Below I’ve chosen my top 15 nonfiction releases of 2021. This list plus yesterday’s post on fiction and poetry together represent about the top 10% of my year’s reading. In previous years I’ve assigned rankings within best-of lists, but this time I didn’t feel compelled to do so.
The Circling Sky by Neil Ansell: Hoping to reclaim an ancestral connection, Ansell visited the New Forest some 30 times between January 2019 and January 2020, observing the unfolding seasons and the many uncommon and endemic species its miles house. He weaves together his personal story, the shocking history of forced Gypsy relocation into forest compounds starting in the 1920s, and the unfairness of land ownership in Britain. The New Forest is a model of both wildlife-friendly land management and freedom of human access.
On Gallows Down: Place, Protest and Belonging by Nicola Chester: So many layers of history mingle here: from the English Civil War onward, Newbury has been a locus of resistance for centuries. A hymn-like memoir of place as much as of one person’s life, this posits that quiet moments of connection with nature and the rights of ordinary people are worth fighting for. I particularly loved a chapter about how she grounds herself via the literature of the area. She continues a hopeful activist, her lyrical writing a means of defiance.
The Glitter in the Green: In Search of Hummingbirds by Jon Dunn: A wildlife writer and photographer, Dunn travels the length of the Americas, from Alaska to Tierra del Fuego, to see as many hummingbirds as he can. He provides a thorough survey of the history, science and cultural relevance of this most jewel-like of bird families. He is equally good at describing birds and their habitats and at constructing a charming travelogue out of his sometimes fraught journeys. Passionate and adventurous.
The Inevitable by Katie Engelhart: Engelhart spends time with doctors and patients who are caught up in the assisted dying argument, chiefly in Western Europe and the United States. Each case is given its own long chapter, like an extended magazine profile. The stories are wrenching, but compassionately told. The author explores the nuances of each situation, crafting expert portraits of suffering people and the medical professionals who seek to help them, and adding much in the way of valuable context. A voice of reason and empathy.
Islands of Abandonment by Cal Flyn: Flyn travels to neglected and derelict places, looking for the traces of human impact and noting how landscapes restore themselves – how life goes on without us. Places like a wasteland where there was once mining, nuclear exclusion zones, the depopulated city of Detroit, and areas that have been altered by natural disasters and conflict. The writing is literary and evocative, at times reminiscent of Peter Matthiessen’s. It’s a nature/travel book with a difference, and the poetic eye helps you to see things anew.
The Screaming Sky by Charles Foster: A Renaissance man as well versed in law and theology as he is in natural history, Foster is obsessed with swifts and ashamed of his own species: for looking down at their feet when they could be watching the skies; for the “pathological tidiness” that leaves birds and other creatures no place to live. He delivers heaps of information on the birds but refuses to stick to a just-the-facts approach. The book quotes frequently from poetry and the prose is full of sharp turns of phrase and whimsy.
Intensive Care by Gavin Francis: Francis, an Edinburgh physician, reflects on “the most intense months I have known in my twenty-year career.” He journeys back through 2020, from the January day when he received a bulletin about a “novel Wuhan coronavirus” to November, when he learned of promising vaccine trials but also a rumored third wave and winter lockdown. An absorbing first-hand account of a medical crisis, it compassionately bridges the gap between experts and laymen. The best Covid chronicle so far.
A Still Life by Josie George: Over a year of lockdowns, many of us became accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (Reviewed for the TLS.)
The Anthropocene Reviewed: Essays on a human-centered planet by John Green: In essays of about 5–10 pages, Green takes a phenomenon experienced in the modern age, whether miraculous (sunsets, the Lascaux cave paintings, favourite films or songs), regrettable (Staph infections, CNN, our obsession with grass lawns), or just plain weird, and riffs on it, exploring its backstory, cultural manifestations and personal resonance. I found a lot that rang true and a lot that made me laugh, and admired the openness on mental health.
The Book of Difficult Fruit: Arguments for the Tart, Tender, and Unruly by Kate Lebo: I have a soft spot for uncategorizable nonfiction. My expectation was for a food memoir, but while the essays incorporate shards of autobiography and, yes, recipes, they also dive into everything from botany and cultural history to medicinal uses. Occasionally the ‘recipes’ are for non-food items. Health is a recurring element that intersects with eating habits. The A-to-Z format required some creativity and occasions great trivia but also poignant stories.
