Three memoirs remain on the shortlist; three windows onto living with disability or caring for a relative with an incapacitating mental illness.
First up is a visual artist’s account of growing up with spina bifida, entering Disabled culture, and forming a collaborative style all her own.
Golem Girl: A Memoir by Riva Lehrer (2020)
“My first monster story was Frankenstein,” Lehrer writes. Like Dr. Frankenstein’s creation or the Golem of medieval Jewish legend, she felt like a physical monstrosity in search of an animating purpose. Born with spina bifida, she spent much of her first two years in Cincinnati Children’s Hospital and would endure dozens of surgeries in years to come to repair her spine and urinary tract and attempt to make her legs the same length. In 1958, when she was born, 90% of children with her condition died before age two. Lehrer’s mother, Carole, who grew up in a family pharmacy business and had worked as a medical researcher, was her daughter’s dogged health advocate. Carole fought for Riva even though she was caught up in her own chronic pain after a botched back surgery that left her addicted to painkillers.
Lehrer went to a special school for the disabled in Ohio. It was racially integrated (rare at that time) and offered children physical therapy and normal experiences like Girl Scouts and day camp. But it was clear the teachers didn’t expect these children to achieve anything or have a family life; home ec classes just taught how to wash up from a wheelchair and make meals for one. One horrible day, a substitute teacher locked a classroom door and hectored the children, saying their parents must have drunk and fornicated and they were the wages of sin.
Between the routine or emergency surgeries and family heartaches, Lehrer grew up to attend art school at the University of Cincinnati and Art Institute of Chicago. Professors (most of them male) found her work grotesque and self-indulgent, and she struggled with how to depict her body. There were boyfriends and girlfriends, even a wife (though in the late 1980s, before same-sex marriage was legally recognized). In 1996 she joined the Chicago Disabled Artists Collective and it was a revelation. She learned that Disabled (like Deaf) is a cultural identity as much as a physical reality, adopted vocabulary like crip (a reclaimed term, like queer) and ableism, and began painting fellow artists with dwarfism, prostheses, or wheelchairs.
Becoming a member of the Medical Humanities faculty as well as a visiting artist at two Chicago universities, the School of the Art Institute and Northwestern, gave Lehrer access to Gross Anatomy Labs, where she found in the historical collections – just as she had at the Mütter Museum of medical curiosities in Philadelphia – a fetus in a jar with her very condition. Knowing that she might be the first Disabled person her budding doctors met, she was determined to give them an “inclusive vision” of “the reality of human divergence.” She would have the medical students draw one of the jarred specimens, not as an oddity but as an individual, and give a 15-minute presentation about someone who lives with that disability.
Golem Girl is a touching family memoir delivered in short, essay-like chapters, most of them named after books or films. It is also a primer in Disability theory and – what truly lifts it above the pack – a miniature art gallery, with reproductions of paintings from various of Lehrer’s series as well as self-portraits, family portraits, and photographs. “I fiercely wanted to see a gallery filled with portraits of luminous crips,” she writes; “I suspected I was going to have to make them myself.” And that is just what she has done. The “Circle Stories” featured the Chicago Disabled Artists Collective and “Mirror Shards” included animal daimons, while “The Risk Pictures” of some of her personal heroes were daringly collaborative: she would give the subject an hour alone in her studio with their portrait in progress and allow them to amend it as they wished. Much of her work has bright colors and involves anatomical realism and symbols personal to herself and/or the subject – with Frida Kahlo an acknowledged influence.
I’ve now (just about) read the whole Barbellion Prize shortlist. For how it illuminates a life of being different – through queerness in addition to disability, engages with the academic fields of anatomy and Disability studies, and showcases the achievements of Disabled artists, this would be my clear winner of the inaugural award, with Sanatorium my backup choice. It is also a finalist for the National Book Critics Circle Award for Autobiography.
Readalikes I have also reviewed:
“The hospital demands surrender. You accept the piercing, the cutting, the swallowing of noxious chemicals. You roll over and stand up even when it’s as impossible as flying around the ceiling. Whoever has authority can remove your clothes and display your stitched-up monster body to crowds of young white-coated men. You’re an assemblage of parts that lack gender and those elusive things called feelings.”
“‘Normal’ beauty is unmarked, smooth, shiny, upright; but my gaze began to slip past normal beauty as if it was coated in baby oil. I wanted crip beauty—variant, iconoclastic, unpredictable. Bodies that were lived in with intentionality and self-knowledge. Crip bodies were fresh.”
With thanks to Virago for the free copy for review.
See my introductory post for more about the Barbellion Prize, which is in its first year and will be awarded on Friday “to an author whose work has best represented the experience of chronic illness and/or disability.”
