Tag: breast cancer

The 2019 Wellcome Book Prize: Shadow Panel and Wish List

On Tuesday the longlist for the 2019 Wellcome Book Prize will be announced. For the third year in a row I’m running a shadow panel, and it’s composed of the same four wonderful book bloggers who joined me last year: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall.

This year we’re going to do things slightly differently: we plan to split up the longlist, taking two to three titles each, so that between us we will have read them all and can announce our own preferred shortlist before the official shortlist is announced in March. At that point we’ll catch up by (re)reading the six shortlisted books, each reviewing the ones we haven’t already. Essentially, I’m adding an extra stage of shadow panel judging, simply because I can. I hope it will be fun – and also less onerous, in that we should get a leg-up on the shortlist and not have to read all six books in March‒April, which has proved to be a challenge in the past.

My Wellcome Prize hopefuls are all the fiction or nonfiction titles I’ve read on a medical theme that were published in the UK in calendar year 2018. I have put asterisks beside the 12 books in this post that I predict for the longlist. (The combination of wishful thinking and likelihood means that these are not exclusively my personal favorites.)

 

Below is a list of the books I’ve already featured on the blog in some way, with links to my coverage and a few-word summary of their relevance.

 

Nonfiction

Gross Anatomy by Mara Altman: Female body woes

*Beneath the Skin: Great Writers on the Body: Essays on organs

*All that Remains by Sue Black: Forensic anthropology

Everything Happens for a Reason by Kate Bowler: Living with advanced cancer

Heal Me by Julia Buckley: Tackling chronic pain

*The Unmapped Mind by Christian Donlan: Adjusting to life with MS

From Here to Eternity by Caitlin Doughty: Funerary rites around the world

This Really Isn’t About You by Jean Hannah Edelstein: A genetic disease in the family

Natural Causes by Barbara Ehrenreich: Questioning the wellness culture

On Smaller Dogs and Larger Life Questions by Kate Figes: Pondering breast cancer

Shapeshifters by Gavin Francis: Instances of bodily change

The Reading Cure by Laura Freeman: Healing from an eating disorder

Nine Pints by Rose George: The story of blood

Waiting for the Last Bus by Richard Holloway: Ageing and death

*Heart: A History by Sandeep Jauhar: Heart disease and treatments

Sick by Porochista Khakpour: Chronic Lyme disease

Human Errors by Nathan Lents: Flawed bodies; evolutionary adaptations

Skybound by Rebecca Loncraine: Breast cancer; flying lessons

Amateur by Thomas Page McBee: Memoir of F2M transformation

*Face to Face by Jim McCaul: Tales of facial surgery

*Somebody I Used to Know by Wendy Mitchell: A firsthand account of early Alzheimer’s

*That Was When People Started to Worry by Nancy Tucker: Mental illness from the inside

*The Language of Kindness by Christie Watson: Nursing as a vocation

 

Fiction

Little by Edward Carey: Anatomical models in wax (thanks to Clare for the reminder!)

Orchid & the Wasp by Caoilinn Hughes: Non-epileptic seizures

*The Winter Soldier by Daniel Mason: Neurology, surgery during WWI

The Way of All Flesh by Ambrose Parry: Medicine in 1840s Edinburgh

 

 

Other eligible books that I have read but not happened to mention on the blog:

 

In Shock by Rana Awdish: The doctor became the patient when Awdish, seven months pregnant, was rushed into emergency surgery with excruciating pain due to severe hemorrhaging into the space around her liver, later explained by a ruptured tumor. Having experienced brusque, cursory treatment, even from colleagues at her Detroit-area hospital, she was convinced that doctors needed to do better. This memoir is a gripping story of her own medical journey and a fervent plea for compassion from medical professionals. 

 

Doctor by Andrew Bomback: Part of the Bloomsbury Object Lessons series, this is a wide-ranging look at what it’s like to be a doctor. Bomback is a kidney specialist; his wife is also a doctor, and his father, fast approaching retirement, is the kind of old-fashioned, reassuring pediatrician who knows everything. Even the author’s young daughter likes playing with a stethoscope and deciding what’s wrong with her dolls. In a sense, then, Bomback uses fragments of family memoir to compare the past, present and likely future of medicine. 

 

A Moment of Grace by Patrick Dillon [skimmed]: A touching short memoir of the last year of his wife Nicola Thorold’s life, in which she battled acute myeloid leukemia. Dillon doesn’t shy away from the pain and difficulties, but is also able to summon up some gratitude. 

