikely to recognize the faces or voices of colleagues she’d worked with for years. Less than a year after her diagnosis, she took early retirement – a decision that she feels was forced on her by a system that wasn’t willing to make accommodations for her.
The book, put together with the help of ghostwriter Anna Wharton, gives a clear sense of progression, of past versus present, and of the workarounds Mitchell uses to outwit her disease. The details and incidents are well chosen to present the everyday challenges of dementia. For instance, baking used to be one of Mitchell’s favorite hobbies, but in an early scene she’s making a cake for a homeless shelter and forgets she’s already added sugar; she weighs in the sugar twice, and the result is inedible. By the time the book ends, not only can she not prepare herself a meal; she can’t remember to eat unless she sets an alarm and barricades herself into the room so she won’t wander off partway through.
In occasional italicized passages Mitchell addresses her past self, running through bittersweet memories of all that she used to be able to do: “It amazes me now how you did it, because you didn’t have anyone to help you. You were Mum, Dad, taxi, chef, counsellor, gardener and housekeeper, all rolled into one.” Yet it’s also amazing how much she still manages to do as an ambassador for the Alzheimer’s Society and Dementia Friends. She crisscrosses the country to give speeches, attend conferences, and advise universities; she writes a blog and has appeared on radio to promote this book. Like many retired people, she’s found she’s busier than ever, and her engagements help her to feel purposeful and like she’s giving a positive impression of early-stage dementia. No matter that she has to rely on dozens of reminders to self in the form of Post-It notes, iPad alarms and a wall of photographs.
The story lines of this and Still Alice are very similar in places – the incidents while running, the inability to keep baking, and so on. And in fact, Mitchell reviewed the film and attended its London premiere, where she met Julianne Moore. Her book is a quick and enjoyable read, and will be so valuable to people looking to understand the experience of dementia. She is such an inspiring woman. I thank her for her efforts, and wish her well. This is one of my personal favorites for the shortlist of next year’s Wellcome Book Prize for medical reads.
Additional pairings I would commend to you (all are books I have read and rated or above):
Talk before Sleep by Elizabeth Berg
Let’s Take the Long Way Home by Gail Caldwell and Truth and Beauty by Ann Patchett
- Celebrating the strength of female friendship, even in the face of life-threatening illness.
Bad News by Edward St. Aubyn
Portrait of an Addict as a Young Man by Bill Clegg
- Vivid portrayals of drug addiction.
Miss Smilla’s Feeling for Snow by Peter Høeg
This Cold Heaven by Gretel Ehrlich
- Armchair traveling in Greenland.
Sweetbitter by Stephanie Danler
Cork Dork by Bianca Bosker
- Glimpses into the high-class world of fine dining – and fine wine.
Dear Fahrenheit 451: Love and Heartbreak in the Stacks by Annie Spence is chock-full of recommendations and reading pairs. The Novel Cure is also good for this sort of thing, though it is (no surprise) overwhelmingly composed of fiction suggestions.