I will review the final two on the shortlist, The Fragments of My Father by Sam Mills and Kika & Me by Amit Patel, tomorrow.
I’m a #6Degrees regular now: this is my fifth time participating. This month (see Kate’s introductory post) we start with Sally Rooney’s Normal People (2018). I loved Conversations with Friends but wasn’t so enamored with Rooney’s second novel (see my review), so I haven’t been tempted to watch the television adaptation; I don’t have a TV anyway.
#1 Picking out one of the words from the book title, and echoing the question that Rooney’s characters seem to be asking themselves, I’ll hop over to a memoir I enjoyed a lot in late 2011, Why Be Happy When You Could Be Normal? by Jeanette Winterson. Adopted into a strict religious household, Winterson had to hide her sexuality. Here you get the full story behind her autobiographical debut novel, Oranges Are Not the Only Fruit.
#2 Adoption is my link to The Leavers by Lisa Ko. When he’s abandoned by his mother, an undocumented Chinese immigrant in the USA, Daniel is adopted by a pair of white professors. This is an achingly beautiful story of searching for a mother and a sense of belonging. It won the 2016 PEN/Bellwether Prize for Socially Engaged Fiction.
#3 Barbara Kingsolver created and funds the biennial Bellwether Prize for unpublished fiction that addresses issues of social justice. I have vague ambitions to read as many Bellwether and Women’s Prize winners as I can. While it’s not one of my favorites by Kingsolver, The Lacuna (2009) won her the (then) Orange Prize. A historical novel, it’s largely set in the household of Diego Rivera and Frida Kahlo.
#4 Frida Kahlo is my link to Constellations by Sinéad Gleeson, autobiographical essays about the female body in pain. Kahlo is one of Gleeson’s gurus in that she turned her chronic pain and pregnancy loss into art – “making wounds the source of inspiration.” Constellations was our Not the Wellcome Prize winner during this hiatus year for the official prize.
#5 The first winner of the Wellcome Book Prize, in 2009, was Keeper by Andrea Gillies, a memoir of her mother-in-law Nancy’s struggle with Alzheimer’s disease. I also intend to read as many WBP winners and nominees as possible, so I recently ordered a secondhand copy of this and read the introduction before setting it aside for another time. Already I can tell it will be an engaging if harrowing book; Gillies pulls no punches in her depiction of the misery of the years when Nancy lived with her family and then in an institution.
[#5.5 Another book called Keeper, this one by Jessica Moor, provides my cheaty half-step. I found this debut novel to be a gripping and grimly fascinating story of why women stay with their abusers and what finally drives them to leave.]
#6 Violence against women is also the theme of The Bass Rock by Evie Wyld, my novel of 2020 so far. While it ranges across the centuries, it always sticks close to the title location, an uninhabited island off the east coast of Scotland. It cycles through its three strands in an ebb and flow pattern that is appropriate to the coastal setting and creates a sense of time’s fluidity. This is not a puzzle book where everything fits together. Instead, it is a haunting echo chamber where elements keep coming back, stinging a little more each time. A must-read, especially for fans of Claire Fuller, Sarah Moss and Lucy Wood. (See my full Shiny New Books review.)
I’ve featured only books by women this month, and there have been quite a number of prize winners in here, too.
Join us for Six Degrees of Separation if you haven’t already!
Have you read any of my selections? Are you tempted by any you didn’t know before?
People end up not having children for any number of reasons: medical issues, bereavement, a lack of finances, not having a partner at the right time, or the simple decision not to become a parent. The subtitle of Lorna Gibb’s Childless Voices acknowledges these various routes: “Stories of Longing, Loss, Resistance and Choice.”
For Gibb, a university lecturer, biographer and novelist, the childless state was involuntary, a result of severe endometriosis that led to infertility and early menopause. Although this has been a source of sadness for her and her husband, she knows that she has it easy compared to women in other parts of the world. Through her research and Skype interviews, she hears horrific stories about infertile women who meet with domestic violence and social ostracism and are sometimes driven to suicide. In Ghana childless women can be branded as witches and exiled. Meanwhile, some are never given the chance to have the children they might long for: Gibb cites China’s one-child policy, female genital mutilation, and enforced sterilization programs like those of the Roma in Yugoslavia and the Quechua in Peru.
Gibb is admirably comprehensive here, considering every possible aspect of childlessness. Particularly interesting are the different cultural adaptations childless women make. Certain countries allow polygamy, giving a second wife a chance to bear children on behalf of an infertile one; Kenya and other parts of sub-Saharan Africa recognize ‘marriages’ between childless women so they can create a family and support system. In Albania being a “sworn virgin” is an old and venerable custom. And, of course, there are any number of support groups and online communities. The situation of those who were once parents but are no longer is especially wrenching. Stillbirth only started to be talked about in the 1980s, Gibb notes, but even today is seen as a lesser loss than that of a child who dies later in life.
