Tag Archives: chronic illness

Some of My Most Anticipated Releases of 2022

Ninety-nine 2022 releases have made it onto my Goodreads shelves so far. I’ve read about 10 already and will preview some of them tomorrow.

This year we can expect new fiction from Julian Barnes, Carol Birch, Jessie Burton, Jennifer Egan, Karen Joy Fowler, David Guterson, Sheila Heti, John Irving (perhaps? at last), Liza Klaussman, Benjamin Myers, Julie Otsuka, Alex Preston and Anne Tyler; a debut novel from Emilie Pine; second memoirs from Amy Liptrot and Wendy Mitchell; another wide-ranging cultural history/self-help book from Susan Cain; another medical history from Lindsey Fitzharris; a biography of the late Jan Morris; and much more. (Already I feel swamped, and this in a year when I’ve said I want to prioritize backlist reads! Ah well, it is always thus.)

I’ve limited myself here to the 20 upcoming releases I’m most excited about. The low figure is a bit of a cheat: with a few exceptions, I’ve not included books I have / have been promised. I’ll be scurrying around requesting copies of most of the others soon. The following are due out between January and August and are in (UK) release date order, within sections by genre. (U.S. details given too/instead if USA-only. Quotes are extracted from publisher blurbs on Goodreads.)

U.S. covers – included where different – rule!

N.B. Fiction is winning this year!

 

Fiction

To Paradise by Hanya Yanagihara [Jan. 11, Picador / Doubleday] You’ll see this on just about every list; her fans are legion after the wonder that was A Little Life. Another doorstopper, but this time with the epic reach to justify the length: sections are set in an alternative 1893, 1993, and 2093 – “joined in an enthralling and ingenious symphony, as recurring notes and themes deepen and enrich one another.” [Proof copy]

 

UK cover

How High We Go in the Dark by Sequoia Nagamatsu [Jan. 18, Bloomsbury / William Morrow] Amazing author name! Similar to the Yanagihara what with the century-hopping and future scenario, a feature common in 2020s literature – a throwback to Cloud Atlas? I’m also reminded of the premise of Under the Blue, one of my favourites from last year. “Once unleashed, the Arctic Plague will reshape life on Earth for generations to come.”

 

Heartstopper, Volume 5 by Alice Oseman [Feb. ?, Hodder Children’s] I devoured the first four volumes of this teen comic last year. In 2020, Oseman tweeted that the fifth and final installment was slated for February 2022, but I don’t have any more information than that. Nick will be getting ready to go off to university, so I guess we’ll see how he leaves things with Charlie and whether their relationship will survive a separation. (No cover art yet.)

 

How Strange a Season by Megan Mayhew Bergman [March 29, Scribner] I enjoyed her earlier story collection, Almost Famous Women. “Bergman portrays women who wrestle with problematic inheritances: a modern glass house on a treacherous California cliff, a water-starved ranch, an abandoned plantation on a river near Charleston … provocative prose asks what are we leaving behind for our ancestors … what price will they pay for our mistakes?”

 

A Violent Woman by Ayana Mathis [April 7, Hutchinson] Her Oprah-approved 2013 debut, The Twelve Tribes of Hattie, got a rare 5-star review from me. About “an estranged mother and her daughter. Dutchess lives in Bonaparte, Alabama, a once thriving black town now in its death throes. Lena lives in Philadelphia in the 1980s. Her involvement with the radical separatist group STEP leads to transcendence and tragedy.” (No cover art yet.)

 

there are more things by Yara Rodrigues Fowler [April 28, Fleet] I so wanted her 2019 debut novel, Stubborn Archivist, to win the Young Writer of the Year Award. I love the cover and Hamlet-sourced title, and I’m here for novels of female friendship. “In January 2016, Melissa [South London native] and Catarina [born to well-known political family in Brazil] meet for the first time, and as political turmoil unfolds … their friendship takes flight.”

 

UK cover

Sea of Tranquility by Emily St. John Mandel [April 28, Picador / April 5, Knopf] This is the other title you’ll find on everyone else’s list. That’s because The Glass Hotel, even more so than Station Eleven, was amazing. Another history-to-future-hopper: “a novel of art, time, love, and plague that takes the reader from Vancouver Island in 1912 to a dark colony on the moon three hundred years later, unfurling a story of humanity across centuries and space.” [Edelweiss download]

 

Search by Michelle Huneven [April 28, Penguin] A late addition to my list thanks to the Kirkus review. Sounds like one for readers of Katherine Heiny! “Dana Potowski is a restaurant critic and food writer … asked to join [her California Unitarian Universalist] church search committee for a new minister. Under pressure to find her next book idea, she agrees, and resolves to secretly pen a memoir, with recipes, about the experience.”

 

UK cover

Very Cold People by Sarah Manguso [April 28, Picador / Feb. 8, Hogarth] The debut novel from an author by whom I’ve read four nonfiction works. “For Ruthie, the frozen town of Waitsfield, Massachusetts, is all she has ever known. Once home to the country’s oldest and most illustrious families[,] … it is an unforgiving place awash with secrets. … Ruthie slowly learns how the town’s prim facade conceals a deeper, darker history…”

 

UK cover

True Biz by Sara Nović [May 5, Little, Brown / April 5, Random House] Her 2015 Girl at War is one of my most-admired debuts of all time, and who can resist a campus novel?! “The students at the River Valley School for the Deaf just want to hook up, pass their history final, and have doctors, politicians, and their parents stop telling them what to do with their bodies. This revelatory novel plunges readers into the halls of a residential school for the deaf.”

 

You Have a Friend in 10a: Stories by Maggie Shipstead [May 19, Transworld / May 17, Knopf] Shipstead’s Booker-shortlisted doorstopper, Great Circle, ironically, never took off for me; I’m hoping her short-form storytelling will work out better. “Diving into eclectic and vivid settings, from an Olympic village to a deathbed in Paris to a Pacific atoll, … Shipstead traverses ordinary and unusual realities with cunning, compassion, and wit.”

 

UK cover

Horse by Geraldine Brooks [June 2, Little, Brown / June 14, Viking] You guessed it, another tripartite 1800s–1900s–2000s narrative! With themes of slavery, art and general African American history. I’m not big on horses, at least not these days, but Brooks’s March and Year of Wonders are among my recent favourites. “Based on the remarkable true story of the record-breaking thoroughbred, Lexington, who became America’s greatest stud sire.”

 

UK cover

Briefly, a Delicious Life by Nell Stevens [June 23, Picador / June 21, Scribner] I’ve read her two previous autofiction-y memoirs and loved Mrs Gaskell & Me. The title, cover and Victorian setting of her debut novel beckon. “In 1473, fourteen-year-old Blanca dies in a hilltop monastery in Mallorca. Nearly four hundred years later, when George Sand, her two children, and her lover Frederic Chopin arrive in the village, Blanca is still there: a spirited, funny, righteous ghost.”

 

A Brief History of Living Forever by Jaroslav Kalfar [Aug. 4, Sceptre / Little, Brown] His Spaceman of Bohemia (2017) was terrific. “When Adela discovers she has a terminal illness, her thoughts turn to Tereza, the American-raised daughter she gave up at birth. … In NYC, Tereza is … the star researcher for two suspicious biotech moguls hellbent on developing a ‘god pill’ to extend human life indefinitely. … Narrated from the beyond by Adela.”

 

Nonfiction

The Cure for Sleep by Tanya Shadrick [Jan. 20, Weidenfeld & Nicolson] Nature memoir / self-help. “On return from near-death, Shadrick vows to stop sleepwalking through life. … Around the care of young children, she starts to play with the shape and scale of her days: to stray from the path, get lost in the woods, make bargains with strangers … she moves beyond her respectable roles as worker, wife and mother in a small town.” [Review copy]

 

The Invisible Kingdom: Reimagining Chronic Illness by Meghan O’Rourke [March 1, Riverhead] O’Rourke wrote one of the best bereavement memoirs ever. This ties in with my medical interests. “O’Rourke delivers a revelatory investigation into this elusive category of ‘invisible’ illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal.”