 

Get Well Soon: Adventures in Alternative Healthcare by Nick Duerden: British journalist Nick Duerden had severe post-viral fatigue after a run-in with possible avian flu in 2009 and was falsely diagnosed with ME / CFS. He spent a year wholeheartedly investigating alternative therapies, including yoga, massage, mindfulness and meditation, visualization, talk therapy and more. He never comes across as bitter or sorry for himself. Instead, he considered fatigue a fact of his new life and asked what he could do about it. So this ends up being quite a pleasant amble through the options, some of them more bizarre than others. 

 

*Sight by Jessie Greengrass [skimmed]: I wanted to enjoy this, but ended up frustrated. As a set of themes (losing a parent, choosing motherhood, the ways in which medical science has learned to look into human bodies and minds), it’s appealing; as a novel, it’s off-putting. Had this been presented as a set of autobiographical essays, perhaps I would have loved it. But instead it’s in the coy autofiction mold where you know the author has pulled some observations straight from life, gussied up others, and then, in this case, thrown in a bunch of irrelevant medical material dredged up during research at the Wellcome Library. 

 

*Brainstorm: Detective Stories From the World of Neurology by Suzanne O’Sullivan: Epilepsy affects 600,000 people in the UK and 50 million worldwide, so it’s an important condition to know about. It is fascinating to see the range of behaviors seizures can be associated with. The guesswork is in determining precisely what is going wrong in the brain, and where, as well as how medicines or surgery could address the fault. “There are still far more unknowns than knowns where the brain is concerned,” O’Sullivan writes; “The brain has a mind of its own,” she wryly adds later on. (O’Sullivan won the Prize in 2016 for It’s All in Your Head.) 

 

 

I’m also currently reading and enjoying two witty medical books, The Mystery of the Exploding Teeth and Other Curiosities from the History of Medicine by Thomas Morris, and Chicken Unga Fever by Phil Whitaker, his collected New Statesman columns on being a GP.

 


Four additional books I have not read but think might have a chance of making the longlist:

Primate Change: How the World We Made Is Remaking Us by Vybarr Cregan-Reid

The Beautiful Cure: Harnessing Your Body’s Natural Defences by Daniel M. Davis

Because I Come from a Crazy Family: The Making of a Psychiatrist by Edward M. Hallowell

*She Has Her Mother’s Laugh: The Powers, Perversions, and Potential of Heredity by Carl Zimmer

 


Look out for the announcement of the longlist on Tuesday afternoon! I’ll report back, perhaps on Wednesday, with some reactions and the shadow panel’s reviewing strategy.

 

Have you read, or are you interested in, any of these books?

Can you think of other 2018 releases that might be eligible for the Wellcome Book Prize?

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Two Memoirs of Women’s Freedom: Lara Feigel and Rebecca Loncraine

I have read some truly phenomenal memoirs this year, most of them by women. These two have rather different starting points – frustration with the constraints of marriage and motherhood, and breast cancer treatment – but I’ve paired them because both are journeys of self-discovery in which the author commits to determining how to live a free and true life.

 

Free Woman: Life, Liberation and Doris Lessing by Lara Feigel

It started with a spate of weddings one summer. Lara Feigel, a literature lecturer at King’s College London, found herself strangely irked at all this capitulation to marital convention, even though she herself had married in her twenties and had a young son. What did her mild outrage signify? At the same time, she was rereading the works of Doris Lessing, whom she found simultaneously admirable and vexing: Lessing lived by her ideals of free love and Communism, but it came at the price of abandoning her children. Feigel could identify with Lessing in some ways but not in others, and as she entered a rocky time in her mid-thirties – a miscarriage followed by IVF, which was a strain on her marriage; the death of a close friend; and ongoing worry over how motherhood might affect her academic career – she set out to find what Lessing could teach her about how to be free.

Throughout, Feigel holds up her own experiences of marriage and motherhood in parallel to Lessing’s. She maintains a delicate balance between biographical and autobiographical information and brings in references to other writers – everyone from Rachel Cusk to D.H. Lawrence – to explore various opinions on maternal ambivalence and sexual fulfillment. I could relate to the bookworm’s impulse to turn to literature for comfort and direction – “the most enduring novelists … illuminate our lives,” and “we live differently as a result of reading them,” Feigel insists. Lessing seemed to her the perfect “writer to discover in your thirties; a writer who wrote about the lives of grown-up women with an honesty and fullness I had not found in any novelist before or since.”

And yet a familiarity with or fondness of the works of Doris Lessing is not a prerequisite to enjoying this book. I’ve only ever read The Golden Notebook (1962) and Alfred and Emily (2008), a fictionalized biography of Lessing’s parents, both during my mid-twenties. The former I almost certainly read before I could fully appreciate it. It’s about the ways in which women compartmentalize their lives and the struggle to bring various strands into harmony; that’s what Free Woman is all about as well. Feigel often looks for clues in Lessing’s heavily autobiographical Martha Quest novels, which I’d like to read, and also travels to California to meet one of Lessing’s lovers and to Zimbabwe to see the farm where Lessing grew up.