The author believes there is societal injustice in terms of who has access to fertility treatment and how the state deals with childless people. In the UK, she characterizes IVF as a “postcode lottery”: where you live often determines how many free cycles you’re entitled to on the NHS. In the USA, meanwhile, fertility treatment is so expensive that only those with a certain level of wealth can consider it. The childless may also feel ‘punished’ by tax breaks that favor parents and workplaces that expect non-parents to work unsociable hours. In a sense, then, the childless contribute more but benefit less.
Chosen childlessness is perhaps given short shrift at just 32 pages out of 239. However, it’s still a very thorough treatment of the reasons why couples decide not to become parents, including cultural norms, career goals, self-knowledge and environmental concerns. No surprise that this was the chapter that resonated with me the most. I also especially enjoyed the personal interludes (all titled “A Short Note on…”) in which Gibb celebrates her feminist, childless heroes like Frida Kahlo and Anaïs Nin and writes about how much becoming a godmother meant to her but also of the sadness of seeing a good friend’s teenage son die of a brain tumor.
By coincidence, I’ve recently read another book on the same topic: Do You Have Kids? Life when the Answer Is No, by Kate Kaufmann (coming out in America next month). Gibb primarily traces the many different reasons for childlessness; Kaufmann mostly addresses the question of “now what?” – how women without children approach careers, wider family life, housing options, spirituality and the notion of leaving a legacy. Gibb’s approach is international and comparative, while Kaufmann’s is largely specific to the USA. Though the two authors are childless due to endometriosis and infertility, they feel sisterhood with women who never became mothers for whatever reason. I’d say these two books are complementary rather than rivals, and reveal valuable perspectives that can sometimes be overlooked.
Childless Voices was published by Granta on February 7th. My thanks to the publisher for the free copy for review.
I was a veritable social butterfly this past week: I went out two evenings in a row! (Believe me, that’s rare.) On Tuesday I met up with bloggers Annabel, Eric and Kim at the Faber Spring Party held at Crypt on the Green in London, and on Wednesday my husband and I attended a performance at the University of Reading of Michael Mears’s one-man play on the plight of Britain’s conscientious objectors during World War I, This Evil Thing.
Faber Spring Party
I’ve never been to an event quite like this. Publisher Faber & Faber, which will be celebrating its 90th birthday in 2019, previewed its major releases through to September. Most of the attendees seemed to be booksellers and publishing insiders. Drinks were on a buffet table at the back; books were on a buffet table along the side. Glass of champagne in hand, it was time to plunder the free books on offer. I ended up taking one of everything, with the exception of Rachel Cusk’s trilogy: I couldn’t make it through Outline and am not keen enough on her writing to get an advanced copy of Kudos, but figured I might give her another try with the middle book, Transit.
For the evening’s presentation, each featured author had a few minutes to introduce their new book and/or give a short reading.
Rachel Cusk opened the evening with a reading from Kudos. If you’re familiar with her recent work, you won’t be surprised at this synopsis: a man on a plane recounts having his dog put to sleep. (Out on May 3rd.)
William Atkins’s book on deserts, The Immeasurable World, is based on three years of travel and is, he is not ashamed to say, in the old-fashioned travel writing tradition. (Out on June 7th.)
Hannah Sullivan’s Three Poems is a hybrid work of poem-essays. #2 is more philosophical, she said; #3 is about her father’s death and her son’s birth. She read sonnet 3.21. (Out now.)
Clémentine Beauvais’s In Paris with You is a YA romance in free verse, loosely based on Eugene Onegin. I don’t know the source text but started this on the train ride home and it’s enjoyable thus far. I’m in awe at how translator Sam Taylor has taken the French of her Songe à la douceur and turned it into English poetry. (Out on June 7th.)
Chris Power’s Mothers is a book of linked short stories, three of which are about a character named Eva. He read a portion of a story about her having an encounter with an unpleasant man in Innsbruck. (Out on March 1st.)
Elise Valmorbida’s The Madonna of the Mountains, set in 1923–50, is a saga that resembles “an Italian Mother Courage,” she says. She read a scene in which a character comes across a madwoman. (Out on April 5th.)
Zaffar Kunial read the poem “Spark Hill” from his forthcoming collection Us. It’s about a childhood fight in the area of Birmingham where he grew up. He had a folder open in front of him but, impressively, recited the long poem completely from memory. (Out on July 5th.)
American novelist Benjamin Markovits was a professional basketball player in Germany for six months. Like the tennis-playing protagonist of his upcoming book, A Weekend in New York, he got tired of being measured. After 15 years, his hero is eager to escape a life of being constantly ranked. This is the first in a quartet of novels that inevitably invites comparison with John Updike’s “Rabbit” books. (Out on June 7th.)