 

UK cover

In Love: A Memoir of Love and Loss by Amy Bloom [April 7, Granta / March 8, Random House] The true story of how Bloom accompanied her husband Brian, who had Alzheimer’s, to Dignitas in Switzerland to end his life. I’ve read quite a lot around assisted dying. “Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.”

 

Home/Land: A Memoir of Departure and Return by Rebecca Mead [April 21, Grove Press UK / Feb. 8, Knopf] I enjoyed Mead’s bibliomemoir on Middlemarch. The Anglo-American theme is perfect for me: “drawing on literature and art, recent and ancient history, and the experience of encounters with individuals, environments, and landscapes in New York City and in England, Mead artfully explores themes of identity, nationality, and inheritance.”

 

UK cover

Lost & Found: A Memoir by Kathryn Schulz [April 28, Picador / Jan. 20, Random House] I loved her 2010 book Being Wrong, and bereavement memoirs are my jam. “Eighteen months before Kathryn Schulz’s father died, she met the woman she would marry. In Lost & Found, she weaves the story of those relationships into a brilliant exploration of the role that loss and discovery play in all of our lives … an enduring account of love in all its many forms.”

 

Poetry

Inside the Storm I Want to Touch the Tremble by Carolyn Oliver [Aug. 19, Univ. of Utah Press] Carolyn used to blog at Rosemary and Reading Glasses. The poems she’s shared on social media are beautiful, and I’m proud of her for winning the Agha Shahid Ali Prize. “Inside this debut collection, girlhood’s dangers echo, transmuted, in the poet’s fears for her son. A body … is humbled by chronic illness. Stumbling toward joy across time and space, these poems hum with fear and desire, bewildering loss, and love’s lush possibilities.”

 

Themes arising: crossing three centuries; H & I titles, the word “brief”; moons and stars on covers. Mostly female authors (only two men here).

 

Do check out these other lists for more ideas!

Callum’s

Kate’s

Kirkus

Laura’s

Paul’s

Rachel’s

Plus you can seek out all the usual lists (e.g. on Lit Hub and virtually every other book or newspaper site) … if you want to be overwhelmed!

 

What catches your eye here?
What other 2022 titles do I need to know about?

The Barbellion Prize 2021 Longlist

This is the second year that the Barbellion Prize will be awarded “to an author whose work has best represented the experience of chronic illness and/or disability.” It was a joy to read the entire shortlist for the inaugural prize this past February and support the well-deserved win of Riva Lehrer for Golem Girl. I’ll be following the 2021–22 race with interest again, not least because one of the three judges is a long-time blogger friend of mine, Eleanor Franzen.

This year’s longlist looks fascinating: it contains fiction, poetry and memoir, and includes two works in translation. I happen to have already read the three nonfiction selections, but hadn’t heard of the other nominees.


Click on any title below for more information from the publisher website.

 

Ultimatum Orangutan by Khairani Barokka (Nine Arches Press)

From the synopsis: “Barokka’s second poetry collection is an intricate exploration of colonialism and environmental injustice … Through these defiant, potent verses, the body—particularly the disabled body—is centred as an ecosystem in its own right.”

 

What Willow Says by Lynn Buckle (Époque Press)

From the synopsis: “Sharing stories of myths, legends and ancient bogs, a deaf child and her grandmother experiment with the lyrical beauty of sign language. A poignant tale of family bonding and the quiet acceptance of change.”

 

A Still Life: A Memoir by Josie George (Bloomsbury)
Excerpt from my TLS review: Chronic illness long ago reduced George’s territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto her quiet existence as well as the turning of the seasons. (One of my favourites of the year.)

 

I Live a Life Like Yours: A Memoir by Jan Grue (Farrar, Straus and Giroux, and Pushkin Press). Translated by B. L. Crook
Excerpt from my Shelf Awareness review: The University of Oslo professor was diagnosed with spinal muscular atrophy at age three and relies on an electric wheelchair. In his powerful, matter-of-fact memoir, he alternates between his own story and others’, doctors’ reports and theorists’ quotations, mingling the academic and the intimate.

 

Ill Feelings by Alice Hattrick (Fitzcarraldo Editions)
Excerpt from my blog review: Hattrick and their mother share a ME/CFS diagnosis. The book searches desultorily for medical answers but ultimately rests in mystery. Into a family story, Hattrick weaves the lives and writings of chronically ill women such as Elizabeth Barrett Browning, Alice James and Virginia Woolf.

 

The Coward by Jarred McGinnis (Canongate)

​From the synopsis: “After a car accident Jarred discovers he’ll never walk again. … Add in a shoplifting habit, an addiction to painkillers and the fact that total strangers now treat him like he’s an idiot, it’s a recipe for self-destruction. How can he stop himself careering out of control?”

 

Duck Feet by Ely Percy (Monstrous Regiment)
From the synopsis: “A coming-of-age novel, set in the mid-noughties in Renfrew and Paisley, Scotland. … This book is a celebration of youth in an ever-changing world. It uses humour to tackle hard-hitting subjects such as drugs, bullying, sexuality, and teenage pregnancy.”

 

Elena Knows by Claudia Piñeiro (Charco Press). Translated by Frances Riddle

From the synopsis: “After Rita is found dead in the bell tower of the church she used to attend, the official investigation into the incident is quickly closed. Her sickly mother is the only person still determined to find the culprit.”

 

I’m most keen to read Ultimatum Orangutan (that title!), but would gladly read any of the new-to-me titles. The shortlist will be announced in January 2022.

 

Do any of the nominees appeal to you?

#NonFicNov Catch-Up 2: Abbs, Hattrick, Powles, DAD Anthology, Santhouse

I’m sneaking in with five more review books on the final day of Nonfiction November, after a first catch-up earlier on in the month. Today I have a sprightly travel book based on the journeys of female writers and artists, a probing account of repeated chronic illness in the family, an anthology of essays showcasing the breadth of fatherhood experiences, a lyrical memoir-in-essays exploring racial identity, and a psychiatrist’s case studies of how the mind influences what the body feels. My apologies to the publishers for the brief responses.

 

Windswept: Walking in the footsteps of remarkable women by Annabel Abbs

After a fall landed her in hospital with a cracked skull, Abbs couldn’t wait to roam again and vowed all her future holidays would be walking ones. What time she had for pleasure reading while raising children was devoted to travel books; looking at her stacks, she realized they were all by men. Her challenge to self was to find the women and recreate their journeys. I was drawn to this because I’d enjoyed Abbs’s novel about Frieda Lawrence and knew she was the subject of the first chapter here. During research for Frieda, Abbs omitted the Lawrences’ six-week honeymoon in the German mountains, so now she makes it a family cycling holiday, imitating Frieda’s experience by walking in a skirt and sunbathing nude. Other chapters follow Welsh painter Gwen John in Bordeaux, Nan Shepherd in Scotland, Georgia O’Keeffe in the American Southwest, and so on. Questions of risk and compulsion recur as Abbs asks how these women sought to achieve liberation. The interplay between biographical information and travel narrative is carefully controlled, but somehow this never quite came together for me in the way that, for instance, Sara Wheeler’s O My America! did.

(Two Roads, June 2021.) With thanks to the publisher for the free copy for review.

 

Ill Feelings by Alice Hattrick

“My mother and I have symptoms of illness without any known cause,” Hattrick writes. When they showed signs of the ME/CFS their mother had suffered from since 1995, it was assumed there was imitation going on – that a “shared hysterical language” was fuelling their continued infirmity. It didn’t help that both looked well, so could pass as normal despite debilitating fatigue. Into their own family’s story, Hattrick weaves the lives and writings of chronically ill women such as Elizabeth Barrett Browning (see my review of Fiona Sampson’s biography, Two-Way Mirror), Alice James and Virginia Woolf. All these figures knew that what Hattrick calls “crip time” is different: more elastic; about survival rather than achievement.

The book searches desultorily for answers – could this have something to do with Giardiasis at age two? – but ultimately rests in mystery. ME/CFS patients rarely experience magical recovery, instead exhibiting repeated cycles of illness and being ‘well enough’. Hattrick also briefly considers long Covid as another form of postviral syndrome. My mother had fibromyalgia for years, so I’m always interested to read more about related illnesses. Earlier in the year I read Tracie White’s Waiting for Superman, and this also reminded me of Suzanne O’Sullivan’s books, though it’s literary and discursive rather than scientific.