A Braided Heart: Essays on Writing and Form by Brenda Miller: Miller, a professor of creati.ve writing, delivers a master class on the composition and appreciation of autobiographical essays. In 18 concise pieces, she tracks her development as a writer and discusses the “lyric essay”—a form as old as Seneca that prioritizes imagery over narrative. These innovative and introspective essays, ideal for fans of Anne Fadiman, showcase the interplay of structure and content. (Reviewed for Shelf Awareness.)
Flesh & Blood: Reflections on Infertility, Family, and Creating a Bountiful Life: A Memoir by N. West Moss: In her 50s, Moss needed an exploratory D&C, a cruel flashback to failed pregnancies of her 40s. Soon she faced a total hysterectomy. Here she tenderly traces the before and after of surgery and how she came to terms with childlessness. While she doesn’t shy away from medical details, Moss delves more into emotional effects. The few-page chapters are warm slices of life. She leavens her losses with a sense of humour. (Reviewed for Shelf Awareness.)
These Precious Days: Essays by Ann Patchett: This second collection of thoughtful, sincere autobiographical essays has a melancholy bent – the preoccupation with death and drive to simplify life seem appropriate for Covid times – but also looks back at her young adulthood and key relationships. The long title piece, first published in Harper’s, is about her stranger-than-fiction friendship with Tom Hanks’s assistant; “There Are No Children Here” says everything I’d ever like to say or hear about childlessness. (Full review to come.)
Sanctuary by Emily Rapp Black: A continuation of The Still Point of the Turning World, about the author’s son Ronan, who died of Tay-Sachs disease at age three. In the months surrounding his death, she split from her husband and raced into another relationship that led to her daughter, Charlie. Rapp Black questions the sorts of words she got branded with: “brave,” “resilient.” Sanctuary is full of allusions and flashbacks, threading life’s disparate parts into a chaotic tapestry. It’s measured and wrought, taming fire into light and warmth.
Forecast: A Diary of the Lost Seasons by Joe Shute: Shute probes how the seasons are bound up with memories, conceding the danger of giving in to nostalgia for a gloried past that may never have existed. He provides hard evidence in the form of long-term observations such as temperature data and photo archives. The book deftly recreates its many scenes and conversations, and inserts statistics naturally. It also delicately weaves in a storyline about infertility. Wide-ranging and so relevant.
The Wainwright Prize is one that I’ve ended up following closely almost by accident, simply because I tend to read most of the nature books released in the UK in any given year. A few months back I cheekily wrote to the prize director, proffering myself as a judge and appending a list of eligible titles I hoped were in consideration. Although they already had a full judging roster for 2021, I got a very kind reply thanking me for my recommendations and promising to bear me in mind for the future. Fifteen of my 25 suggestions made it onto the lists below.
This is the second year that there have been two awards, one for writing on UK nature and the other on global conservation themes. Tomorrow (August 4th) at 4 p.m., the longlists will be narrowed down to shortlists. I happened to have read and reviewed 12 of the nominees already, and I have a few others in progress.
UK nature writing longlist:
The Circling Sky by Neil Ansell: Hoping to reclaim an ancestral connection, Ansell visited the New Forest some 30 times between January 2019 and January 2020, observing the unfolding seasons and the many uncommon and endemic species its miles house. He weaves together his personal story, the shocking history of forced Gypsy relocation into forest compounds starting in the 1920s, and the unfairness of land ownership in Britain. The New Forest is a model of both wildlife-friendly land management and freedom of human access. (On my Best of 2021 so far list.)
The Screaming Sky by Charles Foster: A Renaissance man as well versed in law and theology as he is in natural history, Foster is obsessed with swifts and ashamed of his own species: for looking down at their feet when they could be watching the skies; for the “pathological tidiness” that leaves birds and other creatures no place to live. He delivers heaps of information on the birds but refuses to stick to a just-the-facts approach. The book quotes frequently from poetry and the prose is full of sharp turns of phrase and whimsy. (Also on my Best of 2021 so far list.)
Featherhood by Charlie Gilmour: As an aimless twentysomething, Gilmour tried to rekindle a relationship with his unreliable poet father at the same time that he and his wife were pondering starting a family of their own. Meanwhile, he was raising Benzene, a magpie that fell out of the nest and ended up in his care. The experience taught him responsibility and compassionate care for another creature. Gilmour makes elegant use of connections and metaphors. He’s so good at scenes, dialogue and emotion – a natural writer.