I confess I didn’t previously know the name Viv Albertine; she was the guitarist for the female punk band The Slits, and To Throw Away Unopened is her second memoir. Albertine realized that it was her mother who had made her an angry rebel; the title is the label on a bag she found in her mother’s room after her death. (Out on April 5th.)
Sophie Collins incorporates hybrid forms in her poetry – what she calls “lyric essays.” The theme of her book Who Is Mary Sue? is perceptions of women’s writing (with “Mary Sue” as a metonym for the stereotypical good girl). She read from “Engine.” (Out now.)
Katharine Kilalea’s debut novel Ok, Mr Field is about an injured concert pianist who becomes obsessed with a house he buys in South Africa. (Out on June 7th.)
Elizabeth Foley and Beth Coates are the authors of two Homework for Grown-Ups books. Their new book, What Would Boudicca Do?, is about lessons we can draw from the women of history. For instance, the sampler booklet has pieces called “Dorothy Parker and Handling Jerks” and “Frida Kahlo and Finding Your Style.” There’s a heck of a lot of books like this out this year, though, and I’m not so sure this one will stand out. (Out on September 6th.)
Richard Scott read two amazingly intimate poems from his upcoming collection, Soho. One, “cover-boys,” was about top-shelf gay porn; the other was about mutilated sculptures of male bodies in the Athens archaeological museum. If you appreciated Andrew McMillan’s Physical, you need to get hold of this the second it comes out. I went back and read “cover-boys” in the sampler booklet and it wasn’t nearly as powerful as it was aloud; Scott’s reading really brought it to life, in contrast to some other authors’ dull delivery. (Out on April 5th.)
Sue Prideaux’s forthcoming biography of Friedrich Nietzsche is entitled I Am Dynamite! She encountered her subject when she wrote her first biography, of Edvard Munch. Although Nietzsche has been embraced by far-right groups in America, he was in fact against racism, nationalism, and anti-semitism, so he has important messages for us today. I’ll be keen to get hold of this one. (Out on September 6th.)
Guitar in hand, Willy Vlautin closed the evening with a performance of the title track from the soundtrack album to his fifth novel, Don’t Skip Out on Me – he was the singer in Portland, Oregon alt-country band Richmond Fontaine, which has recently stopped touring. He said the novel asks, “can you make the scars of broken people bearable?” (Out now.)
Now that I’ve got this terrific stack of books, wherever do I start?! I’m currently reading the Beauvais; from there I’ll focus on ones that have already been released, starting with Vlautin and the two poetry collections. The titles that aren’t out until June can probably wait – though it’s tempting to be one of the privileged few who get to read them nearly four months early. One Faber book per week should see me getting through all these by the final release date.
This Evil Thing
Michael Mears plays about 50 different characters in this one-man production. He’s an actor and pacifist who has written a number of solo pieces over 20 years. In this commemorative year of the end of the First World War, he knew we would hear a lot about battles, soldiers, and their families back home. But conscientious objectors weren’t likely to be remembered: theirs is a “story that’s rarely told,” he realized. This Evil Thing sets out to correct that omission. The title phrase refers not to war in general but specifically to conscription.
The two main characters Mears keeps coming back to in the course of the play are Bert Brocklesby, a Yorkshire preacher, and philosopher Bertrand Russell. Brocklesby refused to fight and, when he and other COs were shipped off to France anyway, resisted doing any work that supported the war effort, even peeling the potatoes that would be fed to soldiers. He and his fellow COs were beaten, placed in solitary confinement, and threatened with execution. Meanwhile, Russell and others in the No-Conscription Fellowship fought for their rights back in London. There’s a wonderful scene in the play where Russell, clad in nothing but a towel after a skinny dip, pleads with Prime Minister Asquith.
As in solo shows I’ve seen before (e.g. A Christmas Carol with Patrick Stewart), Mears had to find subtle ways to distinguish between characters: he used a myriad different voices, including regional accents; he quickly donned a jacket, hat, or pair of glasses. Russell was identified by his ever-present pipe. The most challenging scene, Mears said in the Q&A at the end, was one with four characters in a French street café.
Mears reveals during the play that his grandfather fought in WWI and his father in WWII, but he has never had to put his own pacifist views to the test. What about Hitler? people always ask. Mears is honest and humble enough to admit that he doesn’t know what he would have done had he been called on to fight Hitler, or had he faced persecution as a CO in WWI. Ultimately, what Mears hopes audiences take from his play, which won acclaim at the Edinburgh Festival Fringe, is that “this is not an irrelevant piece of history.” Standing up for what you believe in, especially if it goes against the spirit of the times, is always valuable.