(Fitzcarraldo Editions, August 2021.) With thanks to the publisher for the free copy for review.

 

Small Bodies of Water by Nina Mingya Powles

I loved Powles’s bite-size food memoir, Tiny Moons. She won the inaugural Nan Shepherd Prize for underrepresented voices in nature writing for this work in progress, and I was eager to read more of her autobiographical essays. Watery metaphors are appropriate for a poet’s fluid narrative about moving between countries and identities. Powles grew up in a mixed-race household in New Zealand with a Malaysian Chinese mother and a white father, and now lives in London after time spent in Shanghai. Water has been her element ever since she learned to swim in a pool in Borneo, where her grandfather was a scholar of freshwater fish.

The book travels between hemispheres, seasons and languages, and once again food is a major point of reference. “I am the best at being alone when cooking and eating a soft-boiled egg,” she writes. Many of the essays are in short fragments – dated, numbered or titled. A foodstuff or water body (like the ponds at Hampstead Heath) might serve as a link: A kōwhai tree, on which the unofficial national flower of New Zealand grows, when encountered in London, collapses the miles between one home and another. Looking back months later (given I failed to take notes), this evades my grasp; it’s subtle, slippery but admirable.

(Canongate, August 2021.) With thanks to the publisher for the free copy for review.

 

DAD: Untold Stories of Fatherhood, Love, Mental Health and Masculinity, edited by Elliott Rae

Music.Football.Fatherhood, a British equivalent of Mumsnet, brings dads together in conversation. These 20 essays by ordinary fathers run the gamut of parenting experiences: postnatal depression, divorce, single parenthood, a child with autism, and much more. We’re used to childbirth being talked about by women, but rarely by their partners, especially things like miscarriage, stillbirth and trauma. I’ve already written on Michael Johnson-Ellis’s essay on surrogacy; I also found particularly insightful R.P. Falconer’s piece on trying to be the best father he can be despite not having a particularly good role model in his own absent father, and Sam Draper’s on breaking the mould as a stay-at-home dad (“the bar for expectations regarding fathers is low, very low”) – I never understood how parental leave works in the UK before reading this. The book is full of genial and relatable stories and half or more of its authors are non-white. It could do with more rigorous editing to get the grammar and writing style up to the standard of traditionally published work, but even for someone like me who is not in the target audience it was an enjoyable set of everyday voices.

(Music.Football.Fatherhood, June 2021.) With thanks for the free copy for review. 

 

Head First: A Psychiatrist’s Stories of Mind and Body by Alastair Santhouse

Santhouse is a consultant psychiatrist at London’s Guy’s and Maudsley hospitals. This book was an interesting follow-up to Ill Feelings (above) in that the author draws an important distinction between illness as a subjective experience and disease as an objective medical reality. Like Abdul-Ghaaliq Lalkhen does in Pain, Santhouse adopts a biopsychosocial approach: “to focus solely on the scientific and neglect he social aspects of illness is a mistake that we continue to make,” he says. Using a patchwork of anonymous case studies, he delves into topics like depression, altruism, obesity, self-diagnosis, medical mysteries, evidence-based medicine, and preparation for death. A discussion of CFS again echoes the Hattrick. He brings the picture up to date with a final chapter on Covid-19. I’ve read so many doctors’ memoirs that this one didn’t stand out for me at all, but those less familiar with the subject matter could find it a good introduction to some ins and outs of mind–body medicine.

(Atlantic Books, July 2021.) With thanks to the publicist for the free copy for review.

 

Would you be interested in reading one or more of these?

Ethan Frome by Edith Wharton (#NovNov Classics Week Buddy Read)

For the short classics week of Novellas in November, our buddy read is Ethan Frome by Edith Wharton (1911). You can download the book for free from Project Gutenberg here if you’d still like to join in.

Did you have to read Ethan Frome in school? For American readers, it’s likely that it was an assigned text in high school English. I didn’t happen to read it during my school days, but caught up in 2006 or 2008, I think, and was impressed with this condensed tragedy and the ambiance of a harsh New England winter. It struck me even more on a reread as a flawless parable of a man imprisoned by circumstance and punished for wanting more.

I had forgotten that the novella is presented as a part-imagined reconstruction of the sad events of Ethan Frome’s earlier life. A quarter-century later, the unnamed narrator is in Wharton’s fictional Starkfield, Massachusetts on business, and hears the bare bones of Ethan’s story from various villagers before meeting the man himself. Ethan, who owns a struggling sawmill, picks up extra money from odd jobs. He agrees to chauffeur the narrator to engineering projects in his sleigh, and can’t conceal his jealousy at a technical career full of travel – a reminder of what could have been had he been able to continue his own scientific studies. A blizzard forces the narrator to stay overnight in Ethan’s home, and the step over the threshold sends readers back in time to when Ethan was a young man of 28.

 

*There are SPOILERS in the following.*


Ethan’s household contains two very different women: his invalid wife, Zeena, eight years his elder; and her cousin, Mattie Silver, who serves as her companion and housekeeper. Mattie is dreamy and scatter-brained – not the practical sort you’d want in a carer role, but she had nowhere else to go after her parents’ death. She has become the light of Ethan’s life. By contrast, Zeena is shrewish, selfish, lazy and gluttonous. Wharton portrays her as either pretending or exaggerating about her chronic illness. Zeena has noticed that Ethan has taken extra pains with his appearance in the year since Mattie came to live with them, and conspires to get rid of Mattie by getting a new doctor to ‘prescribe’ her a full-time servant.

The plot turns on an amusing prop, “Aunt Philura Maple’s pickle-dish.” While Zeena is away for her consultation with Dr. Buck, Ethan and Mattie get one evening alone together. Mattie lays the table nicely with Zeena’s best dishes from the china cabinet, but at the end of their meal the naughty cat gets onto the table and knocks the red glass pickle dish to the floor, where it smashes. Before Ethan can obtain glue to repair it in secret, Zeena notices and acts as if this never-used dish was her most prized possession. She and Ethan are both to have what they most love taken away from them – but at least Ethan’s is a human being.

I had remembered that Ethan fell in love with a cousin (though I thought it was his cousin) and that there is a dramatic sledding accident. What I did not remember, however, was that the crash is deliberate: knowing they can never act on their love for each other, Mattie begs Ethan to steer them straight into the elm tree mentioned twice earlier. He dutifully does so. I thought I recalled that Mattie dies, while he has to live out his grief ever more. I was gearing myself up to rail against the lingering Victorian mores of the time that required the would-be sexually transgressing female to face the greatest penalty. Instead, in the last handful of pages, Wharton delivers a surprise. When the narrator enters the Frome household, he meets two women. One is chair-bound and sour; the other, tall and capable, bustles about getting dinner ready. The big reveal, and horrible irony, is that the disabled woman is Mattie, made bitter by suffering, while Zeena rose to the challenges of caregiving.

Ethan is a Job-like figure who lost everything that mattered most to him, including his hopes for the future. Unlike the biblical character, though, he finds no later reward. “Sickness and trouble: that’s what Ethan’s had his plate full up with, ever since the very first helping,” as one of the villagers tells the narrator. “He looks as if he was dead and in hell now!” the narrator observes. This man of sorrow is somehow still admirable: he and Zeena did the right thing in taking Mattie in again, and even when at his most desperate Ethan refused to swindle his customers to fund an escape with Mattie. In the end, Mattie’s situation is almost the hardest to bear: she only ever represented sweetness and love, and has the toughest lot. In some world literature, e.g. the Russian masters, suicide might be rendered noble, but here its attempt warrants punishment.