Seed to Dust by Marc Hamer: Hamer paints a loving picture of his final year at the 12-acre British garden he tended for decades. In few-page essays, the book journeys through a gardener’s year. This is creative nonfiction rather than straightforward memoir. The prose is adorned with lovely metaphors. In places, the language edges towards purple and the content becomes repetitive – a danger of the diary format. However, the focus on emotions and self-perception – rare for a male nature writer – is refreshing. (Reviewed for Foreword.)
The Stubborn Light of Things by Melissa Harrison: A collection of five and a half years’ worth of Harrison’s monthly Nature Notebook columns for The Times. Initially based in South London, Harrison moved to the Suffolk countryside in late 2017. In the grand tradition of Gilbert White, she records when she sees her firsts of a year. I appreciate how hands-on and practical Harrison is. She never misses an opportunity to tell readers about ways they can create habitat for wildlife and get involved in citizen science projects. (Reviewed for Shiny New Books.)
Birdsong in a Time of Silence by Steven Lovatt: During the UK’s first lockdown, with planes grounded and cars stationary, many remarked on the quiet. All the better to hear birds going about their usual spring activities. For Lovatt, it was the excuse he needed to return to his childhood birdwatching hobby. In between accounts of his spring walks, he tells lively stories of common birds’ anatomy, diet, lifecycle, migration routes, and vocalizations. Lovatt’s writing is introspective and poetic, delighting in metaphors for sounds.
Vesper Flights by Helen Macdonald: Though written for various periodicals and ranging in topic from mushroom-hunting to deer–vehicle collisions and in scope from deeply researched travel pieces to one-page reminiscences, these essays form a coherent whole. Equally reliant on argument and epiphany, the book has more to say about human–animal interactions in one of its essays than some whole volumes manage. Her final lines are always breath-taking. I’d rather read her writing on any subject than almost any other author’s. (My top nonfiction release of 2020.)
Skylarks with Rosie by Stephen Moss: Devoting a chapter each to the first 13 weeks of the initial UK lockdown, Moss traces the season’s development in Somerset alongside his family’s experiences and what was emerging on the national news. He welcomed migrating birds and marked his first sightings of butterflies and other insects. Nature came to him, too. For once, he felt that he had truly appreciated the spring, noting its every milestone and “rediscovering the joys of wildlife-watching close to home.”
Thin Places by Kerri ní Dochartaigh: I received a proof copy from Canongate and twice tried the first few pages, but couldn’t wade through the excessive lyricism (and downright incorrect information – weaving a mystical description of a Winter Moth’s flight, she keeps referring to the creature as “she,” whereas when I showed the passage to my entomologist husband he told me that the females of that species are flightless). I’m told it develops into an eloquent memoir of growing up during the Troubles. Perhaps reminiscent of The Outrun?
Into the Tangled Bank by Lev Parikian: A delightfully Bryson-esque tour that moves ever outwards, starting with the author’s own home and garden and proceeding to take in his South London patch and his journeys around the British Isles before closing with the wonders of the night sky. By slowing down to appreciate what is all around us, he proposes, we might enthuse others to engage with nature. With the zeal of a recent convert, he guides readers through momentous sightings and everyday moments of connection. (When I reviewed this in July 2020, I correctly predicted it would make the longlist!)
English Pastoral by James Rebanks: This struck me for its bravery, good sense and humility. The topics of the degradation of land and the dangers of intensive farming are of the utmost importance. Daring to undermine his earlier work and his online persona, the author questions the mythos of modern farming, contrasting its practices with the more sustainable and wildlife-friendly ones his grandfather espoused. Old-fashioned can still be best if it means preserving soil health, river quality and the curlew population.
I Belong Here by Anita Sethi: I recently skimmed this from the library. Two things are certain: 1) BIPOC writers should appear more frequently on prize lists, so it’s wonderful that Sethi is here; 2) this book was poorly put together. It’s part memoir of an incident of racial abuse, part political manifesto, and part quite nice travelogue. The parts don’t make a whole. The contents are repetitive and generic (definitions, overstretched metaphors). Sethi had a couple of strong articles here, not a whole book. I blame her editors for not eliciting better.
The Wild Silence by Raynor Winn: I only skimmed this, too. I got the feeling her publisher was desperate to capitalize on the popularity of her first book and said “give us whatever you have,” cramming drafts of several different projects (a memoir that went deeper into the past, a ‘what happened next’ sequel to The Salt Path, and an Iceland travelogue) into one book and rushing it through to publication. Winn’s writing is still strong, though; she captures dialogue and scenes naturally, and you believe in how much the connection to the land matters to her.