Like Samantha Ellis’s How to Be a Heroine and Rebecca Mead’s My Life in Middlemarch, this is a richly satisfying hybrid of biography, literary criticism and memoir. I would also recommend it to readers of Alexandra Fuller’s Don’t Let’s Go to the Dogs Tonight, Nancy Horan’s Loving Frank, and Adrienne Rich’s Of Woman Born. Feigel’s is a particularly brave and forthright book. I feel proud of her in an oddly personal way: during my years as a library assistant at King’s, I saw her chair countless literature and life writing events. She seemed impossibly young for a professor type, and wore her navy blue shift dress and string of pearls like it was her grown-up’s uniform. I can tell that the years since, including the difficult experiences she recounts here, have both softened and toughened her, sandpapering away what she calls her “diffident angularity” and replacing it with womanly wisdom.

My rating:


Free Woman was published by Bloomsbury UK on March 8th. My thanks to the publisher for the free copy for review.

 

Skybound: A Journey in Flight by Rebecca Loncraine

In 2016 it was When Breath Becomes Air by Paul Kalanithi; in 2017 it was The Bright Hour by Nina Riggs. And now Skybound. Each year seems to bring one exquisite posthumous memoir about facing a death from cancer with dignity. For Rebecca Loncraine, after treatment for breast cancer in her early thirties, taking flying lessons in an unpowered glider was her way of rediscovering joy and experiencing freedom by facing her fears in the sky.

She was a freelance writer based on her parents’ farm in the Black Mountains of Wales, an area that’s familiar to me from trips to Hay-on-Wye and from my reading of Bruce Chatwin’s On the Black Hill. The history and geography of the region, as revealed from the air, weave through the book, as do childhood memories and recollections of chemotherapy. Loncraine discovered a particular love for flying alongside birds: the red kites in Wales, and later vultures in Nepal. The most remarkable passages of the book are the exhilarating descriptions of being thousands of feet up in the air and the reflections on why humans are drawn to flight and what it does for our bodies and spirits. She learned from a British Airways pilot that 500,000 people are airborne at any one moment! We take for granted what should still be acknowledged as a miraculous feat.

“There’s no road in the sky. Each individual glider pilot finds a new pathless way through the air, a unique scribble. We locate a bit of ridge lift, here; fly out to a thermal, there; we wind and manoeuvre over the curving land. We never take the same route twice, so flight offers me a new perspective each time I fly.”

“Influenced by the ancient seam of human thought that associates the sky with the imagination, weaving and circling in the sky begins to feel like sailing through the realm of the subconscious itself.”

This hobby-turned-obsession was not without its inconveniences and dangers. Even when it’s warm at ground level it’s frigid at 13,000 feet, so you have to bundle up. Meanwhile, the strength of the sun means you keep guzzling water and have to wear either a urine-collecting device or adult diapers. The earliest attempts at unpowered flight were generally fatal, and when Loncraine went to New Zealand for a bonus season of flying to replace the Welsh winter, one of her fellow flyers died in a crash. Her instructor told her she’d become fearless, even reckless. But when she met one of the pioneers of gliding, then in his nineties, in New Zealand he spoke an aphorism that perfectly captures the role flying played for Loncraine: “The antidote to fear is fascination.”

There’s a brief afterword by Loncraine’s mother, Trisha. Her daughter had virtually finished this manuscript when the cancer returned, and underwent another 14 grueling months of treatment before her death in September 2016. This is a simply wonderful book; what a shame that we won’t get another.

My rating:


Skybound was published by Picador on April 19th. My thanks to the publisher for a proof copy for review.

 

These would be ideal follow-up reads.

Two Memoirs: Border Control and Breast Cancer

The Line Becomes a River

Francisco Cantú was a U.S. Border Patrol agent in Arizona and Texas for four years. Agents tracked illegals using the same skills with which hunters stalk their prey. Once captured, the would-be immigrants were detained, processed and deported. Days in the field were full of smuggled drugs, cached belongings and corpses of those who’d tried to cross in inhospitable conditions. Even when Cantú was transferred to a desk job, he couldn’t escape news of Mexican drug cartels and ritual mutilation of traitors’ corpses. Dreams of wolves and of his teeth breaking and falling out revealed that this was a more stressful career than he ever realized. Cantú worried that he was becoming inured to the violence he encountered daily – was he using his position “as a tool for destruction or as one of safekeeping”?