{END OF SPOILERS.}

 

I can see why some readers, especially if encountering this in a classroom setting, would be turned off by the bleak picture of how the universe works. But I love me a good classical tragedy, and admired this one for its neat construction, its clever use of foreshadowing and dread, its exploration of ironies, and its use of a rustic New England setting – so much more accessible than Wharton’s usual New York City high society. The cozy wintry atmosphere of Little Women cedes to something darker and more oppressive; “Guess he’s been in Starkfield too many winters,” a neighbor observes of Ethan. I could see a straight line from Jude the Obscure through Ethan Frome to The Great Gatsby: three stories of an ordinary, poor man who pays the price for grasping for more. I reread this in two sittings yesterday morning and it felt to me like a perfect example of how literature can encapsulate the human condition.

(Secondhand purchase) [181 pages]

 

My original rating (c. 2008):

My rating now:

 

Keep in touch via Twitter (@bookishbeck / @cathy746books) and Instagram (@bookishbeck / @cathy_746books), using the hashtag #NovNov. We’ll add any of your review links in to our master posts.

The Best Books from the First Half of 2021

Hard to believe we’ve already crossed the midpoint of the year. My top 20 releases of 2021 thus far, in alphabetical order within genre (fiction is dominating this year!), are below. I link to those I’ve already reviewed in full here or on Goodreads:

 

Fiction

Under the Blue by Oana Aristide: Fans of Station Eleven, this one’s for you: the best dystopian novel I’ve read since Mandel’s. Aristide started writing in 2017, and unknowingly predicted a much worse pandemic than Covid-19. In July 2020, Harry and sisters Ash and Jessie are among mere thousands of survivors worldwide. Their plan is to flee England for Uganda, out of range of Europe’s at-risk nuclear reactors. An epic road trip ensues. A propulsive cautionary tale that also reminded me of work by Louisa Hall and Maja Lunde.

 

The Push by Ashley Audrain: Blythe Connor, living alone with her memories, ponders what went wrong with her seemingly perfect family: a handsome architect husband, Fox, and their daughter Violet and baby son Sam. How much of what happened was because of Violet’s nature, and how much was Blythe’s fault for failing to be the mother the girl needed? The fact that her experience with Sam was completely different makes her feel ambivalent about motherhood. A cracking psychological thriller with an unreliable narrator.

 

A Lie Someone Told You About Yourself by Peter Ho Davies: Davies’ minimalist approach – short sections skating over the months and years, wryly pulling out representative moment – crystallizes fatherhood, illuminating its daily heartaches and joys. The tone is just right in this novella, showing both sides of parenthood and voicing things you aren’t allowed to think, or at least not to admit to, starting with abortion, which would-be fathers aren’t expected to have strong feelings about. I loved the rumination on the role that chance plays in a life.

 

The Living Sea of Waking Dreams by Richard Flanagan: Extinction, personal and global, is at the heart of this timely and enchanting story. It starts off as a family drama. Francie, the 86-year-old matriarch, is in a Tasmanian hospital after a brain bleed. Her three middle-aged children can’t bear to let her go. In an Australia blighted by bushfires, species loss mirrors Francie’s physical and mental crumbling. Smartphone addiction threatens meaningful connection. And then characters start to literally disappear, part by part…

 

Mrs Death Misses Death by Salena Godden: Grief Is the Thing with Feathers meets Girl, Woman, Other would be my marketing shorthand for this one. Poet Salena Godden’s debut novel is a fresh and fizzing work, passionate about exposing injustice but also about celebrating simple joys, and in the end it’s wholly life-affirming despite a narrative stuffed full of deaths real and imagined. The novel balances the cosmic and the personal through Wolf’s family story. Unusual, musical, and a real pleasure to read.

 

Early Morning Riser by Katherine Heiny: This tickled my funny bone. A cross between Kitchens of the Great Midwest and Olive Kitteridge, it’s built of five extended episodes, crossing nearly two decades in the lives of Jane and Duncan and lovingly portraying the hangers-on who compose their unusual family constellation in Boyne City, Michigan. All the characters are incorrigible but wonderful. Bad things happen, but there’s a core of love as Heiny explores marriage and parenting. A good-natured book that feels wise and bittersweet.

 

No One Is Talking About This by Patricia Lockwood: This starts as a flippant skewering of modern life. A woman who became a social media star by tweeting quips like “Can a dog be twins?” reflects on life on “the portal” and under “the dictator.” Midway through the book, she gets a wake-up call when her mother summons her back to the Midwest for a family emergency. It’s the about-face that makes this novel, forcing readers to question the value of a digital existence based on glib pretence. Funny, but with an ache behind it.

 

In by Will McPhail: Alternately laugh-out-loud funny and gentle. This debut graphic novel is a spot-on picture of modern life in a generic city. Nick never knows the right thing to say. The bachelor artist’s well-intentioned thoughts remain unvoiced; all he can manage is small talk. That starts to change when he meets Wren, a Black doctor who sees past his pretence. If only he can find the magic words that elicit honesty, he might make real connections with other human beings. A good old-fashioned story, with a wide emotional range.

 

Detransition, Baby by Torrey Peters: A sparkling, sexy comedy with a tender heart beneath the zingers. Peters has set herself up as the Jane Austen of the trans community, tracing the ins and outs of relationships with verve and nuance. For me this was a valuable book simply for normalizing trans sexuality. The themes are universal, after all: figuring out who you are and what the shape of your life will be. I admire when authors don’t pander to readers by making things easy for those who are unfamiliar with a culture. Great lines abound.

 

Brood by Jackie Polzin: Polzin’s debut is a quietly touching story of a woman in the Midwest raising chickens and coming to terms with the shape of her life. The unnamed narrator is Everywoman and no one at the same time. At one point she reveals, with no fanfare, that she miscarried four months into pregnancy in the bathroom of one of the houses she cleans. There is a bittersweet tone to this short work. It’s a low-key, genuine portrait of life in the in-between stages and how it can be affected by fate or by other people’s decisions.

 

 

Nonfiction

The Circling Sky by Neil Ansell: Hoping to reclaim an ancestral connection, Ansell visited the New Forest some 30 times between January 2019 and January 2020, observing the unfolding seasons and the many uncommon and endemic species its miles house. He weaves together his personal story, the shocking history of forced Gypsy relocation into forest compounds starting in the 1920s, and the unfairness of land ownership in Britain. The New Forest is a model of both wildlife-friendly land management and freedom of human access.

 

The Inevitable by Katie Engelhart: Engelhart spends time with doctors and patients who are caught up in the assisted dying argument, chiefly in Western Europe and the United States. Each case is given its own long chapter, like an extended magazine profile. The stories are wrenching, but compassionately told. The author explores the nuances of each situation, crafting expert portraits of suffering people and the medical professionals who seek to help them, and adding much in the way of valuable context. A voice of reason and empathy.

 

The Screaming Sky by Charles Foster: A Renaissance man as well versed in law and theology as he is in natural history, Foster is obsessed with swifts and ashamed of his own species: for looking down at their feet when they could be watching the skies; for the “pathological tidiness” that leaves birds and other creatures no place to live. He delivers heaps of information on the birds but refuses to stick to a just-the-facts approach. The book quotes frequently from poetry and the prose is full of sharp turns of phrase and whimsy.

 

Intensive Care by Gavin Francis: Francis, an Edinburgh physician, reflects on “the most intense months I have known in my twenty-year career.” He journeys back through 2020, from the January day when he received a bulletin about a “novel Wuhan coronavirus” to November, when he learned of promising vaccine trials but also a rumored third wave and winter lockdown. An absorbing first-hand account of a medical crisis, it compassionately bridges the gap between experts and laymen. The best Covid chronicle so far.

 

A Still Life by Josie George: Over a year of lockdowns, many of us became accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (Reviewed for TLS.)

 

Dusk, Night, Dawn by Anne Lamott: Lamott’s best new essays in nearly a decade. The central theme is how to have hope in God and in other people even when the news – Trump, Covid, and climate breakdown – only heralds the worst. One key thing that has changed for her is getting married for the first time, in her mid-sixties, to a Buddhist. In thinking of marriage, she writes about friendship, constancy, and forgiveness, none of which comes easy. Opportunities for maintaining quiet faith in spite of the circumstances arise all the time.