Global conservation longlist:
Like last year, I’ve read much less from this longlist since I gravitate more towards nature writing and memoirs than to hard or popular science. So I have read, am reading or plan to read about half of this list, as opposed to pretty much all of the other one.
Islands of Abandonment by Cal Flyn: This was on my Most Anticipated list for 2021 and I treated myself to a copy while we were up in Northumberland. I’m nearly a third of the way through this fascinating, well-written tour of places where nature has spontaneously regenerated due to human neglect: depleted mining areas in Scotland, former conflict zones, Soviet collective farms turned feral, sites of nuclear disaster, and so on. I’m about to start the chapter on Chernobyl, which I expect to echo Mark O’Connell’s Notes from an Apocalypse.
What If We Stopped Pretending? by Jonathan Franzen: The message of this controversial 2019 New Yorker essay is simple: climate breakdown is here, so stop denying it and talking of “saving the planet”; it’s too late. Global warming is locked in; the will is not there to curb growth, overhaul economies, and ask people to relinquish developed world lifestyles. Instead, start preparing for the fallout (refugees) and saving what can be saved (particular habitats and species). Franzen is realistic about human nature and practical about what to do next.
Entangled Life by Merlin Sheldrake: Sheldrake’s enthusiasm is infectious as he researches fungal life in the tropical forests of Panama, accompanies truffle hunters in Italy, and takes part in a clinical study on the effects of LSD (derived from a fungus). More than a travel memoir, though, this is a work of proper science – over 100 pages are taken up by notes, bibliography and index. This is a perspective-altering text that reveals our unconscious species bias. I’ve recommended it widely, even to those who tend not to read nonfiction.
Ice Rivers by Jemma Wadham: I have this out from the library and am two-thirds through. Wadham, a leading glaciologist, introduces readers to the science of glaciers: where they are, what lives on and under them, how they move and change, and the grave threats they face (and, therefore, so do we). The science, even dumbed down, is a little hard to follow, but I love experiencing extreme landscapes like Greenland and Antarctica with her. She neatly inserts tiny mentions of her personal life, such as her mother’s death, a miscarriage and a benign brain cyst.
The rest of the longlist is:
- A Life on Our Planet by David Attenborough – I’ve never read a book by Attenborough (and tend to worry this sort of book would be ghostwritten), but wouldn’t be averse to doing so.
- Fathoms by Rebecca Giggs – All about whales. Kate raved about it. I have this on hold at the library.
- Net Zero: How We Stop Causing Climate Change by Dieter Helm
- Under a White Sky by Elizabeth Kolbert – I have read her before and would again.
- Riders on the Storm by Alistair McIntosh – My husband has read several of his books and rates them highly.
- The New Climate War by Michael E. Mann
- The Reindeer Chronicles by Judith D. Schwartz – I’ve been keen to read this one.
- A World on the Wing by Scott Weidensaul – My husband is reading this from the library.
My predictions/wishes for the shortlists:
It’s high time that a woman won again. And why not for both, eh? (Amy Liptrot is still the only female winner in the Prize’s seven-year history, for The Outrun in 2016.)
UK nature writing:
- The Circling Sky by Neil Ansell
- The Screaming Sky by Charles Foster
- Featherhood by Charlie Gilmour
- Vesper Flights by Helen Macdonald*
- English Pastoral by James Rebanks
- I Belong Here by Anita Sethi
- The Wild Silence by Raynor Winn
Writing on global conservation:
- Islands of Abandonment by Cal Flyn*
- Fathoms by Rebecca Giggs
- Under a White Sky by Elizabeth Kolbert
- Entangled Life by Merlin Sheldrake
- Ice Rivers by Jemma Wadham
- A World on the Wing by Scott Weidensaul
*Overall winners, if I had my way.
Have you read anything from the Wainwright Prize longlists?
Do any of these books interest you?
Today I have a book of poems about the Filipinx experience in the UK, a collection of short stories reflecting on racial injustice, a monograph on a bird that spells summer for many of us, and a biographical investigation into a little-understood medical condition.
Antiemetic for Homesickness by Romalyn Ante
I was drawn to this debut collection by the terrific title and cover, but also by the accolades it received: it was on the Dylan Thomas Prize longlist and the Jhalak Prize shortlist. I hope we’ll see it on the Sunday Times Young Writer of the Year Award shortlist, too. Ante grew up in the Philippines but at age 16 joined her mother in the UK, where she had moved years before to work as a nurse in the NHS. She has since followed in her mother’s footsteps as a nurse – indeed, overseas Filipinx workers (Jamaicans, too) are a mainstay of the NHS.