Impressionistic rather than journalistic, the book is a loosely thematic scrapbook that uses no speech marks, so macho banter with colleagues blends into introspection, memories and stories. Cantú inserts snippets of U.S.–Mexico history, including the establishment of the border, and quotes from and discusses other primary and secondary texts. He also adds in fragments of his family’s history: His ancestors left Mexico during the Mexican Revolution of the 1910s, but there’s no doubt his Latino name and features made him a friendly face for illegal immigrants. He was often called upon to translate for those in custody. I felt that even if the overall policy was problematic, it was good to have someone compassionate in his job.

The final third of the book represents a change of gears: Cantú left law enforcement to be a Fulbright scholar and then embarked on an MFA in creative writing at the University of Arizona. During those years of study he worked as a barista at a food court and every day he chatted and shared food with another worker, José Martínez from Oaxaca. When José went back to Mexico to visit his dying mother and settle her estate, he was refused reentry to the United States for not having the proper papers. Cantú drew on his contacts in Border Patrol to find out when José’s hearing would be, helped his wife to gather character witness letters, and took José’s sons to visit him in the detention center during his continuance and civil trial. There’s a particularly wrenching recreated monologue from José himself.

I love these endpapers.

It is as if, for the first time, Cantú could see the human scale of U.S. immigration policy, what his mother, a former national park ranger, had described as “an institution with little regard for people.” No longer could he be blasé about the way things are. It was also, he recognized, an attempt to atone for the heartless deportations he had conducted as a Border agent. “All these years,” he said to his mother, “it’s like I’ve been circling beneath a giant, my gaze fixed upon its foot resting at the ground. But now, I said, it’s like I’m starting to crane my head upward, like I’m finally seeing the thing that crushes.” As he quotes from Holocaust historian Timothy Snyder, “It is for us as humanists to turn the numbers back into people.” That’s just what this remarkable memoir does. In giving faces to an abstract struggle, it passionately argues that people should not be divided by walls but united in common humanity.

My rating:


The Line Becomes a River was published in the UK by Bodley Head on March 1st. My thanks to the publisher for the free copy for review.

 

On Smaller Dogs and Larger Life Questions

It was hard to resist such a great title, especially with my penchant for cancer memoirs. In nine chapters that are almost like linked essays, Kate Figes reflects on the changes that a diagnosis of triple-negative, metastasized breast cancer has wrought in her life. However, like Vesna Goldsworthy’s Chernobyl Strawberries, the book sets the cancer experience within a wider life story of trauma and displacement. In the first essay, as Figes, a freelance nonfiction writer, approached age 60, she delighted in Zeus, their miniature wire-haired dachshund puppy, but also resented the sense of obligation. Cancer quickly changed her perspective.

I appreciated the lack of bitterness; the book’s focus is generally on resilience and on the liberation of knowing that little is now expected of her: “when there is no need to rush just to be able to get through everything I had to achieve each day, there is a glorious sense of freedom, of empty space.” Two chapters go in-depth into Figes’s “arsenal” of cancer-fighting tools, everything from hyperbaric oxygen treatments to yoga. She gave up sugar and swears by cannabis oil, filtered water, supplements and fresh juices. Her embrace of complementary medicine and discussion of her limitations – it takes her an hour and a half to get dressed and have breakfast – will probably mean the most to others with a chronic illness.

As to the other essays, “Tennis” is an ode to a favorite hobby she had to give up; “Mediation” is about training as a family mediator. The psychological understanding she gained through this and through researching her books helped her work through childhood hurt over her parents’ divorce. “The Beach Hut” remembers recent ‘escapes’ to the seaside and contrasts them with her Jewish mother’s* escape from 1930s Germany. “Home,” my favorite essay, is about clearing out her mother’s flat and the memories and comfort a home retains, even decades later. “That’s the power I will leave behind too, the essence of having been really known. It will pervade every piece of crockery I have eaten off, … every chair I have sat on.”

Unfortunately, Figes frequently uses clichéd language – “Cancer can feel isolating” and “battle is the right word” – and seems to give credence to the damaging idea that unresolved emotional trauma caused her cancer. What with the typos and the slight repetition across the essays, this feels like a book that was put together in a hurry. A bit more time and editing could have made it more cohesive and fresh. But perhaps Figes does not have that time. Fellow cancer patients may well appreciate her dispatches from what she calls “Planet Cancer,” but it’s not a book that will particularly stand out for me in this crowded genre.

*Her mother was Eva Figes, an author in her own right.

My rating:


On Smaller Dogs and Larger Life Questions was published by Virago on February 28th. My thanks to the publisher for the free copy for review.