 

A Braided Heart by Brenda Miller: Miller, a professor of creative writing, delivers a master class on the composition and appreciation of autobiographical essays. In 18 concise pieces, she tracks her development as a writer and discusses the “lyric essay”—a form as old as Seneca that prioritizes imagery over narrative. These innovative and introspective essays, ideal for fans of Anne Fadiman, showcase the interplay of structure and content. (Coming out on July 13th from the University of Michigan Press. My first review for Shelf Awareness.)

 

Sanctuary by Emily Rapp Black: A continuation of The Still Point of the Turning World, about the author’s son Ronan, who died of Tay-Sachs disease at age three. In the months surrounding his death, she split from her husband and raced into another relationship that led to her daughter, Charlie. Rapp Black questions the sorts of words she got branded with: “brave,” “resilient.” Sanctuary is full of allusions and flashbacks, threading life’s disparate parts into a chaotic tapestry. It’s measured and wrought, taming fire into light and warmth.

 

 

Poetry

Pilgrim Bell by Kaveh Akbar: An Iranian American poet imparts the experience of being torn between cultures and languages, as well as between religion and doubt, in this gorgeous collection of confessional verse. Food, plants, animals, and the body supply the book’s imagery. Wordplay and startling juxtapositions lend lightness to a wistful, intimate collection that seeks belonging and belief. (Coming out on August 3rd from Graywolf Press. Reviewed for Shelf Awareness.)

 

Eat or We Both Starve by Victoria Kennefick: In this audacious debut collection, the body is presented as a battleground: for the brain cancer that takes the poet’s father; for disordered eating that entwines with mummy issues; for the restructuring of pregnancy. Families break apart and fuse into new formations. Cannibalism and famine metaphors dredge up emotional states and religious doctrines. There’s a pleasingly morbid cast to the book, but it also has its lighter moments. Rich with imagery and alliteration, this is just my kind of poetry.

 

What are some of the best books you’ve read so far this year?
What 2021 releases do I need to catch up on right away?

Review Book Catch-Up: Dennis, Galloway, Leland-St. John and Sampson

Capsule reviews today, of four books I am inexcusably late in reviewing. I have a record of personal experience with species reintroductions, a memoir about living among reindeer herders in the far north of Norway, a set of elegiac poems, and a biography of a Victorian woman poet who struggled with poor health for most of her life.

 

Restoring the Wild: Sixty Years of Rewilding Our Skies, Woods and Waterways by Roy Dennis

Rewilding is a big buzz word in current nature and environmental writing. Few could be said to have played as major a role in the UK’s successful species reintroduction projects as Roy Dennis, who has been involved with the RSPB and other key organizations since the late 1950s. He trained as a warden at two of the country’s most famous bird observatories, Lundy Island and Fair Isle. Most of his later work was to focus on birds: white-tailed eagles, red kites, and ospreys. Some of these projects extended into continental Europe. He also writes about the special challenges posed by mammal reintroductions; beavers get a chapter of their own. Every initiative is described in exhaustive detail, full of names and dates, whereas I would have been okay with an overview. This feels like more of an insider’s history rather than a layman’s introduction. I have popped it on my husband’s bedside table in hopes that, with his degree in wildlife conservation, he’ll be more interested in the nitty-gritty.

Favourite lines:

“Tenacity and a long view to the future are important in wildlife conservation.”

“for every successful project that gets the go-ahead, there are others into which people put great effort but which then run up against problems.”

With thanks to William Collins for the free copy for review.

 

Dálvi: Six Years in the Arctic Tundra by Laura Galloway

The title is the word for winter in the Northern Sámi language. Galloway, a journalist, traded in New York City for Arctic Norway after a) a DNA test told her that she had Sámi blood and b) she met and fell for Áilu, a reindeer herder, at a wedding. She enrolled in an intensive language learning course at university level and got used to some major cultural changes: animals were co-workers here rather than pets (like the two cats she brought with her); communal meals and drawn-out goodbyes were not the done thing; and shamans were still active (one helped them find a key she lost). Footwear neatly sums up the difference. The Prada heels she brought “just in case” ended up serving as hammers; instead, she helped Áilu’s mother make reindeer skins into boots. Two factors undermined my enjoyment: Alternating chapters about her unhappy upbringing in Indiana don’t add much of interest, and, after her relationship with Áilu ends, the book feels aimless. However, I appreciated her words about DNA not defining you, and family being what you make it.

With thanks to Atlantic Books for the free copy for review.

 

A Raga for George Harrison by Sharmagne Leland St.-John (2020)

Native American poet Sharmagne Leland St.-John’s fifth collection is a nostalgic and bittersweet look at people and places from one’s past. There are multiple elegies for public figures – everyone from Janis Joplin to Virginia Woolf – as well as for some who aren’t household names but have important stories that should be commemorated, like Hector Pieterson, a 12-year-old boy killed during the Soweto Uprising for protesting enforced teaching of Afrikaans in South Africa in 1976. Many of the elegies are presented as songs. Personal sources of sadness, such as a stillbirth, disagreements with a daughter, and ageing, weigh as heavily as tragic world events.

Rhyming and alliteration create inviting rhythms throughout the book, and details of colour and fashion animate poems like “La Kalima.” Leland St.-John remembers meeting street children in Mexico, while bamboo calls to mind time spent in Japan. “Promised Land” is an ironic account of land being seized from natives and people of colour. I especially liked “Things I Would Have Given to My Mother Had She Asked” (some literal and some more abstract), which opens “A piece of my liberal mind. 5 more minutes of my time”, and the sombre “Cat’s Cradle” (“Drenched starlings perch on a cat’s cradle of telephone wires”).

You can read “I Said Coffee” and a few more of her poems online.

With thanks to the author for sending a free e-copy for review.

 

Two-Way Mirror: The Life of Elizabeth Barrett Browning by Fiona Sampson

Coming in at under 260 pages, this isn’t your standard comprehensive biography. Sampson instead describes it as a “portrait,” one that takes up the structure of EBB’s nine-book epic poem, Aurora Leigh, and is concerned with themes of identity and the framing of stories. Elizabeth, as she is cosily called throughout the book, wrote poems that lend themselves to autobiographical interpretation – “her body of work creates a kind of looking glass in which, dimly, we make out the person who wrote it,” Sampson asserts.

Nicknamed “Ba,” Elizabeth was born in 1806 and brought up with 11 younger siblings at a Herefordshire estate, Hope End. Her father, Edward, had been born in Jamaica and the family fortune was based on sugar – and slavery. Sampson makes much of this inherited guilt, and also places an emphasis on EBB’s lifelong ill health, which involved headaches, back and side pain, and depression. She also suffered from respiratory complaints. The modern medically minded reader tries to come up with a concrete diagnosis. Tardive dystonia? Post-viral syndrome? The author offers many potential explanations, and notes that her subject was the very type of the Victorian female invalid. She would also suffer from miscarriages, but had one son, Pen. The Brownings were in the unusual position of the wife being the more famous partner.

Sampson draws heavily on correspondence and earnestly interrogates scenes and remembrances, but her use of the present tense is a bit odd for a historical narrative, and I found my casual curiosity about the Brownings wasn’t enough to sustain my interest. However, this did make me eager to try more of EBB’s poetry. I wonder if I still have that copy of Sonnets from the Portuguese in a box in the States?

Favourite lines:

“Within the continual process of reputation-making and remaking that is literary history, Elizabeth Barrett Browning remains a bellwether for the rising and sinking stock of women writers. … Elizabeth dramatizes the two-way creation of every writing self, from without and from within. That the life of the body both enables and limits the life of the mind is the paradox of the thinking self.”

With thanks to Profile Books for the free copy for review.

 

Would you be interested in reading one or more of these?

Review Book Catch-Up: Ante, Evans, Foster and White

Today I have a book of poems about the Filipinx experience in the UK, a collection of short stories reflecting on racial injustice, a monograph on a bird that spells summer for many of us, and a biographical investigation into a little-understood medical condition.

 

Antiemetic for Homesickness by Romalyn Ante

I was drawn to this debut collection by the terrific title and cover, but also by the accolades it received: it was on the Dylan Thomas Prize longlist and the Jhalak Prize shortlist. I hope we’ll see it on the Sunday Times Young Writer of the Year Award shortlist, too. Ante grew up in the Philippines but at age 16 joined her mother in the UK, where she had moved years before to work as a nurse in the NHS. She has since followed in her mother’s footsteps as a nurse – indeed, overseas Filipinx workers (Jamaicans, too) are a mainstay of the NHS.