Ante remembers the years when her mother was absent but promised to send for the rest of the family soon: “You said all I needed to do was to sleep and before I knew it, / you’d be back. But I woke to the rice that needed rinsing, / my siblings’ school uniforms that needed ironing.” The medical profession as a family legacy and noble calling is a strong element of these poems, especially in “Invisible Women,” an ode to the “goddesses of caring and tending” who walk the halls of any hospital. Hard work is a matter of survival, and family – whether physically present or not – bolsters weary souls. A series of short, untitled poems are presented as tape recordings made for her mother.
Food is inextricably entwined with memory (reminding me of Nina Mingya Powles’s approach in Tiny Moons) and provides some of the standout metaphors, especially in “Patis” and “Ode to a Pot Noodle.” Ante uses a lot of alliteration and adapts various forms. I especially liked “Tagay!”, a traditional drinking song, and “Mateo,” printed in the shape of a pound sign. The nuanced look at the immigrant experience reminded me of Jenny Xie’s Eye Level. Movement entails losses as well as benefits. The focus on the Filipinx experience also made me think of America Is Not the Heart. My favourite single poem was “The Making of a Smuggler,” which opens “Wherever we travel, we carry / the whole country with us – // our rice terraces are folded garments, / we have pillars of trees, a rainforest // on a hairbrush.”
“Gone are the nights he steals / the moon with a mango picker / and swaps it for her pocket mirror”
“The yellow admission papers in my hands escaped / flustering at my face into a flight of orioles.”
“I am halved in order to be whole – / I rebuild by leaving / everything I love.”
With thanks to Chatto & Windus for the free copy for review.
The Office of Historical Corrections by Danielle Evans
To boil these six stories and a novella down to the topic of race in America risks painting them as solemn or strident – more concerned with meaning than with art – when the truth is that they are playful and propulsive even though they keep cycling back to bereavement and injustice. Several of the protagonists are young Black women coming to terms with a loss.
In “Happily Ever After,” Lyssa works in the gift shop of a Titanic replica and is cast as an extra in a pop star’s music video. Mythical sea monsters are contrasted with the real dangers of her life, like cancer and racism. “Anything Could Disappear” was a favourite of mine, though it begins with that unlikely scenario of a single woman acquiring a baby as if by magic. What starts off as a burden becomes a bond she can’t bear to let go. A family is determined to clear the name of their falsely imprisoned ancestor in “Alcatraz.” In “Richard of York Gave Battle in Vain” (a mnemonic for the colours of the rainbow), photojournalist Rena is wary about attending the wedding of a friend she met when their plane was detained in Africa some years ago. The only wedding she’s been in is her sister’s, which ended badly.
Mistakes and deceit seem to follow these characters. In the title novella that closes the book, Cassie and her colleagues combat fake news, going around putting correction labels on plaques that whitewash history. When she and her former colleague meet up in Wisconsin to find the truth behind a complex correction case, a clash with a white supremacist group quickly turns pedantry into a matter of life and death. The story I’d heard the most about beforehand was “Boys Go to Jupiter,” about a college girl who dons a Confederate flag bikini, not caring what message it sends to others in her dorm. It turns out she has history with a Black family, but has chosen to airbrush this experience out of her life.
There was only one story I didn’t care for, “Why Won’t Women Just Say What They Want,” about a celebrity who turns apologizing into performance art. Overall, this is a very strong collection I would recommend to readers of Brit Bennett and Raven Leilani, with some stories also reminding me of recent work by Curtis Sittenfeld and Mary South. I’ll be sure to seek out Evans’s previous book (also short stories), too.
With thanks to Picador for the proof copy for review.
The Screaming Sky by Charles Foster
The other week I was volunteering at our local community garden and looked up to see a dozen common swifts wheeling over the Kennet & Avon canal and picking off insects among the treetops. I hope this fellow Foster (for whom my husband was once confused on a nature conference attendee list) would be proud of me for pausing to gaze at the birds for a while. My impression of the author is as a misanthropic eccentric. A Renaissance man as well versed in law and theology as he is in natural history, he’s obsessed with swifts and ashamed of his own species: for looking down at their feet when they could be watching the skies; for the “pathological tidiness” that leaves swifts and so many other creatures no place to live.