Ante remembers the years when her mother was absent but promised to send for the rest of the family soon: “You said all I needed to do was to sleep and before I knew it, / you’d be back. But I woke to the rice that needed rinsing, / my siblings’ school uniforms that needed ironing.” The medical profession as a family legacy and noble calling is a strong element of these poems, especially in “Invisible Women,” an ode to the “goddesses of caring and tending” who walk the halls of any hospital. Hard work is a matter of survival, and family – whether physically present or not – bolsters weary souls. A series of short, untitled poems are presented as tape recordings made for her mother.

Food is inextricably entwined with memory (reminding me of Nina Mingya Powles’s approach in Tiny Moons) and provides some of the standout metaphors, especially in “Patis” and “Ode to a Pot Noodle.” Ante uses a lot of alliteration and adapts various forms. I especially liked “Tagay!”, a traditional drinking song, and “Mateo,” printed in the shape of a pound sign. The nuanced look at the immigrant experience reminded me of Jenny Xie’s Eye Level. Movement entails losses as well as benefits. The focus on the Filipinx experience also made me think of America Is Not the Heart. My favourite single poem was “The Making of a Smuggler,” which opens “Wherever we travel, we carry / the whole country with us – // our rice terraces are folded garments, / we have pillars of trees, a rainforest // on a hairbrush.”

Favourite lines:

“Gone are the nights he steals / the moon with a mango picker / and swaps it for her pocket mirror”

“The yellow admission papers in my hands escaped / flustering at my face into a flight of orioles.”

“I am halved in order to be whole – / I rebuild by leaving / everything I love.”

With thanks to Chatto & Windus for the free copy for review.

 

The Office of Historical Corrections by Danielle Evans

To boil these six stories and a novella down to the topic of race in America risks painting them as solemn or strident – more concerned with meaning than with art – when the truth is that they are playful and propulsive even though they keep cycling back to bereavement and injustice. Several of the protagonists are young Black women coming to terms with a loss.

In “Happily Ever After,” Lyssa works in the gift shop of a Titanic replica and is cast as an extra in a pop star’s music video. Mythical sea monsters are contrasted with the real dangers of her life, like cancer and racism. “Anything Could Disappear” was a favourite of mine, though it begins with that unlikely scenario of a single woman acquiring a baby as if by magic. What starts off as a burden becomes a bond she can’t bear to let go. A family is determined to clear the name of their falsely imprisoned ancestor in “Alcatraz.” In “Richard of York Gave Battle in Vain” (a mnemonic for the colours of the rainbow), photojournalist Rena is wary about attending the wedding of a friend she met when their plane was detained in Africa some years ago. The only wedding she’s been in is her sister’s, which ended badly.

Mistakes and deceit seem to follow these characters. In the title novella that closes the book, Cassie and her colleagues combat fake news, going around putting correction labels on plaques that whitewash history. When she and her former colleague meet up in Wisconsin to find the truth behind a complex correction case, a clash with a white supremacist group quickly turns pedantry into a matter of life and death. The story I’d heard the most about beforehand was “Boys Go to Jupiter,” about a college girl who dons a Confederate flag bikini, not caring what message it sends to others in her dorm. It turns out she has history with a Black family, but has chosen to airbrush this experience out of her life.

There was only one story I didn’t care for, “Why Won’t Women Just Say What They Want,” about a celebrity who turns apologizing into performance art. Overall, this is a very strong collection I would recommend to readers of Brit Bennett and Raven Leilani, with some stories also reminding me of recent work by Curtis Sittenfeld and Mary South. I’ll be sure to seek out Evans’s previous book (also short stories), too.

With thanks to Picador for the proof copy for review.

 

The Screaming Sky by Charles Foster

The other week I was volunteering at our local community garden and looked up to see a dozen common swifts wheeling over the Kennet & Avon canal and picking off insects among the treetops. I hope this fellow Foster (for whom my husband was once confused on a nature conference attendee list) would be proud of me for pausing to gaze at the birds for a while. My impression of the author is as a misanthropic eccentric. A Renaissance man as well versed in law and theology as he is in natural history, he’s obsessed with swifts and ashamed of his own species: for looking down at their feet when they could be watching the skies; for the “pathological tidiness” that leaves swifts and so many other creatures no place to live.

The obsession began when he was eight years old and someone brought him a dead swift fledgling for his taxidermy hobby. Ever since, he’s dated the summer by their arrival. “It is always summer for them,” though, as his opening line has it. This monograph is structured chronologically. Much like Tim Dee does in Greenery, Foster follows the birds for a year: from their winter territory in Africa to the edges of Europe in spring and then to his very own Oxford street in high summer. When they leave, he’s bereft and ready to book a flight back to Africa.

Along the way, Foster delivers heaps of information: the fossil evidence of swifts, how they know where to migrate (we have various theories but don’t really know), their nesting habits and lifespan, and the typical fates of those individuals that don’t survive. But, thumbing his nose at his “ex-friend” (a closed-minded biologist he repeatedly, and delightfully, rails against), he refuses to stick to a just-the-facts approach. Acknowledging the risks of anthropomorphizing, he speaks of swifts as symbols of aspiration, of life lived with intensity. He believes that we can understand animal emotions analogously through our own, so that, inappropriate as such words might seem, we can talk about what birds hope and plan for. He scorns reductive ecosystem services lingo that defines creatures by what we get out of them.

Also like Dee, Foster quotes frequently from poetry. His prose is full of sharp turns of phrase and moments of whimsy and made me eager to try more of his work (I know the most about but have not yet read Being a Beast).

Swifts know the roar of lions better than the roar of the M25, the piping of hornbills better than the Nunc Dimittis of parish Evensong … Are memories of our eaves spiralling high above the Gulf of Guinea? … They don’t seem to prevaricate. One moment they’re there, the next they’re off, diving straight into the journey. It’s the way we should run into cold water.

As I’ve found with a number of Little Toller releases now (On Silbury Hill, Snow, Landfill), knowledge meets passion to create a book that could make an aficionado of the most casual of readers. Towards the close I was also reminded of Richard Smyth’s An Indifference of Birds: “When Homo sapiens has gone there will be lots of ideal swift holes in the decaying buildings we’ll leave behind.” It’s comforting to think of natural cycles continuing after we’re gone … but let’s start making the space for them now. Jonathan Pomroy’s black-and-white illustrations of swift behaviour only add to this short book’s charms.

With thanks to Little Toller Books for the free copy for review.

 

Waiting for Superman: One Family’s Struggle to Survive – and Cure – Chronic Fatigue Syndrome by Tracie White

Like Suzanne O’Sullivan’s books (most recently, The Sleeping Beauties), this is presented as an investigation into a medical mystery. White, a Stanford Medicine journalist, focuses on one family that has been indelibly changed by chronic fatigue syndrome – now linked with myalgic encephalomyelitis and termed ME/CFS for short. Whitney Dafoe was a world traveller and promising photographer before, in 2010, a diagnosis of ME/CFS explained his exhaustion and gastrointestinal problems. By the time White first met the family in 2016, the thirtysomething was bedbound in his parents’ home with a feeding tube, only able to communicate via gestures and rearranging Scrabble tiles. He couldn’t bear loud noises, or to be touched. At times he was nearly comatose.

Whitney’s father, Ron Davis, is a Stanford geneticist whose research has contributed to the Human Genome Project. He has devoted himself to studying ME/CFS, which affects 20 million people worldwide yet receives little research funding; he calls it “the last major disease we know nothing about.” Testing his son’s blood, he found a problem with the citric acid cycle that produces ATP, essential fuel for the body’s cells – proof that there was a physiological reason for Whitney’s condition. Frustratingly, though, a Stanford colleague who examined Whitney prescribed a psychological intervention. This is in line with the current standard of care for ME/CFS: a graded exercise regime (nigh on impossible for someone who can’t get out of bed) and cognitive behavioural therapy.