The obsession began when he was eight years old and someone brought him a dead swift fledgling for his taxidermy hobby. Ever since, he’s dated the summer by their arrival. “It is always summer for them,” though, as his opening line has it. This monograph is structured chronologically. Much like Tim Dee does in Greenery, Foster follows the birds for a year: from their winter territory in Africa to the edges of Europe in spring and then to his very own Oxford street in high summer. When they leave, he’s bereft and ready to book a flight back to Africa.
Along the way, Foster delivers heaps of information: the fossil evidence of swifts, how they know where to migrate (we have various theories but don’t really know), their nesting habits and lifespan, and the typical fates of those individuals that don’t survive. But, thumbing his nose at his “ex-friend” (a closed-minded biologist he repeatedly, and delightfully, rails against), he refuses to stick to a just-the-facts approach. Acknowledging the risks of anthropomorphizing, he speaks of swifts as symbols of aspiration, of life lived with intensity. He believes that we can understand animal emotions analogously through our own, so that, inappropriate as such words might seem, we can talk about what birds hope and plan for. He scorns reductive ecosystem services lingo that defines creatures by what we get out of them.
Also like Dee, Foster quotes frequently from poetry. His prose is full of sharp turns of phrase and moments of whimsy and made me eager to try more of his work (I know the most about but have not yet read Being a Beast).
Swifts know the roar of lions better than the roar of the M25, the piping of hornbills better than the Nunc Dimittis of parish Evensong … Are memories of our eaves spiralling high above the Gulf of Guinea? … They don’t seem to prevaricate. One moment they’re there, the next they’re off, diving straight into the journey. It’s the way we should run into cold water.
As I’ve found with a number of Little Toller releases now (On Silbury Hill, Snow, Landfill), knowledge meets passion to create a book that could make an aficionado of the most casual of readers. Towards the close I was also reminded of Richard Smyth’s An Indifference of Birds: “When Homo sapiens has gone there will be lots of ideal swift holes in the decaying buildings we’ll leave behind.” It’s comforting to think of natural cycles continuing after we’re gone … but let’s start making the space for them now. Jonathan Pomroy’s black-and-white illustrations of swift behaviour only add to this short book’s charms.
With thanks to Little Toller Books for the free copy for review.
Waiting for Superman: One Family’s Struggle to Survive – and Cure – Chronic Fatigue Syndrome by Tracie White
Like Suzanne O’Sullivan’s books (most recently, The Sleeping Beauties), this is presented as an investigation into a medical mystery. White, a Stanford Medicine journalist, focuses on one family that has been indelibly changed by chronic fatigue syndrome – now linked with myalgic encephalomyelitis and termed ME/CFS for short. Whitney Dafoe was a world traveller and promising photographer before, in 2010, a diagnosis of ME/CFS explained his exhaustion and gastrointestinal problems. By the time White first met the family in 2016, the thirtysomething was bedbound in his parents’ home with a feeding tube, only able to communicate via gestures and rearranging Scrabble tiles. He couldn’t bear loud noises, or to be touched. At times he was nearly comatose.
Whitney’s father, Ron Davis, is a Stanford geneticist whose research has contributed to the Human Genome Project. He has devoted himself to studying ME/CFS, which affects 20 million people worldwide yet receives little research funding; he calls it “the last major disease we know nothing about.” Testing his son’s blood, he found a problem with the citric acid cycle that produces ATP, essential fuel for the body’s cells – proof that there was a physiological reason for Whitney’s condition. Frustratingly, though, a Stanford colleague who examined Whitney prescribed a psychological intervention. This is in line with the current standard of care for ME/CFS: a graded exercise regime (nigh on impossible for someone who can’t get out of bed) and cognitive behavioural therapy.
White delves into Whitney’s past, looking for clues to what could have triggered his illness (having mono in high school? a parasite he picked up in India?). She also goes back to the mid-1980s to consider the Lake Tahoe outbreak of ME/CFS, whose victims “looked too healthy to be sick and were repeatedly disbelieved.” The media called it “yuppie flu,” downplaying the extreme fatigue involved. White also meets Laura Hillenbrand, author of Seabiscuit, who suffers from ME/CFS and managed to write her bestselling books from bed. Like Whitney, she only has a certain allotment of energy and mustn’t use it up too fast.
- A neat connection: Stephanie Land, author of Maid, was Whitney’s ex-girlfriend when he was 19 and living in Alaska; she wrote a Longreads article about their relationship.
- The title is from a Flaming Lips lyric and expresses Whitney’s trust in his dad’s ability to cure him; the U.S. title is The Puzzle Solver and the working title was The Invisible Patient.
With thanks to Atlantic Books for the free copy for review.