White delves into Whitney’s past, looking for clues to what could have triggered his illness (having mono in high school? a parasite he picked up in India?). She also goes back to the mid-1980s to consider the Lake Tahoe outbreak of ME/CFS, whose victims “looked too healthy to be sick and were repeatedly disbelieved.” The media called it “yuppie flu,” downplaying the extreme fatigue involved. White also meets Laura Hillenbrand, author of Seabiscuit, who suffers from ME/CFS and managed to write her bestselling books from bed. Like Whitney, she only has a certain allotment of energy and mustn’t use it up too fast.

  • A neat connection: Stephanie Land, author of Maid, was Whitney’s ex-girlfriend when he was 19 and living in Alaska; she wrote a Longreads article about their relationship.
  • The title is from a Flaming Lips lyric and expresses Whitney’s trust in his dad’s ability to cure him; the U.S. title is The Puzzle Solver and the working title was The Invisible Patient.

With thanks to Atlantic Books for the free copy for review.

 

Would you be interested in reading one or more of these?

The Inevitable: Dispatches on the Right to Die by Katie Engelhart

Why, she wanted to know, was I so interested in the subject?

“Why isn’t everyone?” I asked.

The fact that I read a lot more books about death than the average person is something I attribute not to some morbid curiosity, but to pragmatism. As the title of Canadian reporter and documentary filmmaker Katie Engelhart’s book makes clear, this is the one subject none of us can avoid indefinitely, so why not learn about and understand it as much as possible? The Inevitable focuses on the controversial matter of assisted dying, also known as assisted suicide, euthanasia, or physician-assisted death. It’s a topic that’s already come up in my reading a couple of times this year: in the Dutch context of That One Patient by Ellen de Visser, and as a key part of the narrative in Darke Matter by Rick Gekoski.

Engelhart spends time with doctors and patients who are caught up in the assisted dying argument, chiefly in Western Europe and the United States. Ten states plus Washington, D.C. have assisted dying laws, sparked by Oregon’s Death with Dignity Act in 1994. In California, the author follows Dr. Lonny Shavelson for a month, observing all the meticulous regulations surrounded a physician-assisted death: patients with a terminal diagnosis and less than six months to live have to complete multiple forms, give many signatures, deliver oral testimony, and be able to drink the fatal concoction by themselves (whereas in other countries doctors can administer lethal injections). And if, when the time comes, a patient is too far gone to give spoken consent, the procedure is cancelled.

Other chapters consider specific cases that are not generally covered by current legislation but can drive people to seek assisted suicide: the ravages of old age, chronic degenerative illnesses, dementia, and severe mental illness. Each of these is given its own long chapter, like an extended magazine profile.

  • Meet Avril Henry, a former Exeter University professor in her eighties, now living alone with a failing body but no specific diagnosis that would qualify her for AD. Pain has long since outweighed pleasure in her life, so she illegally imports Nembutal from a veterinary supplier in Mexico and makes a careful plan for what will happen with her body, home, and possessions after she takes the drug in the bathtub.
  • Meet Maia Calloway, a 39-year-old former filmmaker confined to a wheelchair by multiple sclerosis. Her medicines cost $65,000 a year, not all covered by Medicare, and she can no longer rely on the patience of her boyfriend, who acts as her carer. She decides to raise the money to travel from Taos to a Swiss assisted dying clinic.
  • Meet Debra, a 65-year-old widow so rapidly declining with dementia that she knows she has to make her arrangements at once. She contacts the Final Exit Network, which gives advice and equipment (e.g. a nitrogen tank) that can make a death look unexplained or like a standard suicide.
  • Meet Adam, a 27-year-old in daily distress from OCD, anxiety, and depersonalization disorder. Though he’s lobbied for the inclusion of mental illness, he doesn’t qualify for AD under Canada’s laws. In 2017 he starts a Facebook livestream from a hotel room, intending to take poison off-screen. He loses his nerve this time, but is determined to try again.

These stories are so wrenching, but so compassionately told. Engelhart explores the nuances of each situation, crafting expert portraits of suffering people and the medical professionals who seek to help them, and adding much in the way of valuable context. Hers is a voice of reason and empathy. She mostly stays in the background, as befits a journalist, but occasionally emotional responses or skepticism come through – Exit International’s Philip Nitschke, vilified as a “Dr. Death” like Jack Kevorkian, is too much of a maverick for her.

And while her sympathy for the AD cause is evident, she also presents opposing arguments: from hospice doctors, from those afraid that the disabled will be pushed into assisted suicide to free up resources, from the family members of her subjects, and from those who have witnessed abuses of the system. There are those who frame this as a question of rights, and others who recognize a rare privilege; some who scorn the notion of escape, and others who speak of dignity and the kindness one would show a dying pet. The book is a vital contribution to an ongoing debate, with human stories at its heart.


With thanks to Atlantic Books for the free copy for review. The Inevitable was published in the UK on March 11th and is available from St. Martin’s Press in the USA.

February Releases by de Visser, George, Lawson, and Smiley

Nonfiction about doctors’ memorable patients and a life of chronic pain and disability; novels set in 1970s Canada and contemporary (but magically outside-of-time) Paris.

 

That One Patient: Doctors’ and nurses’ stories of the patients who changed their lives forever by Ellen de Visser

[Translated from the Dutch by Brent Annable]

Ellen de Visser is a science writer for the most popular newspaper in the Netherlands, De Volkskrant. Her “That One Patient” column, which began in the summer of 2017, turns interviews with medical professionals into punchy first-person narratives. A collection of them was published in Dutch in 2019. This English translation tacks on 10 additional pieces based on conversations with English and American practitioners (including Dr. Anthony Fauci, immunologist and presidential medical advisor), four of them explicitly reflecting on COVID-19.

Many of the cases are decades old yet stuck with the doctor or nurse in question because of a vital lesson learned. Overtreatment is regretted just as much as an omission of care. Again and again, these medical professionals conclude that it’s impossible to judge someone else’s decisions or quality of life. For instance, a surgeon admits he had a hard time empathizing with his obese patients undergoing stomach reduction until he followed up with a young woman who told him about how invisible she’d felt before her surgery. Premature and disabled children bring grief or joy, not always in the expected doses. A doctor resents the work his team puts into repairing a woman who jumped from an eighth-floor window – why the heroic measures for someone who wanted to die? – until he learns she was pushed. A cancer surgeon develops breast cancer and now knows exactly what her patients go through.

Some of these stories are disturbing: being stalked by a patient with a personality disorder, a man poisoning his girlfriend, a farmer predicting the very day and time of his death. A gynaecologist changes his mind about abortion after he meets a 15-year-old who gave birth at home and left her baby outside in a plastic bag to die of exposure. Other pieces are heart-warming: A paramedic delivers a premature, breech baby right in the ambulance. Staff throw a wedding at the hospital for a dying teen (as in Dear Life by Rachel Clarke). A woman diagnosed with cancer while pregnant has chemotherapy and a healthy baby – now a teenager. There’s even a tale from a vet who crowdfunded prostheses for a lively terrier.

One unique thing about the Netherlands is that euthanasia is legal and provided by doctors upon the express request of a patient suffering from a terminal illness. It is taken for granted in these essays, yet some interviewees express their discomfort with it as an option for young patients. De Visser is careful to note that, even with the situation as it is, only 4% of deaths in the Netherlands are by euthanasia, and the majority of these are end-stage cancer cases.

As with any collection of this nature, some stories are more enticing than others, but overall I found it a surprising and moving set of reflections that is alive to ethical complexities and grapples with tough issues like disability, doctor error, loneliness, pain, and sense of purpose.

Two quotes, in particular, stood out to me, one from a nurse – “We are only ever guests in other people’s lives, and that’s how we ought to behave” – and the other from Dr. Fauci’s piece. In 2014 he treated a doctor who had been volunteering in Sierra Leone after an Ebola outbreak but became ill with the virus and had to be evacuated. “He cited Hippocrates: ‘It is far more important to know what sort of person has the disease, rather than what sort of disease the person has.’ You treated me like a person, not a disease, he said. And that’s what medicine is all about.”

With thanks to 4th Estate for the proof copy for review.

 

A Still Life: A Memoir by Josie George

Over a year of lockdowns, many of us have become accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (My full review will appear in a forthcoming issue of the Times Literary Supplement. See also Eleanor’s thorough review.) This is top of my wish list for next year’s Barbellion Prize shortlist.

With thanks to Bloomsbury for the proof copy for review.

 

A Town Called Solace by Mary Lawson

I discovered Mary Lawson in 2015 with Road Ends and caught up with Crow Lake in the summer of 2019. All four of her books are set in fictional locations inspired by the villages and rural areas of Northern Ontario, where the author grew up before moving to England in 1968. So Solace, while not a real town, is true to her memory and, despite the sometimes gruff or know-it-all locals, an emotional landmark for the three central characters, all of whom are processing trauma and looking for places of comfort where they can start over.

1972. First we meet Clara, a plucky seven-year-old sitting vigil. She’s waiting for the return of two people: her sixteen-year-old sister, Rose, who ran away from home; and their next-door neighbour, Mrs. Orchard, whose cat, Moses, she’s feeding until the old lady gets back from the hospital. As days turn into weeks, though, it seems less likely that either will come home, and one day Clara sees a strange man moving boxes around in Mrs. Orchard’s house. This is Liam Kane, who’s inherited the house from a family friend. In his thirties and recently divorced, he’s taking a break in this tiny town, never imagining that he might find a new life. The third protagonist, and only first-person narrator, is Elizabeth, who lies in a hospital bed with heart trouble and voices her memories as a monologue to her late husband.

As we cycle through these three characters’ perspectives in alternating chapters, we gradually come to understand the connections between them. There are satisfying parallels in that, on multiple occasions but in slightly different ways, a child attaches to an older person or an adult stands in as a guardian for a neglected child. All of Lawson’s creations, even the secondary figures, are dealing with distressing memories or a loss of some kind, the details of which might only emerge much later on. Solace offers myriad opportunities for recovery, whether kitty playtime at Mrs. Orchard’s or diner food and homemade ice cream.

Like Lawson’s other works, this is a slow burner featuring troubled families. Her characters, often full of regret and sorrow, take a shadowy past as a prompt to reset their lives. They’re charming in spite of their flaws. I recalled that Crow Lake also looks back to the climactic happenings experienced by a seven-year-old girl. And like Road Ends, A Town Called Solace makes a convincing case for present decisions being influenced by historical trauma. It’s a tender and inviting story I’d recommend to readers of Wendy McGrath and Anne Tyler, with Clever Girl by Tessa Hadley and Olive, Again by Elizabeth Strout as specific readalikes. (My dilemma now is whether to read my only remaining Lawson novel, The Other Side of the Bridge, right away or save it: she’s not the most prolific author, with four books in 19 years.)

A favorite passage:

[Liam’s] life prior to coming north seemed to be taking on the quality of an old movie, one in which he’d been deeply engrossed while watching it but which now seemed trivial, unconvincing and profoundly lacking in either colour or plot. Solace had colour and plot in spades, maybe too much. In every way it was coming to seem more real than Toronto, with its endless malls and traffic jams and high-powered jobs. Though maybe, if he went back to Toronto, the same would be true in reverse. Maybe when he’d been back for a couple of months he’d find that it was Solace that seemed unreal, its unremarkable streets and stores like something from a dream, its dramatic landscape fading to nothing, like a holiday photo left in the sun.

With thanks to Chatto & Windus for the free copy for review.

 

The Strays of Paris by Jane Smiley

(Published in the USA in December 2020 under the title Perestroika in Paris. It’s been given a The Boy, the Mole, the Fox and the Horse treatment for its UK release.)

My summary for Bookmarks magazine: “A racehorse, Perestroika—nicknamed Paras—strays from her unlocked suburban stable one day, carrying her groom’s purse in her mouth, and ends up in Paris’s Place du Trocadéro. Here she meets Frida the dog, Sid and Nancy the mallards, and Raoul the raven. Frida, whose homeless owner died, knows about money. She takes euros from the purse to buy food from a local market, while Paras gets treats from a baker on predawn walks. Etienne, an eight-year-old orphan who lives with his ancient great-grandmother, visits the snowy park to feed the wary animals (who can talk to each other), and offers Paras a home. A sweet fable for animal lovers.”

Yes, this is a talking animal book, but the animals only talk to each other; they communicate with humans through their gestures and soulful eyes. Kindly shopkeepers work out what Frida wants to buy based on what she stares at or points to with a paw; the baker whose window Paras passes on her early morning walks intuits that the horse is hungry; Etienne, who gives a couple of the stray animals a home during a chill winter, learns to understand when Paras needs to go out to relieve herself, after piles of dung build up in the sitting room.

I liked how patiently and convincingly Smiley builds the portrait of each character – human or animal – and the overall situation of kindness and good fortune. Raoul is particularly amusing for his birdsplaining: “It is a feature of age. I have learned so many things in my life that they just force their way out of my beak,” he says. However, a crow would be much more realistic for Paris (or any city) than a raven, and, overall, this was a little twee and farfetched for my tastes. It was nice to read something a bit different from Smiley, who I haven’t tried since her Last Hundred Years Trilogy. She has a sideline in YA horse novels; this should probably have been lumped with those. (Annabel liked it a bit more.)

I was sent an unsolicited review copy by Picador/Mantle.

 

What recent releases can you recommend?

The Barbellion Prize 2020 Winner

It has been a pleasure following the Barbellion Prize race this year. In case you haven’t already seen the news, the winner of the inaugural award is Golem Girl by Riva Lehrer (my review).

It’s not often that my favourite from a literary prize list is also the judges’ pick, so I’m particularly pleased that my prediction came true. The full announcement is here. Here’s what two of the judges had to say:

Assistant Professor of Literature Dr Shahd Alshammari: “Golem Girl is a memoir that is infused with art, life, discrimination, love, self-love, and what it means to be vulnerable. Disability is on every page—and that is the type of literature we need.”

Cat Mitchell, Lecturer and Programme Leader of the Writing and Publishing degree at the University of Derby: “Golem Girl is a powerful and wide-reaching account of a life lived with disability. By interweaving her writing and art, Riva explores queerness, community, society’s fear of difference, and the often problematic representation of disabled bodies in art and medicine.”

Professor Tom Shakespeare FBA, Professor of Disability Research at London School of Hygiene and Tropical Medicine, and an advisor to the Prize, added: “From Pope to Stevenson, Woolf to Plath, writers have lived with illness and disability for centuries. Now here comes exactly the right prize at the right time: disabled writers have been locked down far longer, and deserve far more recognition than they get. The Barbellion Prize deserves to succeed, and Riva Lehrer’s Golem Girl will put it on the map.”


To recap, the other three on the shortlist were:

It’s been quite the whirlwind reading and reviewing all four books as the first two review copies only arrived on the 28th of January. Most of my reviews got bunched up right in the 36 or so hours before the announcement, but I was relieved that I managed to get them all up in advance. The Prize basically has no budget, so when I approached Cat (who used to work in publicity at Penguin) and asked if I and a handful of other bloggers could get involved, I wasn’t sure if it would be a possibility. I was really grateful to the four publishers for being willing to supply review copies. I hope we have helped to get the word out there.


The Barbellion Prize is already accepting entries for the 2021 award (submissions close on 31 October; see the website for more information). On my wish list thus far are two excellent memoirs, Sanctuary by Emily Rapp Black, who has a prosthetic leg and lost her son to Tay-Sachs disease, and A Still Life by Josie George, who lives joyfully with chronic illness.

Other relevant 2021 releases I’m interested in getting hold of are: The Invention of Miracles: language, power, and Alexander Graham Bell’s quest to end deafness by Katie Booth, Places I’ve Taken My Body by Molly McCully Brown, What Doesn’t Kill You: A Life with Chronic Illness – Lessons from a Body in Revolt by Tessa Miller, and Waiting for Superman: One Family’s Struggle to Survive – and Cure – Chronic Fatigue Syndrome by Tracie White.

 

Have you been inspired to read any of the shortlisted books?